The countdown to #RareDiseaseDay is on, but for those living with a #RareDisease, every day is Rare Disease Day. To learn more about how you can support the rare disease community, visit RareDiseaseDay.com.
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Navigating a rare disease is challenging but you should never feel alone in your journey. #krabbeconnect can help connect you to a mentor. Learn more at - https://lnkd.in/gYSBgZWq
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It's #RareDiseaseDay! We're proud & strong to stand with the many living with a rare disease. 1 in 13 people in UK have a rare disease, including our members with Non-HFE #haemochromatosis (types 2,3,4). Get involved : https://lnkd.in/eDm2etX7 #EarlyDiagnosisSavesLives
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Retention Strategist Director at Principal/Principal Securities Registered Representative
According to Forbes, the net worth of the world’s 2,640 billionaires is at least $12.2 trillion. In 2014 Bill Gates took the Ice Bucket Challenge. Last month Hugh Hoffman’s family donated $58m to ALS. That equates to ONE HALF of what the Ice Bucket Challenge raised - WORLDWIDE! How do we get the billionaires to dump a buck of money on ALS research? How do we get Congress to allocate more money to ALS research? It’s been 85 years …. enough! Please join the fight! btw, Bill & Melinda Gates are extremely generous; they’ve donated more than $50 billion since 1994 to eradicate diseases, promote education, and advance gender equality. How do we direct some of that to ALS? Together let's spread awareness and find a cure for ALS.
February 29 is Rare Disease Day. ALS is considered a rare disease, yet every 90 minutes someone is diagnosed with ALS and someone passes away from the disease. Together let's spread awareness and find a cure for ALS. #RareDiseaseDay
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Today is International Rare Disease Day. This year, help us make a difference in the lives of the 300 million people worldwide living with a rare disease. ??Visit https://ow.ly/Tz2F50QI4ec to find out more about this day and how you can help. #RareDiseaseDay #RareDiseaseAwareness #ShowYourRare #GlobalHealth #HealthAwareness #PatientAdvocacy #MedicalResearch #RareDiseaseSupport
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Never lose hope! You're not crazy—it's not in your head. After 27 years of undiagnosed Lyme, I became a practitioner who can help you find answers and healing. Don't give up; the solution may be just around the corner.
?? How do you talk to yourself? Sometimes, the fight is invisible. May is Lyme Disease Awareness Month, and it's time to shed light on the silent struggles many face every day. Those affected by Lyme disease might not show it outwardly, but are fighting hard internally. ?? Go to my website. The link is in my bio to learn more?? #LymeDiseaseAwareness #InvisibleIllness #FightLyme #LymeWarrior #TickTalk #HealthAwareness #SpreadAwareness #LymeSupport #TickPrevention #thelymeboss #thereishope #youarenotalone
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The vicious vortex of bronchiectasis: what is it? A proper understanding will help empower you to effectively treat individuals suffering from this disease. Learn more: https://lnkd.in/eq445GQ
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Living with a rare disease is difficult.? ? Find information and helpful resources about your rare disease on The Know Rare Blog ?? ??? ? www.knowrare.com? ? -? ? #raredisease #rarediseases #rarediseaseawareness #rarediseaseresources #chronicillness #chronicillnessawareness #invisibleillness #spooniesupport #spooniestrong #KnowRare
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What resources do you wish you had for your rare disease? ?? ??? Share your story in the comments below for a chance to win 'Thriving Rare' by Becky Tilley, an inspirational rare disease read.? ? Let's get the conversation started!? ? -? ? #raredisease #rarediseases #rarediseasemonth #rarediseaseawareness #rarediseaseadvocacy #spoonies #spooniesupport #spooniestrong #zebrastrong #KnowRare
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What do you struggle with most because of your rare disease? ?? ??? Share your story in the comments below for a chance to win 'Thriving Rare' by Becky Tilley, an inspirational rare disease read.? ? Let's get the conversation started!? ? -? ? #raredisease #rarediseases #rarediseasemonth #rarediseaseawareness #rarediseaseadvocacy #spoonies #spooniesupport #spooniestrong #zebrastrong #KnowRare
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February is #AmericanHeartMonth and our #QuartzFigures today showcases that heart disease can be the cause of many of the #suddenwealth cases that we come across. Learn more about sudden wealth here: https://hubs.li/Q02jvFs00 #QuartzFinancial
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