September 1, 2024 will mark my 19th “Cancerversary” – the anniversary of the day I was initially told “you have lung cancer.” It’s a bittersweet occasion.
It’s weird in part because I’m now the longest living male lung cancer survivor that I’ve known, (Frances may have me beat, but I really don’t know) and weird because, while I know a few women survivors that are still alive and were diagnosed before me, their numbers are pretty small. It’s weird too because, in the past few years, we’ve lost many of the people I considered my peers in this effort to stay alive. They were giants, and their deaths ripped holes in my heart.
Cliff, Laura, Anita, Linnea, Gretta, Tracy, Don, Molly, Ivy, Frank, Dann, Gina, Dave, Rick, Andy, Christian, Joan - and the list could go on. We have lost lions to this disease. But, maybe, just maybe, that could be changing. Not soon enough for too many, but, maybe?
For those that are still here since receiving a diagnosis, I have two asks. First, can you please, please, please take a few minutes to visit this site: gkc.go2.org/pages/LCEN Check out what we’re doing, and please, take the survey. It just takes a few minutes, but it’s important. Second, please, please, please, share information about the Lung Cancer Engagement Network (LCEN) and this site with others you know. We need to get 1,000 people to take this survey in a very short period of time, and the only way that’s going to happen is if everyone helps.
The other thing I would ask of you is to talk to people you know about the value of lung cancer screening. It’s the one thing we can really do to decrease the number of people we lose every year – finding lung cancer early through annual screening is the single best way to do that, and it’s just a matter of getting people to do it! It’s 10 minutes, once a year, and you don’t need to take your shoes off, go through any prep, or even draw any blood. We spend more time getting oil changes done on our cars – and this is so much easier! So, please spread the work. It can save lives.
My daughters are now 18, 16, and 14. And I’m still their dad. I know I’m lucky. 19 years of survival after a diagnosis of lung cancer is a rarity. But we can do stuff to change those odds for the next generation of cancer patients. So, please join me in trying. Please?
gkc.go2.org/pages/LCEN
Everyone should pay attention to the upcoming events in Childhood Cancer Awareness. This month in particular we will see marked advancement in the future of Childhood and AYA care that will have long standing impacts to the general public but mostly to patients and their caregivers. Attend where you can and share broadly! Sharing for a wider Audience. STEMM & Cancer Health Equity Commission for Nurse ReimbursementCancerX Moonshot