Foundation for Angelman Syndrome Therapeutics的动态

Happy Rare Disease Day - We are excited to share Global Genes' latest white paper on clinical trial feasibility studies in rare diseases! Traditional methods often fall short in these unique populations, but our research – with contributions from Amanda Moore, Ryan Fischer, and Terry Jo Bichell – shows that engaging patient advocacy organizations early and often can improve feasibility, boost success rates, and reduce both time and cost in drug development. Read the paper: https://buff.ly/4h3mN8u

  • New White Paper by Global Genes, Early and Often, Reimagining patient community engagement to improve clinical trials feasibility

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