?? The European Standards and Interoperability Alliance (ESIA) was founded last week in Brussels, with the mission to support the deployment of the European Health Data Space (#EHDS) by operating a standards hub for #interoperability specifications, and by advancing awareness and global alignment. ?? ?? ?? Our goal is to develop, with our standards hub, an indispensable one-stop-shop for interoperability specifications related to the European Electronic Heath Record Exchange Format (#EEHRxF), to support the #MemberStates and regions in their implementation of the #EHDSregulation. The seventeen founding members of ESIA include: CEN/TC 251 Health Informatics, Charité - Universit?tsmedizin Berlin, Datawizard, DNV, ECHAlliance - The Global Health Connector, EHTEL - Collaborating for Digital Health and Care in Europe, empirica Communication and Technology Research, Fondazione Gabriele Monasterio Regione Toscana CNR), Foundation for Research and Technology - Hellas (FORTH), TIC Salut Social Foundation, Gnomon Informatics SA, HL7 Europe, IEEE, IHE-Europe, IHE Catalyst, MedCom, and UNINOVA. Stay tuned for more! ?? ?? Subscribe to the #xShare newsletter for the latest insights, upcoming events, and opportunities to engage! ?? https://lnkd.in/gv76AT5S ?? ? Want to be part of the developments around the #EEHRxF? You can always express your interest to join the #EEHRxFCoE and engage with experts representing industry, government, academia and society, dedicated to enabling policies and advancing #EEHRxF implementation. ?? ?? https://lnkd.in/d7Bq3r5p #HorizonEurope European Health and Digital Executive Agency (HaDEA)
xShare project
公共卫生
Expanding the European EHRxF to share and effectively use health data within the EHDS
关于我们
xShare is a 3-year Horizon Europe project envisioning everyone sharing their health data in EEHRxF with a click-of-a-button. xShare will help us share our health data in EEHRxF by clicking the ‘yellow button’.
- 网站
-
https://xshare-project.eu/
xShare project的外部链接
- 所属行业
- 公共卫生
- 规模
- 51-200 人
- 类型
- 合营企业
xShare project员工
-
Robert Stegwee
Strategic Consultant for Health IT, focusing on meHealth for citizens and professionals in health and care
-
Catherine E Chronaki, FHL7, FIAHSI
Secretary General at HL7 Europe
-
Luc Nicolas
iCT for health expert at EHTEL - European Health Telematics Association
-
Rini Suryani
Crew di xShare project
动态
-
It is very rewarding to see that two worlds which used to be disconnected are beginning to speak together. A business continuity between primary and secondary use is key to create real value. Starting with value for the patient/citizen himself. Having eHealth, Health Data, Public Health and Medicinal Products agencies speaking and working together and sharing the responsibility to create quality, security and fluidity in the health system is essential for the #EHDS success.
?? EHDS - Unlocking Europe's Health Data Future Together Today, health experts and policymakers gathered to kick off the high-level conference on the #EHDS in Brussels. With #EHDS officially coming into force on March 26, we are entering a new era of interoperable and patient-centric health data exchange in Europe. The Opening Session featured: ?? Olivér Várhelyi, Commissioner for Health and Animal Welfare, DG SANTE ?? Katarzyna Kacperczyk, Ministry of Health, Poland ?? Lorena Boix Alonso, DG SANTE In Panel 1: The Promises of EHDS – A Patient-Centric Initiative, experts discussed the benefits of EHDS for European citizens: ?? Moderator: Andrzej Rys, DG SANTE ?? Panelists: ?? Pero Ivanko, Croatian Institute of Public Health ?? Katarzyna Kacperczyk, Ministry of Health, Poland ?? Constantinos S. Pattichis, National eHealth Authority, Cyprus ?? Tomislav Sokol, Member of the European Parliament ?? Vibeke van der Sprong, Danish Health Data Authority The discussions highlighted the patient-centered benefits of #EHDS, enhancing healthcare, research, and cross-border collaboration. We are at the beginning of an exciting journey – shaping a connected and efficient digital health ecosystem for all Europeans! ???? #XtEHR #EHDS #DigitalHealth #HealthInnovation #HealthData #DigitalHealthEU #dgsante #dgcnect #HaDEA #HealthUnion #EU4Health
-
-
The Regulation on European Health Data Space is published! #EHDS will provide a comprehensive framework for the access to and use of electronic health data across Member States. It will enhance #innovation and #competitiveness in the health sector for the benefit of all EU citizens. The EHDS benefits are: #Empowering citizens, giving them better control over their personal health data and enabling seamless access to their medical records across the EU, whenever and wherever they need healthcare (primary use). Strengthening the re-use of #health #data in anonymised or pseudonymised form, for research, innovation, public health, and policymaking, with safeguards fully in line with EU data protection and cybersecurity standards (secondary use). DNV is involved in this in several ways: As a partner in xShare project: https://xshare-project.eu/ A three-year Horizon Europe project envisioning everyone sharing their health data in European Electronic Health Record Exchange Format (EEHRxF), with a click-of-a-button. As part of the national reference group advicing Helsedirektoratet in the Xt-EHR project: