The Health Law Section of The Florida Bar的动态

Meet. Dr Nick Burrus - born with a weak heart and given just five years to live, he underwent multiple heart surgeries throughout his childhood. Despite being told by one doctor that he wasn't a transplant candidate, his determination led him to Cedars Sinai Hospital, where he received a life-saving heart transplant in January 2020 at the age 29. Dr. Nick Burrus's story is a testament to the life-changing impact of organ donation. Thanks in part to support from JJ's Legacy, which provided grants to help cover medical expenses, travel costs, and rehabilitation, Dr. Burrus has transformed his life post-transplant. His heart function has dramatically improved from below 30% to a healthy 60%. Since his transplant, he's gone on to earn his doctorate in Healthcare Administration, write a book, and start his own consulting business. "Before January 19, 2020, I had spent my whole life thinking in the shorter term," says Dr. Burrus. "And because of one family's very difficult decision and the continued generosity of my community, I feel like I no longer have an "expiration date." And I'm so, so grateful." Nick's story represents hope for the more than 400 Kern County residents currently awaiting organ transplants. You can read more about Nick’s story in the November issue of Greet Seven Oaks #DonateLife #OrganDonation #TransplantCommunity #KernCounty #NonprofitImpact #JJsLegacy #HopeHeals #CommunitySupport #HeartTransplant

Longevity Escape Velocity Foundation (LEVF) today welcomes two very generous donations from long-time supporter of longevity research and activism, Didier Coeurnelle. The first donation is 200,000 euros (approximately 220,000 US dollars). The second donation, of up to another 200,000 euros, is dependent on LEVF receiving matching gifts from other donors from 1st October until the end of the month (October 31st). These donations enable a key set of pre-study pilots ahead of the next phase of LEVF’s groundbreaking investigations into the effects of combining different damage-repair interventions for middle-aged mice. https://lnkd.in/emAZf5KR

Your donations ensure we can continue to provide free programs to people with epilepsy in BC including Project UPLIFT for depression and anxiety, HOBSCOTCH program for memory strategies, and the New Diagnosis Program for those with new diagnoses or who want to learn more about their condition. After struggling with memory issues after getting epilepsy brain surgery, one client found our HOBSCOTCH memory strategy program. After completing the 8 week program, he couldn't believe how much it helped, saying "This program has literally changed my life!" Through your donation you are ensuring that people living with epilepsy can take part in our free programs and have life-changing experiences just like this one! On Giving Tuesday on December 3rd, we hope you will visit?https://bit.ly/473Xz5v?to make a donation. Thank you for your support! Image Description: This graphic features a purple and white gradient background with black text reading "Providing a variety of programs for people with epilepsy in BC ... one donation at time." Underneath the text are two images, both of which feature the hands of a person giving resources to another person. Underneath these images is black text that reads "On #GivingTuesday on December 3rd, please donate via visit the link in the caption of this post or in our link in bio. Your donations help us support the epilepsy community in BC. Thank you for your generosity!" The BC Epilepsy Society "Over 60 Years" logo and the Giving Tuesday logo are also featured on this graphic. #givingtuesday #givingtuesdayca #canadahelps #donation #donate #donor #charity #charitable #nonprofit #epilepsy #seizures #seizure #seizuredisorder #epilepsyawareness #epilepsyeducation #epilepsywarrior #epilepsylife #epilepsystrong #epilepsypositivity #epilepsyadvocate #endepilepsy #acceptepilepsy #epilepsycommunity #bcepilepsysociety #iamavoiceforepilepsyawareness #epilepsyvoice #bcepilepsyvoice

Individuals with #ZTTK syndrome are among the rarest of the rare. There are less than 300 known individuals with ZTTK in the entire world. Due to strict regulations and funding challenges, academic medical research is often a long, slow process. And because ZTTK is so rare it is difficult to attract the attention of medical researchers. The primary researcher who discovered ZTTK syndrome after many years of studying the SON gene remains committed to her medical research and works closely with our foundation. We are immensely grateful for her knowledge, expertise, commitment and friendship. Currently the only treatment options for individuals with ZTTK syndrome are symptomatic support: medications or surgeries for seizures, feeding tubes for poor growth, IV infusions for immune deficiency, therapies for developmental delays, etc. Late last year ZTTK SON-Shine Foundation began exploring the option for potential rare drug development specific to ZTTK syndrome through translational science. This avenue is usually patient/family driven and funded. We will need to raise significant funds, in the millions of dollars, to move forward with this in hopes of potential treatment and improved quality of life for those living with ZTTK. This month, in honor of #RareDisease Day and all of the ZTTK warriors across the world please consider making a donation directly to our foundation using the link below: https://lnkd.in/eruefdej ???????????????????????????? Share this post !!

