Alport Syndrome Foundation的动态

????American Leadership , American Values Look below . Ask yourself , what dose it take to be A leader and With ????American Core Value Feb -29 ask yourself ??what are you doing with your extra day ? #innovation #americanmade #sustainability #leadership

From my indefatigable son in law.

The premature passing of rugby legend Rob Burrow as a consequence of motor neuron disease, one of far too many rare and not-so-rare incurable illnesses, is a reminder of how much remains to be done therapeutically to provide all people the chance at a reasonable quality and duration of life.??Millions of people still suffer from incurable illnesses, many of which strike young.??Though most are not so well-known, each of these individuals’ lives, joy, and aspirations are needlessly cut short, and the misfortune sends irreversible shock waves through every one of their families and social networks.??The urgency to address this need and the opportunity to have a transformative impact motivate me every day in the work that I do.??Through effective use of data, I know we can collectively break through barriers in novel ways to reveal the secrets of these afflictions and develop effective therapies to renew the opportunity of life for the millions of people who are waiting. Not only can we, we must. More information about motor neuron disease and donations being accepted at: https://lnkd.in/dKhPuz2p? https://lnkd.in/d3vkrnwK

On World Trauma Day, we emphasize the crucial role of plasma in trauma and emergency care. Plasma is vital for treating trauma patients and those with rare or chronic diseases, relying entirely on human donations. Read more about Elyse's story: https://lnkd.in/ewAHFC3t

In times of deep emptiness, hostility, and neglect, many of us simply long for the chance to pursue our dreams and be a source of brightness in our own lives, even if just for ourselves. At Detector Media , I engaged in meaningful discussions about the work of DonorUA during the tumultuous period of two years of intense warfare and ten years since Crimea's annexation. When I look back on how we and our organization have evolved since the conflict started and escalated into full-scale war, I see significant changes. With the unwavering support of our values and dedicated team, we rallied together over 500 volunteers. We transformed into a crucial pillar of support for the blood donation system and public well-being, making it easier for people to donate blood through online platforms. Like our fellow Ukrainians, we emerged from challenges with a newfound strength and resilience. We have refined our focus and strategies to maximize our impact on society. Thanks to the combined efforts of our team, improved operations, and the kindness of compassionate individuals, there are regions where requests for blood donors have not been required for six months, showing that our streamlined processes adequately meet the needs of civilians. Nevertheless, our mission is ongoing - we are committed to providing timely and high-quality blood and its components to both the military and civilians. Through our work, I have come to understand three core principles that have become clear to me during these trying times: - Kindness must be accompanied by unwavering determination, strength, and a resilient spirit. - While the path to justice may be long and challenging, it is inevitable. - In moments of conflict, each person has a role to play, and our unity is of paramount importance. When considering the task of reintegrating and rebuilding territories under temporary occupation, such as Crimea, I firmly believe that we share a deep bond with those living there. Our fellow Ukrainians are present in those regions, and it is our mission to bring them back home. Our goal is not only to restore their future but also to reconnect them with their past. In looking ahead, I believe the top priority for Ukrainians in the upcoming year is to come together and contribute as much as they can towards achieving victory and a brighter future for all.

“Our fear is overcome by our conscience and our beliefs and forces us to act." - John McCain My son Rex is one of the youngest participating in this year’s New York City SEAL Swim to raise money for The Navy SEAL Foundation which provides critical support for the warriors, veterans, and families of Naval Special Warfare. This event consists of a mile run at the start, a total of 3.5 miles of swimming broken up by 3 stations where they complete 100 honor pushups and 22 pull ups, and a final mile run at the end to the World Trade Center. Please consider helping him in his journey. https://lnkd.in/egt6Wibm “Sworn to protect us from America’s foes. They operate under cover of darkness, against unimaginable odds. Not for status. Not for glory. But to defend our way of life. With strength, courage, and honor.” Funds raised will help provide critical, evidence-based programs for SEALs and their families - programs designed to build strength and resilience, encourage optimal health, enhance opportunities for growth through education, and solidify a sense of community and belonging. - $500 could fund travel for a wounded SEAL or Special Warfare Combat Crewmen (SWCC) in need of specialized care for their return to duty - $250 could provide graduate-level test prep assistance for a transitioning SEAL or SWCC - $150 could fund one session of grief counseling for a Gold Star family member - $100 could pay for a physical rehabilitation session for a SEAL or SWCC - $50 could cover two hours of Respite Child Care for one family of a deployed service member - $25 could provide one meal for a Command Memorial - $10 could fund 1 water bottle for an NSW kid at Summer Camp #SEALswim #NSF #NSFTeammates #NavySEALFoundation #NYCSEALSwim

13 Days Until... ...The 2024 NYC Navy Seal Swim. I am humbled by the support of my efforts to participate and honor the brave men and women who served our great nation, first responders, firefighters, and patriots. To date, we have raised $4,500 towards our $5,000 goal!!!!!! Any support would be greatly appreciated and all proceeds go directly to Navy SEAL Foundation. What your support could mean: 1. $500 could fund travel for a wounded Seal or SWCC in need of specialized care for their return to duty. 2. $250 could provide graduate-level test prep assistance for a transitioning Seal or SWCC. 3. $150 could fund one session of grief counseling for a Gold Star family member. 4. $100 could pay for a physical rehabilitation session for a Seal or SWCC 5. $50 could cover two hours of Respite Child Care for one family of a deployed service member. 6. $25 could provide one meal for a Command Memorial. 7. $10 could fund 1 water bottle for a NWS kid at Summer Camp. Check out my fundraising page for Navy SEAL Foundation - https://lnkd.in/eidgtdWU Check out this new Documentary on the 2024 Navy Seal Swim: https://lnkd.in/euhbc9b4

42 Days Until... ...The 2024 NYC Navy Seal Swim. I am humbled by the support of my efforts to participate and honor the brave men and women who served our great nation, first responders, and firefighters. To date, we have raised $4,000 towards our $5,000 goal!!!!!! Any support would be greatly appreciated and all proceeds go directly to Navy SEAL Foundation. What your support could mean: 1. $500 could fund travel for a wounded Seal or SWCC in need of specialized care for their return to duty. 2. $250 could provide graduate-level test prep assistance for a transitioning Seal or SWCC. 3. $150 could fund one session of grief counseling for a Gold Star family member. 4. $100 could pay for a physical rehabilitation session for a Seal or SWCC 5. $50 could cover two hours of Respite Child Care for one family of a deployed service member. 6. $25 could provide one meal for a Command Memorial. 7. $10 could fund 1 water bottle for a NWS kid at Summer Camp. Check out my fundraising page for Navy SEAL Foundation - https://lnkd.in/eidgtdWU Check out this new Documentary on the 2024 Navy Seal Swim: https://lnkd.in/euhbc9b4

At the recently concluded 2024 World Sickle Cell Day community outreach and health fair, Mrs. Moji Michael, a mother of two children with Sickle Cell Disease, shared her experience raising warriors. Mrs. Michael stressed that knowing your genotype is important for breaking the cycle of pain. In her own words, she said, "'Let's break the cycle of pain; it should stop with this generation. Know your genotype!'" Our goal is to raise 30,000,000 NGN to provide essential nutrients for 2,000 children with Sickle Cell Disease (SCD). To contribute in dollars, kindly click this link: https://lnkd.in/di4F8mff For Naira donations: Account Name: Brain and Body Foundation Account Number: 0178810529 Bank: GTBank For more information about our work, please visit: https://lnkd.in/dpQpsgC Watch more interviews: https://lnkd.in/dqNwkpf9

Something to think about