Myasthenia Gravis Foundation of America, Inc.

Family caregivers provided an estimated 36 billion hours of unpaid care worth $600 billion in 2021. This labor is often unseen and undervalued. Like many others with chronic disease, many people with myasthenia gravis depend on family and friends for help with tasks of daily living, medical care, and emotional support. Caregivers deserve respect and the resources and support they need to care for their loved ones and themselves. Thank you to the caregivers and loved ones this National Family Caregivers Month. #Caregivers #NationalFamilyCaregiverMonth #CaregiverAppreciation #myastheniagravis

Last chance to watch our webinar “Take Control of Your Myasthenia Gravis Symptoms with Treatment Tailored to You. ” Learn about precision dosing and the potential benefits for people diagnosed with #myastheniagravis. Watch now --> https://ow.ly/9FNB50TY1xi #gMG #Treatment #IndividualizedDosing

?Está buscando recursos sobre la miastenia gravis en espa?ol? ?No busque más! Visite el sitio web de MGFA, donde puede descargar materiales, incluido nuestro folleto de gestión de emergencias. 正在寻找有关重症肌无力的中文资源？不用再找了！访问 MGFA 网站，您可以在那里下载教育材料，例如我们的警示药物清单 Vous cherchez des ressources sur la myasthénie grave en fran?ais ? Ne cherchez plus ! Visitez le site Web de la MGFA où vous pouvez télécharger du matériel pédagogique comme notre livret sur la gestion des urgences. Cerchi risorse sulla miastenia gravis in italiano? Non cercare oltre! Visita il sito web MGFA dove puoi scaricare materiale didattico come la nostra brochure sulla gestione delle emergenze. https://ow.ly/FkgI50TX6or

Reminder: Submit your abstract for the 15th Annual International Conference on Myasthenia and Related Disorders. Learn more at https://lnkd.in/eed2NDhu. #myastheniagravis #neuromuscular #rarediseaseconference

I was 18 when I was diagnosed with generalized Myathenia Gravis. I was just barely out of high school and hadn’t even decided what I wanted to do with my life yet… at 18, we’re supposed have an idea or know what we wanted to do and we go to school for it. I had thought I wanted to be a teacher or a nurse or maybe join the military and serve my county while getting to travel… Navigating this complicated neuromuscular disease while trying to navigate life as a young adult was definitely challenging and having to start over from the very beginning or changing course midway into a degree program was disappointing on many levels. I wanted to be able to do what everyone else did, I wanted to graduate from college after a minimum of 2 to 4 years and go right into a great career and be super successful, whatever that meant. After trying, and physically failing, at some of the careers I thought I wanted to do, I eventually realized I needed to figure out what my talents and strengths were and find a career that allowed me to use those strengths and talents. It took time to figure out my life with Myasthenia Gravis but it hasn’t stopped me. It only changed the career path I thought wanted to go down to a career path that I’m glad I went down instead. I agree with Jesse’s message - “Don’t let what you can’t do be a defeat.” #mgstrong #myastheniagravis

In honor of National Disability Employment Awareness Month, we're sharing a story about changing directions and paving a different path forward.? Generalized myasthenia gravis derailed Jesse's career as a project manager and his goal to become a firefighter. But after his diagnosis, he has found strengths and talents he didn't know he had. Jesse says, "Realizing that I could not do the work I used to do was very tough on me. It impacted me both emotionally and mentally. But when you’re forced to slow down and retool, you can do something you never expected. Don’t let what you can’t do be a defeat." Read Jesse's story on the MGFA Community Blog: https://lnkd.in/eGHj4wqh #disabilityatwork #ndeam #myastheniagravis #MGStrong

Our Patient Education Course on #MyastheniaGravis expires on November 10! Watch it before it expires to learn how individualized, precision dosing may benefit MG patients while minimizing side effects: https://bit.ly/4dItX0v Brought to you by NORD in partnership with Medlive - A PlatformQ Health Brand and Myasthenia Gravis Foundation of America, Inc. #MG #GMG #GeneralizedMyastheniaGravis #IndividualizedDosing #PrecisionDosing #PatientEducation #HealthEducation #MedicalEducation

The?MGFA Scientific Session?provides neurologists and other physicians an opportunity to discuss their basic or clinical research on myasthenia gravis and other disorders of the neuromuscular junction. At this year’s session, held today, researchers presented 23 papers to a full house. Dr. Kevin O’Connor of Yale Department of Neurology gave the keynote address, "Mechanisms of Myasthenia Gravis Immunopathology." Another 114 posters are available to review during the American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) Annual Meeting this week in Savannah. Read the program on our website to learn more about paper and poster topics: https://lnkd.in/g-wZudWG Thank you to every researcher who makes a difference for the MG Community!

In this episode of Neurology Video Journal Club, Dr. Vera Bril of the University of Toronto is joined by Dr. Carolina Barnett-Tapia, also University of Toronto, to discuss an article published in the January 23, 2024 issue of Neurology: "Exploring Factors That Prolong the Diagnosis of Myasthenia Gravis." Watch their conversation to learn more about this important topic. https://ow.ly/ZFo050THkbG

Join us at the Houston MGFA Community Health Fair! Living with myasthenia gravis brings its challenges, but finding support and resources shouldn't be one of them. MGFA's FREE Community Health Fair is your gateway to a community that understands, supports, and empowers. The Houston Community Health Fair features MG lectures by several leading providers in partnership with Houston Methodist. Check out their website for more about the provider forum on Friday, October 11. ?? When: Saturday, October 12 | 9 AM - 2 PM ?? Where: Houston Methodist Research Institute, Houston, TX *Connect & Share: Join others in the MG community to share experiences and find camaraderie. *Learn from Experts: Gain insights from medical professionals on managing MG with the latest treatments and strategies. *Access Resources: Explore educational and wellness resources tailored for you or your loved one. Thank you to our generous event sponsors, including National Presenting Sponsors Alexion Pharmaceuticals, Inc. and argenx. Register Today: https://lnkd.in/ezXpSjSJ