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Congenital Heart Defect (CHD) Awareness Week is held each year from Feb. 7-14 to recognize children and adults living with congenital heart disease, This week is a time to promote awareness of Congenital Heart Defect (CHD) and raise money for lifesaving research and support for people with this condition. #congenitalheartdefect #HeartDisease

???? It's Diabetes Awareness Week! Let's come together to support those affected by diabetes and spread the word. Here are a couple of ways you can help: 1?? Educate yourself and others: Learn about diabetes, its symptoms, and management. Share this knowledge with your friends and family to increase awareness. ?? 2?? Support fundraising efforts: Donate to diabetes research organisations or participate in fundraising events to help find a cure and improve treatments. ?? Every bit of awareness and support counts. Together, we can make a difference! ?? Diabetes UK #DiabetesAwarenessWeek #SupportAndEducate

Congenital Heart Disease(CHD) Awareness Week starts today. CHD is more than a medical term; it’s a journey of courage and resilience, that affects entire families. Here’s how you can observe CHD week with us: ?Share informative posts about CHD ?Tag #WomenHeart and #CHDAwareness ?Provide support by donating to WomenHeart: https://lnkd.in/gATSFbKr

I need everyone's help. My granddaughter has severe NKH. We are getting oh so close to trial meds to help her, but need funding. Once the medication is ready, we have to spend several weeks at the Colorado Children's Hospital for treatment & see how it's tolerated. Please, please help us, and help save my granddaughter and many other kids just like her. Click the link and donate or if you can't, please share. https://gofund.me/79cda309 ?? What is NKH ? ? Non-Ketotic Hyperglycinemia ?? FACTS ?? - There are less than 500 known cases in the WORLD. - There are different forms; mild, attenuated, and severe. - Most commonly, children are severely affected. - It is a genetic disease that currently has NO CURE. - NKH causes severe developmental delay, seizures, hypotonia & other issues. - Strange thing to look for if you feel your newborn may be affected: HICCUPS! Sounds crazy, but it's true. - The only funding for the small amount of research that there is, comes through the NKH families. - These children are fighters. - The NKH network of families will NEVER give up on fighting for a cure. We are one. Alone we are rare, but together we are strong. We will do our BEST to spread awareness about NKH in hopes to one day, find a cure. I challenge YOU to share this post. Teach someone about NKH! ?? #TeamBraylynn #braylynnsbattlewithnkh #nonketotichyperglycinemia #bumblebee #nkh #raredisease

Happy #NKHAwarenessDay! This is Braylynn, my granddaughter! she just turned 1 and she was diagnosed with Severe NKH. She loves to be in the water, she loves snuggles, her binky and music! she sure loves to smile and “giggle” and hangout with her grandpa! she hates having her hair washed and getting dressed! Follow Braylynn on instagram: https://lnkd.in/gT6JVajA ? Braylynn has NKH. Please donate for kids like Braylynn: https://lnkd.in/gCteZq7G ?NKH a awareness Day a day families come together across the world to give NKH a bigger voice , to share their journey with the world. See NKH families don’t personally need a day , every day is awareness day for them . Every time they draw up a syringe of medication like Sodium benzoate Or Dextromethorphan or a seizure medication , or a stomach Protectant to protect their stomach from the sodium Benzoate , or hook their child up to their feeding pumps , or use the suction machine to clear out their secretions or spend time on their OT. PT, speech feeding therapies . These things must happen daily and not just once but multiple times a day. We sleep with one eye open and always listening . We created this day so that we could highlight the need for people to learn about this disease , the need for research. rare diseases and not just NKH have to fight for such a small pool of money out their to get research done for their disease . The funds for research are almost always raised by families affected by the rare disease .

????data driven outcome measures. PharmASSIST Healthcare Dashboards (PHD) can help. #YouNeedaPHDforThat

Today is Chronic Disease Day, a time to raise awareness about the impact of chronic illnesses on individuals and communities. Let's take a moment to recognize the strength and resilience of those living with chronic conditions, and to support efforts to improve prevention, treatment, and care. Together, we can make a difference in the lives of millions affected by chronic diseases. #ChronicDiseaseDay #ChronicDiseaseAwareness #enddomesticviolence #endsexualviolence #reintegration #hivaidsawareness #housingfirst #communityresource #nonprofit #newjersey #njac_helps

With the General Election just around the corner, we want to share with you the Meningitis Now's manifesto. “Meningitis Now’s vision is a future where no one loses their life to meningitis and where all those affected get the support they need to rebuild their lives. We strive for this because we know only too well the pain and the devastation that the disease can cause." With a General Election announced for 4 July 2024, Meningitis Now’s CEO, Dr Tom Nutt, discusses what the charity would like to see from a new government. Read about the seven focuses we'd like to see from a new government ?? https://lnkd.in/eqSMJSAf

Understanding the Complexity of MS Symptoms: Sclerosis (MS) is known as "the disease with a thousand faces." This phrase highlights how symptoms can vary widely between individuals. While some may experience mobility issues, others might struggle with vision or cognitive challenges. Over the next week, we'll explore how these differences manifest and why no two MS journeys are the same. your donations will go a long way for MS victims, kindly donate to a good course https://lnkd.in/dzuBSPdq #MultipleSclerosis #MSSymptoms #ChronicIllness #MSAwareness #InvisibleIllness

Amyotrophic Lateral Sclerosis (also known as ALS or Lou Gehrig’s disease) is a very devastating disease. ALS progressively paralyzes people because the brain is no longer able to communicate with the body. Over time, as the muscles of the body break down, someone living with ALS will lose the ability to walk, talk, eat, swallow, and eventually breathe. For more information about ALS, donation links, and ways to receive support, visit www.ALS.ca #als #alsawareness #alsawarenessmonth #lougehrig