Can you believe it's been 10 years since the Ice Bucket Challenge? As we reflect on this milestone and celebrate ALS Awareness Month, it's incredible to see how far we've come together. Before the Ice Bucket Challenge, the lack of ALS awareness only added to the struggle that individuals and their families face. When the Ice Bucket Challenge happened, people knew what ALS was. It had a ripple effect, increasing care, support, and services.? Communities rallied together, creating a surge in awareness and compassion like never before.?Families affected by ALS found their voices amplified, and support poured in from all corners.? Because of the generosity and kindness from this community, we’ve been able to expand access to vital assistance programs and add new services to offer much-needed support and hope to families facing this relentless disease. Before the Ice Bucket Challenge there were often extensive waiting lists for essential equipment like mobility aids and communication devices. With increased funding, we've been able to invest in areas that will have immediate impact, like providing individuals with the equipment they need to maintain their independence.? But our work is far from over. Despite the progress we've achieved over the past decade, there are still many hurdles to overcome. As we strive to see more support for families living with ALS, we invite you to join us in our mission.
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???March is Autoimmune Awareness Month, a time to shed light on the millions of individuals around the world who are living with autoimmune diseases. ??? In support of those struggling with autoimmune diseases, ViuHealth has partnered with Lupus in Color, a patient advocacy group dedicated to providing resources and support to those living with Lupus. As part of their efforts during Autoimmune Awareness Month, Lupus in Color has released their Butterflies of Hope Magazine, featuring stories of individuals battling Lupus and highlighting the importance of awareness and support. In a recent interview within the magazine, ViuHealth 's COO, Melanie Igwe, discussed the company's mission to provide innovative and accessible healthcare solutions for individuals with autoimmune diseases. ViuHealth is committed to improving the quality of life for those living with autoimmune conditions by offering personalized care and resources to help manage their symptoms and improve their overall well-being. Through our partnership with Lupus in Color, ViuHealth is able to support individuals who are fighting their own battles with Lupus. By sharing their stories and experiences, these individuals are able to inspire others and raise awareness about the challenges of living with an autoimmune disease. To read the inspiring stories of those fighting Lupus and learn more about ViuHealth's commitment to supporting individuals with autoimmune diseases, click the link below to access the Butterflies of Hope Magazine. Together, we can work towards greater understanding, support, and resources for those living with autoimmune conditions. https://lnkd.in/esUWzRNs #AutoimmuneAwarenessMonth #LupusinColor #Lupus? #ViuHealth #Autoimmune #Healthcare?
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?? Psoriasis Action Month: Uniting a Community, Empowering Individuals ?? Each August, the National Psoriasis Foundation (NPF) leads the charge in celebrating Psoriasis Action Month. This is a time to come together, share our stories, and act towards a future free from the burdens of this chronic condition. As part of the 125 million-strong global psoriasis community, you are not alone in this journey. Your experiences, your triumphs, and your challenges are shared by so many others who understand the realities of living with this disease. Remember, there is strength in the community. By coming together and supporting one another, we can overcome obstacles, celebrate the victories, and pave the way for a brighter, healthier future. This Psoriasis Action Month let's embrace the diversity of our experiences and the unity of our purpose. Together, we can create meaningful change. #PsoriasisActionMonth #NPF #ThisIsPsoriasis #PsoriasisAwareness #ChronicIllness For more information on ways to get involved, visit the National Psoriasis Foundation website at www.psoriasis.org. ?
The National Psoriasis Foundation
psoriasis.org
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SUBMIT YOUR TRIBUTE TO HONOR YOUR ALS HERO FOR ALS AWARENESS MONTH. Each day here and on https://lnkd.in/etexn6cm, https://lnkd.in/esDn2wfu, and https://lnkd.in/ebZg5gXe, throughout May, as we do each year to recognize ALS Awareness Month, we will be featuring some of the incredibly inspiring individuals who are currently living with ALS or who have lost their battle to the disease. All are welcome to participate from anywhere around the world. If you would like to submit a tribute for a loved one – or you are living with ALS and would like to be featured – it would be our utmost honor. Simply complete the form via the link below and upload 1-4 photos and we’ll post during May. These tributes are submission-based and it's our honor to include anyone and everyone who would like to be included. At ALS ONE, every month is ALS Awareness Month. We're here because of those currently living with the disease, their families, and the memory of those we've lost. They inspire us to continue our work until we've achieved our goal from ALS ONE to ALS DONE. Our FACES OF ALS Campaign has been a beloved feature during ALS Awareness Month since our founding in 2016. We are proud that this is our 9th year. To submit, simply click: https://bit.ly/FOALS24 We extend our collective hearts to you knowing that likely, because you are even reading this, you have been and therefore will always be, impacted by ALS. You are not alone. ???? . #ALS #ALSONE #ALSawareness #ALSawarenessMonth #FacesOfALS #HonorYourALSHero #HonorYourALSangel #ShareYourALSstory #YouAreWhyWereHere #WereNotDoneUntilWereALSDONE
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Palliative care is about more than end of life care
It's Palliative Care Week 2024! Highlighting how palliative care can make a big difference in our lives, and those of our loved ones. Palliative care is more than end-of-life support; it’s about improving quality of life, providing comfort, and supporting people at any stage of illness. ?? Want to learn more and get involved? There are events happening across the country throughout the week to help spread awareness and understanding. ?? Find out more and check out all the events at: https://lnkd.in/euwf3FSr
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?? Wondering how you can participate in this year's Rarest #RareDiseaseDay ? Look no further! Check out our latest blog with 8 tips on how you can participate this year to help us raise awareness about #MCOPS12 ! ?? https://lnkd.in/dp3bnkXk #CureMCOPS12 #RareDisease #Championforacure
Support MCOPS12 this Rare Disease Day!
https://rarbmutation.org
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Some interesting stats for IWD2024 When surveyed, 50% of women thought they would be most likely to die from breast cancer but in reality only 6% will die from breast cancer and 35% will die from cardiovascular disease. And when women present to ED with heart attack it takes them 90minutes longer to get assessed for heart attack than men. Every minute is critical, as time is muscle, so women are more likely to suffer worse outcomes than men following heart attacks.
Happy International Women’s Day! ?? I’m privileged to work alongside brilliant women who inspire me everyday. We celebrated this week by hearing from an incredible panel of speakers about their experience with cardiovascular disease! ???? Rowena Newman, Sarah Zaman, Charlene Bordley, Vicki Wade Heart Foundation David Lloyd Vanessa Poulsen Simon Cowie Lyn Davies Mariam Mukaty Dean Watson Angie Shum Moana Wood
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Meaningful: ?? Compassionate: ?? Empowering: ?? Our care is all three! Learn more about us today. ?? https://bit.ly/3nt04ts
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Helping organisations to implement life saving, world class, trauma and first aid solutions
A sober reminder that a cardiac emergency can happen to anyone ,at anytime ,anywhere. Is your workplace or community equipped to deal with a cardiac arrest via the life saving intervention of a public access defibrillator? PM me to find out how easy a step it can be to save a life.
Too many hopes and dreams are lost in an instant. Each week, around 12 young people are lost to sudden cardiac death in the UK. Today we’re launching a new campaign to highlight the tragic reality of sudden cardiac death. In a series of murals across the UK, we’re honouring 12 young people who have passed away. Join us in raising awareness and help support lifesaving research ?? https://lnkd.in/gzFEc6Zk
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