Two years ago, my friend and former teammate locked himself in his hotel room and drank himself to death. Following his death, he was diagnosed with CTE. His four young children will now grow up without a father. Another friend and former teammate was sentenced to 30 years in prison after committing assault. He ultimately hung himself in his cell. He once told me "Fleiz, sometimes I just snap and I just can't control myself, no matter what I do". Following his death, he was also diagnosed with CTE. The memory of that conversation makes me shiver, considering what we now understand about brain injuries. CTE is a degenerative brain disease caused by severe and repetitive hits to the head, but it is completely preventable. We must act now to save lives, and the Race to End CTE is a critical fundraising effort to drive change. Donations to the Race to End CTE have a profound impact by funding research, education, and treatment for brain injuries. Today, I asking my network to donate generously: ????Canadian Donors: https://lnkd.in/e4rEipTa ???? ????American Donors: https://lnkd.in/edxCArEw ???? By donating, you’re also investing in a safer future for our communities and the activities of CLFC. Your generosity enables us to: ?? Educate: Help us reach more children through school visits, equipping them with knowledge to recognize and address brain injuries. Our efforts have already reached 40,000 children through school visits. ?? Connect: The CLF HelpLine, supported by your donations, connects brain injury sufferers with crucial medical resources, ensuring they receive the care they need. ?? Innovate: Funding from donors like you fuels groundbreaking trials at CAMH's Brain Health Imaging Centre, advancing our ability to diagnose and treat CTE. ?? Advocate: Your support helps push for legislative changes like Bill C-277, advocating for a national strategy to address brain injuries. ?? Prevent: Ultimately, your contributions help prevent tragedies like those experienced by my friends and teammates, creating a safer, healthier future for all. Together, we can make a difference. Join me on May 25th for the Race to End CTE in Ottawa, as we strive for healthier futures and brighter tomorrows and please donate generously – every dollar goes toward real impact for Veterans, athletes, survivors of intimate partner violence, and kids. Learn more about CTE visit our website: concussionfoundation.ca If you missed it earlier, here are the donation links: ????Canadian Donors: https://lnkd.in/e4rEipTa ???? ????American Donors: https://lnkd.in/edxCArEw ???? #CTE #Brain #racetoendcte #donate #fundraiser #charity #nonprofit @Concussion Legacy Foundation Canada

?? The day has finally arrived ?? Today (12 September) is 'Day of Giving' for the The LAM Foundation. 100% of all funds will go directly to medical research. Huge thank you to those friends that have donated - it's more than appreciated. And it's not too late to donate (any amount) to help to progress medical research for LAM (and reminder alert ?? it's tax deductible as well!). ? The LAM Foundation uses these donations for small medical research trials and theories, that then launch much bigger investments from the Department of Defense (yes, the DoD also has a program investigating TSC, directly related to LAM ?? ), NIH, John's Hopkins and many more...... ? LAM affects a very small subset of women as it's a rare, progressive, non-curable disease, but there has been cross over research due to the nature of the disease and the curiosity from researchers on other issues such as for women's health as well as certain types of cancers. ? Due to donations and medical research from the LAM Foundation from the past 29 years, an FDA approved drug (the one and only) is administered to slow down the progressive disease that was implemented in 2015. The hope is that alternative treatments and even a cure can be found in these trials funded from these donations for the future. Thank you for the month long education session on LAM, how the disease affects a small subset of the population, yet is a disease that could potentially unlock a whole host of much more prevalent diseases. #LAM #RareDisease #WomensHealth

Exploring Family Behaviors and Decisions Post-Deemed Consent in Organ Donation: Insights from a Qualitative Study on England's Organ Donation Act of 2019. https://lnkd.in/dseAxyh4

Medical research is so important for everyone.

WHAT IS MS? Multiple sclerosis (MS) is an unpredictable disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body. WHY WE WALK: Walk MS unites the MS community in the largest gathering of its kind to raise funds and make a difference for everyone living with MS. Our community has raised over $1 billion to fuel the National Multiple Sclerosis Society’s mission to cure MS while empowering people affected by MS to live their best lives. While there are many ways to participate in Walk MS – from in-person events to designing your own event-day experience – all routes lead to a world free of MS. IMPACT AND MISSION: Walk MS gets us closer to our ultimate goal: a cure. WHY AM I INVOLVED: A family member was diagnosed with MS in 2022, and I continue to learn about the facts and treatments with each new day. I'm hopeful as I read that breakthroughs are being made as time progresses. I’m coming together with thousands of people across the country at Walk MS to raise funds for the National Multiple Sclerosis Society because a cure is on the line. Now is the time to do everything we can for the nearly 1 million people living with MS in the United States. I am doing my part as the event sets up in Virginia Beach this Sunday, April 7th. I have set an ambitious fundraising goal, and with your support, I know I can achieve it. The Society is the best investment to solve the challenges of MS - with information, connections and support as well as a global network to achieve a cure. This year’s new Walk MS experience will showcase why it’s so important for people with MS to be surrounded by the care and understanding of their support system. New Circles of Support will give participants the opportunity to share their place in the MS movement – as someone living with MS, someone who loves and supports a person living with MS or someone who supports the Society’s mission. Thank you so much for whatever you can give. No amount is too small and every gift of support is deeply appreciated. The link to donate is below. Either click on it or copy and paste it onto your web browser, please--in order to give online. I appreciate you. https://lnkd.in/eEBDBAjt