Imagine the population of the 3rd largest country in the world. ?? Imagine every man, woman, person and child in that country. ?????????? And now imagine every single one of them was living with a rare disease. On #RareDiseaseDay, we aim to highlight the voices of every one of these people and raise awareness about their experiences. Ultimately, giving the rare disease community a platform to share their experiences allows us to generate change and catalyse the process of achieving equity. Download our Infographics: https://lnkd.in/efRbDevB
Dadgummit! I live in that country ! ??
Raising awareness will only eventually result in finding a cure
As the husband of someone with a rare disease, I know just how important it is to make sure not only rare disease day is visible, but that research organizations are properly funded to continue searching for therapies and cures for some of the most debilitating diseases
There are many of us who are no longer so strange. Equity and dignity. ?
Rare is Many!
Raising awareness and educating people on rare disease is so important. One act can indeed change the world. Thank you for creating such an incredible platform.
More than you can imagine! But also more than you can imagine is the power of connection and resilience, uniting all who live and work with rare disease.. working to make sure no one is left behind because of the rarity of their condition #NIRDP #RARDTAC #LifeArc #RDTAP
J’accepte
Executive Director | Human Growth Foundation (HGF) | Dedicated to driving HGF forward through the transformative power of commitment, compassion, and collaboration through every challenge and victory.
3 周??