?? Keepin’ It Rare: A Special Rare Disease Video Series ?? Launched on ?? Rare Disease Day, Keepin’ It Rare—a 5-part video series—features powerful conversations on mental health, resilience, relationships, and advocacy to amplify the voices of the rare disease community ?? Hosted by Dr. Al Freedman, each episode dives deep with patients, caregivers, and community advocates to share real experiences and insights. Many of you will recognize Al as the facilitator of our IFOPA Peer and Caregiver support groups ?? ?? Don’t miss these must-watch discussions: ? Introducing Dr. Al with Kiersten Riggs ? The Patient Experience with Kerry Wong ? The Caregiver Journey with Danita LaShelle ? The Rare Community with Brad Dell ? Questions from the Community with Brandi Lewis ?? Watch now & join the conversation: https://lnkd.in/gq4_H95s ?? Video series created by Bionews in partnership with the National Organization for Rare Disorders
