Angelman Syndrome Foundation的动态

Today, we want to share an important update regarding the Externally-Led PFDD meeting on Angelman syndrome scheduled for January 29, 2025. ? Due to ongoing transition activities under the new administration and new directives for the Department of Health and Human Services (HHS), FDA employees are unable to attend external meetings at this time. Unfortunately, this directive includes our upcoming EL-PFDD meeting on Wednesday, January 29, 2025. We have made the difficult decision to postpone the meeting to ensure it achieves the impact it deserves.? ? Read more: https://lnkd.in/gKxdJ7Kw

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I am so sorry to hear this. ?? Now is the time to sieze the spotlight and make the rare voice heard. The Angelman community has worked hard and I am sure invested heavily to plan this event. Hopefully, the herky-jerky transition will be over soon. There is real work to be done.

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