Why Zebras? In the world of medicine, professionals are often reminded, “When you hear hoofbeats, think of horses, not zebras,” encouraging a focus on common diagnoses. But what if it IS a zebra? The zebra has become a powerful symbol for the rare disease community, representing the need to look beyond the usual and consider the uncommon. The Minnesota Rare Disease Advisory Council is dedicated to raising awareness and ensuring those living with rare diseases receive the attention and care they deserve.? ? Come see us at the Minnesota State Fair tonight from 5pm-9pm at the Minnesota Council on Disability booth in the Education Building #RareDisease #RareIsNotRare
The Minnesota Rare Disease Advisory Council的动态
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President-elect American Association of Cardiopulmonary Rehabilitation. Director, Cardiopulmonary Rehabilitation
Cardiac Rehab: Improving saved Lives and restoring hope through passionate education and scientific conditioning.
Happy #CRWeek2024! Today through Saturday, February 17, join AACVPR in drawing attention to the role cardiac rehabilitation plays in reducing the potentially devastating effects of heart disease. Be sure to follow along on our social channels all week long as we will be sharing resources, celebration ideas, advocacy tips and more.
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#ChildrensEyeHealthAndSafetyMonth: What is X-linked retinoschisis (XLRS)? XLRS causes the splitting of retinal layers, leading to the degeneration of photoreceptors, resulting in the loss of central and peripheral vision. As an X-linked disease, it primarily affects males and is typically diagnosed during childhood. But there’s hope and a supportive community! Learn more about living with XLRS and the groundbreaking research on our website at: https://lnkd.in/dYYCt9qQ Image Description: Dark blue background with Spotlight on Children's Eye Health and Safety Month logo in top left corner with text below reading "Did you know? XLRS occurs primarily in males." Foundation Fighting Blindness logo in top right corner. Below is a young boy wearing glasses and smiling.
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#ChildrensEyeHealthAndSafetyMonth: What is X-linked retinoschisis (XLRS)? XLRS causes the splitting of retinal layers, leading to the degeneration of photoreceptors, resulting in the loss of central and peripheral vision. As an X-linked disease, it primarily affects males and is typically diagnosed during childhood. But there’s hope and a supportive community! Learn more about living with XLRS and the groundbreaking research on our website at: https://gag.gl/DwhQFG Image Description: Dark blue background with Spotlight on Children's Eye Health and Safety Month logo in top left corner with text below reading "Did you know? XLRS occurs primarily in males." Foundation Fighting Blindness logo in top right corner. Below is a young boy wearing glasses and smiling.
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On March 19, 2024, HMA convened the Compassionate Overdose Response Summit to shed light on best practices in overdose prevention and engage participants in a national dialogue about naloxone dosing. Our goals were to explore 1) the impact of different overdose reversal products on people who receive them, 2) the role of rescue breathing in community overdose response, and 3) communication strategies for bystander overdose response steps. Read our highlights and key takeaways: https://bit.ly/3WmECcf
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??April is Parkinson’s awareness month. ??For the one million Americans living with Parkinson’s, Parkinson’s awareness is more than a month. It’s about bringing attention to a life-changing disease that is on the rise and connecting people to critical resources. ??This special month-long campaign focuses on an important part of PD awareness —educating everyone on the many symptoms that impact daily life and how to address them. It’s also about helping people recognize the early signs that can lead to an earlier diagnosis and overall better quality of life. https://lnkd.in/gyUa2Nu6
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Every October, World Blindness Awareness Month shines a spotlight on the blind and visually impaired community, raising awareness about the challenges of living without sight. The World Health Organization (WHO) notes that “everyone, if they live long enough, will experience at least one eye disease or disorder in their lifetime.” The Sight Center is commemorating the occasion with a month-long campaign that will bring attention to blindness, celebrate independence, dispel misconceptions, and promote services for people who live with little or no sight. https://lnkd.in/gzKVbEY4
Blindness Awareness Month
sightcentertoledo.networkforgood.com
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Chief Hospital Executive at CarePoint Health System -Christ Hospital & CarePoint Health System EVP Clinical Integration & Standards
Stroke awareness programs help save lives by educating people about stroke symptoms and how to respond in an emergency. In a #Stroke, Time is Brain. CarePoint Health System Improving the health of the communities we are privileged to serve. #StrokeAwareness #SaveLives #HudsonCounty
Join CarePoint Health for our Community Stroke Awareness and Prevention Fair on June 12th at Christ Hospital. Let's #BEFAST and educate all that when it comes to stroke treatment, not all hospitals are equal. #TimeisBRAIN, responses must be efficient for the best outcomes. Together, lets advocate for our communities and the future of stroke treatment. ?? #StrokeAwareness #MedicalInnovation #HudsonCounty #CarePointHealth
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Philanthropy | Social Impact | Nonprofit Management | Corporate Partnerships | Moonshots | Mediation
If not now, when? The American Heart Association turns 100 day. There are so many ways to celebrate and honor this momentous day: ??Learn Hands-Only CPR. #NationOfLifesavers ?? Sponsor trainings for your employees, field staff, partners. ??Embrace a community’s cardiovascular and stroke health through #corporatesponsorship. ?? Build a coalition of powerhouse business leaders through Heart of Los Angeles #boardservice ?? Inspire passionate consumers by aligning with their values. #causemarketing The first 100 years were remarkable. The next 100 is nothing short of a #moonshot. #causemarketing #nonprofitleadership
June 10, 2024, marks 100 years of scientific discovery and innovation by the American Heart Association. The Association is now the nation’s oldest and largest voluntary organization dedicated to fighting heart disease and stroke. During its second century of bold action, the Association is committed to advancing health and hope for everyone, everywhere. Join us in celebrating our rich 100-year history and accomplishments that could not have been made possible without the people within #TheAHALife. At the American Heart Association, your career is significant and valuable. It's not just about the work you do; it's about the lives you touch, the communities you uplift, and the lasting legacy of health and hope you help to build. Discover how you can join our team at https://spr.ly/60435uXNl ?? #AHABoldHearts
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"On April 11, World Parkinson's Day, we unite in support and solidarity for those affected by Parkinson's disease. Today, we celebrate the strength of the Parkinson's community and commit to advancing research, awareness, and hope. Let’s embrace compassion and work together towards a brighter, Parkinson’s-free future. ???? #WorldParkinsonsDay #UnlockingLanguage #ParkinsonsAwareness #April11 #HopeForParkinsons #UnitedAgainstParkinsons"
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Commercial & Healthcare Director at Sure Group | Transforming communities across the UK with high-quality healthcare professionals
3 years ago, we introduced our Complex Care service after meeting 1 person… → Stephen with Motor Neurone Disease. Back then, he was in the ICU, hopeless & worried about loosing his independence. Today he’s: - Getting the best possible MND care. - Spreading awareness of the impacts of MND. - Receiving support from his own team & programme. Like most of us, I wasn’t massively familiar with Motor Neurone Disease. But being more aware of it means: ??Earlier detection & treatment ??Less stigma and misconceptions ??Better equipped to support loved ones So here’s everything important to know ??
