Thank you to the Epilepsy Foundation of Greater Chicago for the work you do in the Chicagoland area providing resources and programs for people with epilepsy and their families.
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This young man pictured below is our son, Hunter Harris. Hunter was 100% my inspiration when I went internally at WK Kellogg Co and approached my counterpart,JP Severin with the idea of doing something never done before at Kelloggs (or any other cereal company, for that matter)- the idea of MAKING CEREAL PERSONAL. Sure Kelloggs has focused on fun, and trendy cereals and even on health and wellnes cereals, but never before has Kelloggs approached the appeal of a personal cereal - one that really connects to a person and a family on a profoundly personal level. What Kellogg’s did by partnering with the Epilepsy Foundation is truly remarkable and it has had such a positive impact in such a short amount of time. I have had so many people privately reach out to me after learning about this partnership and share how this cereal made their child’s day or how this disease has impacted them or someone they know. People want to talk about this disease and so many other diseases that have rocked their lives. The simple notion of having a box of cereal in the morning that mentions this awkward topic in such a positive way is a great start, not only to everyone’s day but a great start to more compassion and understanding of these diseases and how we can help one another! Way to go WK Kellogg Co and Epilepsy Foundation for paving the way to impactful and meaningful breakfast conversations. Now let’s see all the other conversations we can help start over breakfast! I am excited to see the full impact one idea can potentially have. I love you Hunter James Harris and am unbelievably proud to be your mama! You are well on your way to inspiring and giving hope to the world around you! Hunters Journey has been a long one but we are gratefulful it’s one with a happy new beginning… read below to hear our family’s personal journey with Epilepsy: https://lnkd.in/eTPxP8kS Jamie Harris #breakfast #cereal #personalstories #diseases #als #ms #cancer #MuscularDystrophy #Neuromuscular #diabetes #alzheimers #healthconditions #adhd #add
"I went through three long years battling my seizures and making new friends along the way - both in and out of hospitals. I am sharing my story to provide hope to other kids and adults to never give up." The Epilepsy Foundation provides a platform for people to connect and share experiences. Read Hunter's story and share yours: https://lnkd.in/eTPxP8kS
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Epilepsy knows no borders, affecting people of all ages and backgrounds. On this day, let's spread understanding, support, and love for the epilepsy community worldwide. ???? Today marks International Epilepsy Day! (Every year on 2nd Monday of February). #InternationalEpilepsyDay #EpilepsyAwareness #GlobalUnity #SupportEachOther #akumsdrugs
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Today on International Epilepsy Day, lets unite to raise awareness and understanding of Epilepsy and the impact it has on individuals, families and communities worldwide. #epilspsy #epilepsyday
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Sometimes history repeating itself, or practically, is a good thing.? Last year, I was a keynote speaker at about this time, for the National Walk to END EPILEPSY - DC benefiting the Epilepsy Foundation.? This June, I am going to be the only speaker at the National Walk to END EPILEPSY - PHILADELPHIA benefiting the? Epilepsy Foundation Eastern Pennsylvania. #epilepsyawareness?#shareyourstory?#publicspeaking?#educate?#overcomechallenges
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Did You Know: November is National Epilepsy Awareness Month (NEAM). There are 3.4 million people living with epilepsy in the United States; 470,000 of them are children. Sadly, Misunderstanding and misinformation about seizures contribute to continued feelings of stigmatization and negative outcomes for people with epilepsy. Please take some time to learn more about celebrating the strength, resilience, and courage of epilepsy warriors, their families, and advocates here: https://lnkd.in/gwR6JeNg.
