Luminesce Alliance的动态

The conversation about "How do we engage patient communities" is a hot topic in the industry right now. Excited for the opportunity to share along with Will Krugman, MBA Mapillar Dahnn and Jenifer Ngo Waldrop. If you have questions you'd like us to answer, send me a DM. #patientadvocacy #patientengagement #patientrecruitment #clinicaltrials #xtalks

Catch us talking about my favorite topic in patient recruitment: community engagement. We'll break down the buzzword and talk about actionable steps you can squeeze into your busy day, no matter your role.

Patient-Centered Trials: A Revolution in Medical care! Feel free to express your thoughts in the comments, and don't forget, you can also contribute your own content to help us foster a dynamic community of knowledge.?? Dive into the blog now and be part of the conversation!

How can we raise awareness of clinical trials? 1:1 conversations are important, as are public meetings about them. If you are looking to improve your understanding of clinical trials, this online meeting could be a place to start…. #clinicaltrials #awareness #understanding #communityengagement

Join us for a chat with actionable insights and real examples of how to address patient recruitment and retention challenges in ways that create meaningful results. If you have questions you'd like answered, DM them to me and I'll make sure we cover them in the session. #patientrecruitment #patientexperience #clinicaltrials #clinicalresearch

Now that I'm home and recovered, I've been reflecting on the wonderful few days last week spent at #ISMPPAnnual2024. There were engaging presentations, so much to be learned (77 posters!), and a rare opportunity to catch up with so many amazing people in-person. Long post incoming, but my highlights from the week included: ?? All of the labels you could pick from to add to your lanyard, including yellow for Patient Advocate, demonstrating ISMPP (International Society for Medical Publication Professionals)'s commitment to medical publications with, by, and for patients. ?? Meeting Shannon Ragland Lake after hearing her present the story of her journey to patient advocacy. Seeing representation on stage of Ehlers Danlos syndrome and Postural Orthostatic Tachycardia syndrome was emotional to say the least! ???? Facilitating a a workshop on patient partnership in publications. Featuring Patricia Segarini, PhD's superbly creative fictional treatments and conditions for an interactive pubs planning exercise which definitely won her a few laughs, e.g. hairlossinib for DAD syndrome aka hair loss from excessive screen/tablet use! ?? Kelly Ann Soldavin inviting me to to be an honorary publisher for the night and gatecrash dinner with Rachel Jenkins, Sam Cavana, Jonathan Patience, Joanne Walker, Laura Dormer, and Hamish McDougall (thank you all ??!). ?? Co-moderating an Open Pharma roundtable with Joana Osório on data sharing and reading all of the Oxford PharmaGenesis research presented at the poster session. ? Many, many more conversations and catch ups over tea/bubbles/dinner with our incredible network of medical publishing professionals. Until next year ?? #PatientAdvocate #PatientAdvocacy #NothingAboutUsWithoutUs #PatientPartnership #PatientEngagement #PatientCentricity #PatientAndPublicInvolvement #PatientAuthorship #Publishing #MedicalCommunications #MedComms #OxfordPharmaGenesis

Luminesce Alliance celebrates International Clinical Trials Day and the 250th anniversary of the first clinical trial by honoring trial leaders, support teams, and participants. We thank our clinical trial teams and community participants for advancing our health system and enabling new discoveries and treatments. International Clinical Trials Day marks May 20, 1774, when James Lind linked citrus fruits to scurvy prevention. Earlier trials include a 1537 experiment by Ambroise Paré, who treated wounds with a mixture that reduced pain and inflammation. Clinical trials have evolved significantly and are now crucial in modern medicine. How does Luminesce Alliance support clinical trials? We provide financial support for the delivery of clinical trials and professional training opportunities, including webinars and workshops, to enhance workforce capacity and foster connections. #ClinicalTrialsDay #HealthcareInnovation #MedicalResearch

?? Webinar Recap: Clinical Trial Management in Academic Medical Centers ?? We had the pleasure of hosting Dr. Tony Succar in our recent #OCRA-DG webinar! With experience across three major institutions, Tony Succar, PhD, MScMed(OphthSc) shared insights from his work on a bionic eye and a virtual vision rehab program, highlighting the essential role of clinical trials in developing new treatments. Key takeaways: ?? Over 500,000 trials registered on ClinicalTrials. gov underscore the need for effective trial management. ?? Strategies for participant retention, managing drug vs. device trials, and the unique challenges of pediatric trials. ?? Practical tips for improving trial success and participant experience. ?? Looking ahead to 2025: #Join OCRA to access our exclusive webinars all year long and stay ahead! https://lnkd.in/gBeUJtGc #ClinicalTrials #WebinarRecap #JoinOCRA #ProfessionalDevelopment

Celebrating Clinical Trials Day! Today, on Clinical Trials Day, we honor the countless individuals who have dedicated their lives to advancing medical science through their participation in clinical research. We also extend our deepest gratitude to the medical professionals, researchers, and patient advocates who tirelessly work towards safer, more effective treatments for all. Clinical trials are the backbone of medical progress, guiding us towards groundbreaking discoveries and innovative therapies. On this special day, let's also acknowledge the dedicated teams of researchers, clinicians, and healthcare providers who work diligently to ensure the safety, efficacy, and compliance of clinical trials. Their unwavering commitment to the highest ethical standards is vital in delivering trustworthy results and protecting patient well-being. Together, let's continue to raise awareness about the importance of clinical trials, advocate for inclusivity and diversity in research, and support ongoing efforts to improve trial accessibility for all. By joining forces, we can make a profound difference in the lives of patients globally. Wishing you a meaningful and impactful Clinical Trials Day. Let us stand united in our pursuit of a healthier future for all! #ClinicalTrialsDay #MedicalResearch #TogetherForHealth

A pathway to clinical trial Success