ALS Network

During #NationalFamilyCaregiversMonth and throughout the year, the ALS Network honors those who help people living with the daily challenges of #ALS. We offer many programs and services that support caregivers. To find a multitude of tools and resources, and to be inspired by individuals and families who are supporting these important ALS Network Programs for caregivers visit: https://lnkd.in/giaWunX7

Join us on Saturday, November 23, 2-6 pm, at the 9176 Gallery for An Afternoon of Art- a fundraising event honoring the 100th birthday of California artist Molly Wolveck. Molly is the mother of Young and Restless actress, Kate Linder, who has been a tireless advocate and celebrity spokesperson for #ourALScommunity. Proceeds from sales at this exhibit will directly support ALS Network! For more information or to RSVP visit: www.TeamKateLinder.org.

The Veterans Health Administration (VA) offers specialized #ALS care through a dedicated care team, including an ALS Coordinator at every VA medical center to assist with navigating treatment and support. Veterans can access care at the nearest VA facility, and telehealth options are available for those who cannot travel. The VA also collaborates with community partners including the ALS Network and offers resources for clinical trials, support groups, and research to improve care and outcomes for veterans with ALS. Find out more on the VA’s new website: https://lnkd.in/guDbRrhZ

Throughout November, ALS Network is sharing 10 helpful tips for families affected by ALS in honor of #NationalFamilyCaregiversMonth. #CallingAllCaregivers Way #8: KEEP ALL FAMILY MEMBERS IN MIND. Remember, ALS impacts EVERYONE in the family, regardless of age. Offer to take the kids to activities, or help out with elderly relatives. Learn more on our website at https://lnkd.in/gexEca7J

The ALS Network has worked with groups of neurologists and researchers from around the country, including people with ALS and their caregivers, to launch an ongoing study that seeks to establish medical standards and guidelines for in-home care for #ALS. An article published by the National Library of Medicine covers an important early step in the process to develop an expert consensus-based ALS home health medical standard guidance document, in collaboration with the American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM). ALS Network continues to participate as an advisory committee member in the study, and we will keep #ourALScommunity updated as this work develops. Learn more at https://lnkd.in/gYRK7RWj.

#NationalVeteransandMilitaryFamiliesMonth is a time to honor those who devoted their lives to our country. For unknown reasons, people who have served in the military, regardless of the branch, are at greater risk of developing #ALS than those with no history of military service. The U.S. Department of Veterans Affairs recognizes ALS as a service-connected disease, offering significant medical and financial benefits as a result of the ALS Network’s advocacy efforts. Please visit our website to learn more about the many resources for military personnel, veterans, and their families impacted by ALS at https://ow.ly/EneT50U8nS3

In case you missed it, you can watch our ASK ME educational webinar, “ALS from the Caregiver’s Perspective,” featuring Mari Fuentes, who cared for her husband, filmmaker Anton Maillie, and Trish Rice, who cared for her son, writer and poet Ryan Farnsworth. We are grateful to both Mari and Trish, who continue to honor their loved ones by supporting our mission and the #ALS community. Watch here: https://lnkd.in/gKUr_Q6g #NationalFamilyCaregiversMonth

In honor of #NationalFamilyCaregiversMonth, ALS Network is providing 10 helpful tips through November for people living with #ALS and their loved ones, including family caregivers. Way #7: BUILD A NETWORK AND COORDINATE SUPPORT. It can take a village to provide the best quality of life for people living with ALS and their families. Recruit friends and family, assign specific tasks and schedules, and stay in touch with one another. Learn more on our website at https://lnkd.in/gexEca7J

H.R. 8371: Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act passed the House of Representatives today! The bill now heads to the Senate, and, if approved, will require the President's signature to become law. This legislation is a comprehensive bipartisan package of bills designed to expand vital support for veterans and their caregivers. The ALS Network proudly endorses this legislation. Learn more: https://lnkd.in/gx77ay6C.

Meet Allison Nadeau, MPH, MBA, Policy and Advocacy Manager at the ALS Network. Allison has been working extensively on our new Advocacy Action Center, a one-stop hub where you can take action, learn more about our latest initiatives, and access resources. “I am dedicated to amplifying the voices of those affected by ALS and working alongside you to ensure that our advocacy efforts make a real and lasting impact. Whether the focus is promoting critical legislation, securing funding for research, or raising ALS awareness, your involvement is crucial. I look forward to working with each of you and am excited about the progress we can achieve together.” - Allison Nadeau, MPH, MBA Become an ALS advocate today and join the ALS Network as we cure #ALS together! Read Allison’s message to #ourALScommunity here: https://ow.ly/eU9X50U9EnJ.