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Imagine the population of the 3rd largest country in the world. ?? Imagine every man, woman, person and child in that country. ?????????? And now imagine every single one of them was living with a rare disease. On #RareDiseaseDay, we aim to highlight the voices of every one of these people and raise awareness about their experiences. Ultimately, giving the rare disease community a platform to share their experiences allows us to generate change and catalyse the process of achieving equity. Download our Infographics: https://lnkd.in/efRbDevB

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Daphne Plump

Executive Director | Human Growth Foundation (HGF) | Dedicated to driving HGF forward through the transformative power of commitment, compassion, and collaboration through every challenge and victory.

3 周

??

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Lisa Davis Budzinski

Patient Perspective 37+ yrs Lived Experience as Caregiver, Paralegal Specialist in Criminology, legal & health research, BMJ reviewer, rare disease & intractable pain advocate, Dx w/Central Pain & Stiff Person Syndromes

3 周

Dadgummit! I live in that country ! ??

Ashish Kumar

SAP Consultant - TCS | Ex - Infosys | MM/ WM / S4 HANA / SRM / Ariba | MBA (IB) - IIFT Delhi | B.Tech (ECE) - MAIT, Delhi

3 周

Raising awareness will only eventually result in finding a cure

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Richard Peluso

Global Marketing Executive & Entrepreneur | Marketing Strategy | Product Management | Strategic Planning | International Growth | Business Development | People Management

3 周

As the husband of someone with a rare disease, I know just how important it is to make sure not only rare disease day is visible, but that research organizations are properly funded to continue searching for therapies and cures for some of the most debilitating diseases

Miriam S R

CEO ADCUM inborn errors of metabolism and Founder of FECROG - Pediatric Federation of Chronic and Genetic Diseases

3 周

There are many of us who are no longer so strange. Equity and dignity. ?

MARGARET YVETTE NYAMBARE

BSc, Advocate - ALARM (Anti Racism - LinkedIn) Multilingual Model - Milan ItalyProject Manager Panelist - Paris, France - FTAnglophone Countries International Business Researcher - Italy

3 周

Rare is Many!

Raising awareness and educating people on rare disease is so important. One act can indeed change the world. Thank you for creating such an incredible platform.

Christine Collins MBE

Chair at Regulation, Quality and Improvement Authority

3 周

More than you can imagine! But also more than you can imagine is the power of connection and resilience, uniting all who live and work with rare disease.. working to make sure no one is left behind because of the rarity of their condition #NIRDP #RARDTAC #LifeArc #RDTAP

Fatma Zohra Lalami

Médecin spécialiste chez Ministere de la santé

3 周

J’accepte

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