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Epilepsy can be debilitating for both the child and the family. Seeing someone you love suffer through seizures at any age is traumatic but when it is a small child it is something you will not forgot. *Imagine never getting a full nights sleep. *Imagine having to go to the hospital throughout your young life, spending a week at a time being probed and wearing a cap on your head covered in electrodes "hoping" to trigger a seizure just so the medical team can witness and review the brain waves. *Imagine not being able to swim or be near a body of water without someone always watching. *Imagine never being able to get a drivers license because you shouldn't be behind the wheel. And then. *Imagine going to school, being exhausted, with limited capacity to learn and retain information, read, and make friends. *Imagine watching your siblings running around playing and thriving in a way you can't. Although I am not a parent, I have loved ones who have BATTLED for so many years and I can say the impact of all of this does even more to the parents witnessing all of this happen and being unable to prevent any of it. Keeping this subject at the forefront is critical to continued progress with treatments, but also hopefully to bridge gap when it comes to inclusion and understanding from adults, teachers, and other children. #epilepsy Epilepsy Foundation #inclusion
All children have the right to be included and accepted, including those with epilepsy. Our CEO, Graeme Shears, comments on a Melbourne child's exclusion from an early learning centre after being diagnosed with epilepsy. If you require epilepsy information and support for yourself or your organisation, we are here to help. Please get in touch with the National Epilepsy Support Service on 1300 761 487 or [email protected] Face-to-face meetings are by appointment only.
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In support of National Epilepsy Awareness Week, we stand united with people of all ages and stages, raising awareness and offering unwavering support. Together, we can create a more understanding and inclusive future for those affected by epilepsy. #NationalEpilepsyAwarenessWeek #FreedomAtYourControl #_humanhealthcare_ #neawday2
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The easiest decision you’ll make this week? Creating your will with FreeWill! ??? October 21-27 is National Estate Planning Awareness Week, a perfect time to safeguard your loved ones and make a lasting impact for those affected by epilepsy. https://lnkd.in/exyswz7Q
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Take a couple of minutes to watch this eye-opening video about the challenges kids with epilepsy face. This interview talks about a boy removed from kindergarten due to his epilepsy diagnosis. Early years are crucial for all kinds of development—social, emotional, psychological, physical, and language. It's so important for kids to attend school and grow in a social environment with their peers – otherwise they may face lifelong consequences. Unfortunately, anti-epileptic meds don’t work 50% of the time. Surgical resection can be life-changing, often resolving seizures and allowing kids to lead normal lives. However, surgery for epilepsy in kids is more challenging than in adults due to the limited tools available to them. Surgeons tend to be extra cautious because a surgery-related deficit can impact the lives of the child and their caregivers for many, many decades. Determining the safety of surgery involves knowing if the surgical target area is near brain regions controlling critical functions. Sadly, young children often aren’t eligible for non-invasive motor/language mapping techniques like fMRI/MEG because young kiddos require sedation to enter an MRI or MEG chamber. They're also typically not mature enough for awake craniotomies with intraoperative language mapping, and intraoperative motor mapping can be unreliable in the youngest patients due to under-myelinated neural pathways. Fortunately, more and more kids are gaining access to Nexstim — FDA-cleared, non-invasive motor and language mapping using nTMS in a child-friendly setting. Unlike fMRI/MEG, Nexstim doesn’t require sedation. Kids can sit in their parent's lap, watch TV, and even hold their teddy bear. The youngest reported case is an 8-week-old. Early resection gives kids the best chance of hitting developmental milestones and living normal lives...including attending school. In this interview, they are reporting that in Australia there's a 400% increase over the past 3 years in the number of cases where children are being told they can't attend school, which is similar to other countries. For those being told surgical resection is too risky, consider visiting our Australian partner’s clinic, Neuroclast, to see if Nexstim can help change the trajectory of your child’s life. https://lnkd.in/gfs6H9nk #ntms #epilepsy
All children have the right to be included and accepted, including those with epilepsy. Our CEO, Graeme Shears, comments on a Melbourne child's exclusion from an early learning centre after being diagnosed with epilepsy. If you require epilepsy information and support for yourself or your organisation, we are here to help. Please get in touch with the National Epilepsy Support Service on 1300 761 487 or [email protected] Face-to-face meetings are by appointment only.
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In support of National Epilepsy Awareness Week, we stand united with people of all ages and stages, raising awareness and offering unwavering support. Together, we can create a more understanding and inclusive future for those affected by epilepsy. #NationalEpilepsyAwarenessWeek #FreedomAtYourControl #_humanhealthcare_ #neawday2
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Senior Program Manager, Claims Portfolio & Optavia Independent Health Coach
3 周My husband has epilepsy. It’s a cause that is very near and dear to our hearts ??