Hereditary Angioedema Association - HAEA的动态

I was very happy that HBiO and Ioanna Koukli dedicated a whole workshop this week on Patient engagement in Clinical Trials, and even more happy and proud that in a topic so close to my heart, I was at the same panel discussion with Prof. Evangelos Terpos, Leonidas Klironomos, Tina Antachopoulou and Vasiliki Mollaki. At #JnJ we have patients as our first priority and in our new Clinical Trials Department @JanssenGreece have already established impactful solutions, that would enhance patient engagement. #PatientEngagement, #Patientcentricity, #Innovation, #ClinicalTrials @JanssenGreece

Our Director Dr. Santosh Sacket will be speaking at 15th Annual Clinical Trials Summit 2024, on important topic of "What regulatory changes?& developments can help in advancement of?Clinical Trials in India" If you're attending this summit, don't miss the chance to connect with him and learn more about Expecto's vision and services! Expecto Health Science Virtue Insight #ClinicalTrials #HealthcareInnovation ?#Innovation #ClinicalTrialSummit2024 #regulatoryupdates #expecto #Conference

Why you should choose Medialis Ltd for all your real-world evidence needs In today's rapidly evolving healthcare landscape, how confident are you that your organisation is generating comprehensive and accurate evidence? At Medialis Ltd, we specialise in providing robust real-world evidence that empowers decision-making and drives better outcomes by enabling more patients to receive new medicines sooner. Medialis Ltd can help you develop Quality of Life instruments, Disease severity scores, Core datasets, and Cost lists by: ? Applying Neutral Theory:?Ensuring unbiased and scientifically sound methodologies. ? Using the Jandhyala Method:?Leveraging cutting-edge techniques for observing consensus of opinion. ? Unifying observations of diseases across multiple geographies and disciplines:?Harmonising approaches in the practice of observing patients on or off treatment, irrespective of point of view. ? Identifying the right patients:?Enabling accurate screening of at-risk patient populations to diagnose and treat any underlying condition in a timely manner. ? Prediction of long-term outcomes:?forecasting future trends in disease progression. ? Costing services accurately:?Delivering detailed and accurate cost lists beyond the basic costs to support economic evaluations. For more information and to discuss how our methods can benefit your organisation, get in touch with us at?[email protected]

?? Webinar Alert: Enhancing Patient Involvement in Personalized Medicine – Lessons from Nigeria and Hungary ?? Join us for an insightful webinar where we explore actionable strategies for implementing personalized medicine at the point of care! ?? Objective: This event, organized by EuAfrica PerMed in collaboration with FT3, will showcase real-world outcomes from demonstration pilots in Nigeria and Hungary. We'll focus on enhancing patient involvement and shared decision-making. Focuses on highlighting how these approaches are transforming patient care and improving outcomes. ??? Date & Time: 29th October 2024, 16:00 - 16:55 CET ?? Key Takeaways: Learn strategies for accelerating personalized medicine at the point of care. Explore case studies from Nigeria and Hungary on how patient involvement drives success. Engage in discussions with healthcare experts and project leaders! ?? Register now to secure your spot! https://lnkd.in/gCNh3_hr ??? Speakers: Maria Jose Ruiz – EuAfrica PerMed Overview Silvia Bornengo& Ozioma Uzodinma – FT3's Global-Local Approach & Strategies Runcie Chidebe, Erika Pataki & Dr. Eszther Czibula – Case Studies: Nigeria & Hungary Don't miss this opportunity to gain valuable insights into the future of personalized medicine! ?? #PersonalizedMedicine #PatientCare #SharedDecisionMaking #HealthcareInnovation #Nigeria #Hungary #EuAfricaPerMed #FT3 #Webinar

MediConcept will participate in the upcoming conference organized by the Hungarian Society of Personalized Medicine / Magyar Személyre Szabott Medicina Társaság. As part of our activities related to rare diseases, we would also draw attention to this conference. This year's conference will provide attendees with a thorough overview of the advancements in precision medicine, the application of the most modern technologies and treatments, and address the various concerns and questions that professionals in this multidisciplinary field face. Those interested can check out more details through the link posted in the comments. ? #MSZMT #PrecisionMedicina #Healthcare

IMI_EHDEN and DARWIN EU? were highlighted in the latest Draghi report on European competitiveness ?? EHDEN's work in standardizing?data sources to a Common Data Model and DARWIN EU?'s role in empowering real-world evidence generation are crucial for driving innovation in medicine development and clinical decision-making. SYNAPSE, as a key participant in both projects, is proud of the impact that these initiatives are having on the European healthcare landscape. ?? The full report, 'The future of European competitiveness – In-depth analysis and recommendations', can be downloaded here: ?? https://lnkd.in/eAk84kkG #EHDEN #DARWINEU #RealWorldEvidence #ClinicalResearch #HealthcareData #HealthcareInnovation

Looking forward to this Forum, which represents the collaboration of esteemed experts to address the economic, policy and operational barriers preventing barriers preventing 64% of patients gaining access to the best treatment for them (as identified in our Clinical Practice Gaps paper published by JCO). Swipe below to discover our Forum members who have conduced the research and analysis to be presented at the Summit. Find out more and sign up for this event here: https://lnkd.in/edPcGVNX #precisionmedicine #biomarkers

Peter and Julia have been flat out today at the ???????? ???????????????? ?????????????????????? ???????????????????? in London. ... The conference has provided clinicians with insights into the latest developments in lymphoedema management, along with an in-depth understanding of how and what to measure when assessing patients with lymphoedema and chronic oedema. The various guest speakers have highlighted the challenges in managing lymphoedema and gave clinicians the opportunity to share and exchange ideas with other professionals in their field. #lymphoedema #oedema #lymphedema #edema

I really innovative angle on the conduct and execution of clinical trials.

?? #WorldPIWeek Map of PID Advancements: Delve into the dynamic partnership between United Nations Institute for Training and Research (UNITAR) and IPOPI - International Patient Organisation for Primary Immunodeficiencies, dedicated to enhancing global access to plasma-derived therapies. This collaboration, spanning Argentina and Malaysia, underscores our shared commitment to addressing global challenges and fostering better healthcare access for all. ?? More examples here: https://bit.ly/49O97KX