Greater Dayton Area Hospital Association的动态

In this episode of "Inside the Senior Alliance," Emma Case, Planning and Advocacy Specialist, talks to Jim Mangi, Founder and Director of Dementia Friendly Saline, an advocacy group in Saline, Michigan. Jim is also a Care Partner to his wife. They talk about how his personal situation inspired him to create Dementia Friendly Saline, which advocates for people living with dementia to help make their lives easier. We also hear how a city or a community can become dementia-friendly, the programs and initiatives they implemented, and how to work with businesses, service providers, and residents to become more accommodating to those living with dementia. Listen now to learn more. https://lnkd.in/gRGiq8WU

?? What’s the big deal? Transforming pain care! At the Meg Foundation, we believe every dollar can make a BIG difference for kids, families, and healthcare providers. High-quality pain care and science-backed tools belong in every family’s hands! But we need your support to make it happen! ?? Here’s how YOU can make a BIG impact: ?? $25 gets 10 family-friendly guides into the hands of kids and families who need them. ?? $50 helps keep a resource open access for a month. ?? $100 helps pack and ship pediatric pain care toolkits to providers, so they can better support the kids and teens in their practice. ?? $250 Powers a virtual workshop for community health partners so they can bring expert pain care support to kids and families. Your gift, big or small, helps kids feel safe, supported, and in control. ?? ?? Ready to give? https://lnkd.in/eau3W4PC Together, we’re making pain care a BIG deal! ??

Did you know that every three minutes, a child is born with a cleft lip or palate? Today, let's shine a light on cleft care and the incredible journey of those affected. Cleft lip and palate are common birth conditions that can impact a child's ability to eat, speak, hear, and even breathe properly. Yet, with early intervention and specialized care, these challenges can be overcome. It's essential to spread awareness about the comprehensive care and support needed for individuals born with clefts – from surgical interventions to speech therapy and ongoing medical care. Every child deserves access to the resources and expertise that can transform their lives. Let's support organizations and healthcare professionals dedicated to cleft care, and let's celebrate the resilience and strength of those living with cleft conditions. Together, we can ensure that every child born with a cleft has the opportunity to smile confidently and thrive. Join us in raising awareness and advocating for better cleft care worldwide. Learn more here: https://buff.ly/3xvAfkV #CleftCare #SmileTrain #Awareness #Support #Healthcare

Greatness comes with collaboration

First 5 Kern's recent Evaluation Report analyzed the services and reach of our funding from the 2023-24 Fiscal Year. Zooming in on one of our three main focus areas, Child Health & Development, you can find a number of success stories. Programs that provide services such as immunizations, water safety, dental care, and other health and wellness services served thousands of Kern County children. Learn more about our support - where we made investments and who they served - in the full Evaluation Report > https://lnkd.in/gHGMDYkS

At midnight, the rare pediatric disease priority review voucher program lapsed, severing a lifeline for millions of children living with a rare disease Full reauthorization must be a bipartisan, bicameral priority!!! As the rare disease community watches the political games surrounding the spending bill, it’s hard not to feel both anger and heartbreak. Legislation like the Pediatric Review Voucher (PRV)—and other life-saving bills - is being used as a bargaining chip, leveraged by the very people we elected to protect our interests. Meanwhile, the average mom and dad, already carrying the weight of caring for a child with a rare disease, sit helplessly as the media and both sides of the political aisle repeat the same empty platitudes about caring for our kids. Thank you Annie Kennedy and EveryLife Foundation for Rare Diseases for raising our collective voices. This isn't just frustrating—it’s unacceptable. We need a system that ensures bills like the PRV are passed on their own merits, not tied to unrelated political agendas, and therefore tossed out. Our children’s lives should not be up for negotiation. It’s time for policymakers to stop the games. The rare disease community deserves better, and we won’t stop fighting until we get it. #RareDisease #SaveLives #PassPRV

In 2023, United Way of Summit & Medina's short-term housing assistance program provided rent and utility support to 75 pregnant women at risk of infant mortality. This vital program is helping us progress toward Bold Goal 4: achieving health equity by reducing the Black infant mortality rate in Summit County. While we've made progress, there's still work to be done. Learn more about our bold goals and how you can make a difference in the lives of our community https://okt.to/j3ViZF

The Pediatric Priority Review Voucher is critical to make it financially possible to develop treatments for rare pediatric diseases! This program and the seven year Orphan Drug market exclusivity have made it possible for many companies to bring live saving therapies to patients in desperate need of such therapies.

?? Our last Advocacy Bulletin of 2024 is out! We spoke with Prof. Robert Gil, President of the Polish Cardiac Society, about the country's current CVD situation and the state of its national plan for cardiovascular health. We thank you all for your interest in our advocacy achievements and we look forward to bring you even more exciting updates in 2025. Read it here: shorturl.at/yqVc0

The Southwestern Pennsylvania Partnership on Aging (SWPPA) held it’s bi-annual meeting at the RLA center in Cranberry Township. “The Crisis for Aging Services: Caregiving, Housing, Access, and Advocacy: What Do We Do Now? brought together service providers interested in learning more about challenges and solutions to providing services to area seniors. Community LIFE’s President Fatemeh Hashtroudi participated on a panel of regional leaders discussing solutions to solving area housing challenges. The panel included Pam Toto, Director of the Healthy Home Laboratory; Danielle Bryce, Director, Vincentian; Jim Pieffer, President and CEO, Presbyterian SeniorCare Network; Lucy Schoyer, Director, Community Human Services; and Kathleen Gillespie, CEO Clearfield County Area Agency on Aging. In addition to her insightful contribution to the panel, Fatemeh lead an engaging session “Where They Want to Live: Caring for People with Dementia at Home. Co-presenters were Jim Pieffer, President and CEO of Presbyterian SeniorCare Network and Amy Kowinsky, Executive Director, Dementia360.