Here is a special giving season message from #PICommunity member Taylor, who encourages you to donate today so that the Immune Deficiency Foundation can expand our work helping immunocompromised individuals: https://bit.ly/3YKauXG
Immune Deficiency Foundation
非盈利组织
Hanover,MD 5,712 位关注者
Improving the diagnosis, treatment, and quality of life of people affected by primary immunodeficiency.
关于我们
The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life for every person affected by primary immunodeficiency. We foster a community that is connected, engaged, and empowered through advocacy, education, and research. Whether you've been recently diagnosed, have been living with a primary immunodeficiency (PI) for years, or just think you might have a PI, we are here to help. Our programs are meant to create a healthier day, every day, for every person with an immune deficiency.
- 网站
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https://www.primaryimmune.org
Immune Deficiency Foundation的外部链接
- 所属行业
- 非盈利组织
- 规模
- 11-50 人
- 总部
- Hanover,MD
- 类型
- 非营利机构
- 创立
- 1980
地点
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主要
7550 Teague Road
Suite 220
US,MD,Hanover,21076
Immune Deficiency Foundation员工
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Peter Atherton
Retired technology business executive
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Peter Wang
Maker & Investor | Founder @ First Principles Studio, WSDM water | Former BuzzFeed CTO
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Roberta Rochman, RN, MBA, CPHIMS
Health Access Advocate at Immune Deficiency Foundation
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Christopher Scalchunes
Vice President of Research at Immune Deficiency Foundation
动态
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Join the Immune Deficiency Foundation to discuss the unique challenges faced by individuals with primary immunodeficiency (PI) during the holiday season here https://bit.ly/40DNyw0
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When was the first time you heard of the Immune Deficiency Foundation? Meet Taylor, who is living with CVID, and discovered the foundation through a hospital pamphlet. As an active member of the #PICommunity today, she currently serves on the Youth Advisory Committee (YAC), where she contributes her ideas to youth programming. This summer, she also received the Mary Rath Emerging Leadership Award at the 2024 PI Conference. Taylor makes sure to support the work of the foundation through her fundraising efforts, including Walk for PI and Facebook fundraisers. Will you make a gift today to help immunocompromised individuals like Taylor? https://bit.ly/40lU7Df
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Help raise awareness of family caregiver issues and reduce feelings of isolation that often come with caregiving. If you're a caregiver looking for support, join our caregiver support groups! https://bit.ly/48tsLgA #NationalFamilyCaregiversMonth #familycaregivers
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Clinicians treating patients with primary immunodeficiency (PI) sometimes have questions about their care. IDF's Consulting Immunologist Program is a free resource for those clinicians that allows them to communicate directly with an immunologist specializing in PI. The immunologists provide guidance on how to proceed with patients who may require an initial diagnosis or additional care post-diagnosis. This peer-to-peer education program supports all types of clinicians so that they can provide more informed care to people with PI. https://bit.ly/3C7Qkzm
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We're partnering with Medscape to educate clinicians about congenital athymia! Join us for Navigating congenital athymia: Expert insights and best practices for optimal care.
"How do you care for an infant born without a thymus? Join us to learn about expert insights and best practices for optimal care: https://ms.spr.ly/6045W1PEZ"
Navigating Congenital Athymia: Expert Insights and Best Practices for Optimal Care
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For people with primary immunodeficiency (PI), traveling can be extremely stressful. On top of typical travel considerations, people with PI often have to consider traveling with medications, making emergency plans, and staying healthy during their trip. If you're nervous about traveling for the holidays, visit our updated travel safety page and make sure to download our traveling with PI checklist! https://bit.ly/4fjKTeQ
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Medicare Open Enrollment is here! Now’s the time to review and compare your plan options and check eligibility. Take advantage of this important opportunity to secure the health insurance coverage you need. Visit: https://lnkd.in/dBipWw4
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Clinicians should consider patient health history first and laboratory test results second when diagnosing and treating primary immunodeficiency (PI). Lab tests should measure both the quantity and quality of a patient’s immune response. https://bit.ly/3XQCEQh
Laboratory tests, patient story critical in diagnosing PI | Immune Deficiency Foundation
primaryimmune.org