https://www.xt-ehr.eu/ The project's diverse array of work packages cover the establishment of #guidelines and #technical #specifications for electronic health record systems, as well as the development of certification frameworks and the promotion of telemedicine services uptake, all aimed at aligning with the objectives of the EHDS Thank you Kerstin Engelhardt Minna Maria Hernandez and ?rjan Stene for making this an inclusive and engaging process. Thank you NTNU | HUNT Cloud Oddgeir Lingaas Holmen IQVIA Nordics Mia Louise Kr?kstad Richard Bergstrom Helseplattformen Nina Kongshaug Mona Stedenfeldt Line Helen Linstad Nima Jokilaakso, PhD Sitra Anne Heidi Skogholt Nino Lo Cascio Hanne Mari K. Hindklev Norsk helsenett SF great presentations and discussions on EHDS in Trondheim kommune yesterday. Astrid Rus?s Kristoffersen Sharmini Alagaratnam Serena Marshall Vibeke Binz Vallevik Angela Lanna Frédéric Courivaud Courtney Nadeau Oleg Agafonov Berg Aleksandar Babic Alexandros Patsanis Morten T?nnessen-Krokan Jens Nordahl https://lnkd.in/dSPpNDCk
-
-
?? Join us for the HL7 Europe Labs-on-FHIR Webinar: Spotlight on Sweden! ?????? ??? Thursday, 13 March 2025, at 16:00 CET Part of the ongoing Labs-on-FHIR series, this #webinar will delve into Sweden's journey of implementing #FHIR in laboratory systems. Discover how they navigated legacy infrastructures, engaged stakeholders, and addressed complex political landscapes to enhance healthcare interoperability. Featured speakers: Daniel Karlsson from The Swedish eHealth Agency, overseeing the government's e-health initiatives. Gunnar Nordin of Equalis AB, specialising in lab result quality assessment and management of the NPU terminology system for Swedish laboratories. Esteemed panellists: Univ.-Prof. Dr. med. Sylvia Thun, Charité - Universit?tsmedizin Berlin and chair of HL7 Germany. Giorgio Cangioli, HL7 Europe. Key discussion points: ?? Advancing the European Health Data Space (#EHDS) through international standards. ?? The critical role of #laboratorydata in diagnostics and chronic disease management. ?? Strategies for effective FHIR implementation amidst existing systems and policies. Why attend ?? ?? Gain insights from Sweden's practical experiences with FHIR. ?? Engage with experts on overcoming interoperability challenges. ?? Explore the future of healthcare data exchange and its impact on patient care. Secure your spot now! Register for free ?? ?? https://lnkd.in/eEciE6MS #HealthData #DigitalHealth #HealthInnovation
-
-
Join us for the HL7 Europe Labs-on-FHIR webinar, Spotlight - Sweden, THIS Thursday, 13 March 2025, at 16.00 CET. The European Health Data Space will advance the adoption of international standards to facilitate healthcare interoperability, to improve healthcare for European citizens and to aggregate data for research and innovation. Data from laboratory systems deliver the basis for diagnostic decisions, help patients manage chronic conditions, and make our healthcare systems more effective and efficient, if it can be delivered where and when it is needed. This HL7 Europe “Labs-on-FHIR” webinar is focused on experience in Sweden as they work towards implementing FHIR in laboratory systems, navigating legacy systems and stakeholder engagement, and working in a complex political environment. Featured speakers are Daniel Karlsson from The Swedish eHealth Agency E-h?lsomyndigheten which coordinates the government's e-health initiatives, and Gunnar Nordin from Equalis AB, a Swedish company that assesses the quality of lab results and manages the NPU terminology system for Swedish laboratories. Panelists include: ·??????Univ.-Prof. Dr. med. Sylvia Thun, Charité - Universit?tsmedizin Berlin and chair of HL7 Germany ·??????Giorgio Cangioli, HL7 Europe ·??????(more will be announced) For more information and for free registration, go to ?? https://lnkd.in/eEciE6MS
-
-
Join us in HIMSS Paris to continue discussion on the EHDS, the Format, and how we are getting ready together XiA project , xShare project , TEHDAS2 joint action Thank you Tjasa Zajc for the entusiasm and linking up oportunity, and looking forward to bring Hospitals on FHIR to Himss Paris.
Digital Health Expert I ?? Host of Faces of Digital Health | Event Moderator | Speaker I Patient Advocate I Former Journalist
?? Speaker hunt at HIMSS Global Health Conference & Exhibition! In Vegas, I took time to find a few speakers coming to HIMSS Europe. ?? Rasu Shrestha MD MBA is joining our Intelligent Disruption Through Tech Track, ?? Rachel Dunscombe will moderate a session on secondary use of data in the Using Health Data Right Track, ?? Guido Giunti will discuss patient involvement in business in the Future Today: Startup innovation track, ?? Myriam Fernández Martín, PhD, MSN, RN will talk in the Bridging Policy and Practice track, ?? Henrique Martins will debate vendor preparedness for EHDS and European projects supporting EHDS. See the short video below to learn more about their topics and join us in Paris from 10-12 June! ?? ?? ?? ?? https://lnkd.in/ddVi6UDJ #himsseurope #healthcare #himss25EU #digitalhealth
-
?? Highlights from the xShare project Partnership Council Meeting in Madeira! ?? During 26-28 of February, #xShare partners gathered in Madeira to discuss the latest developments and next steps for the xShare project, advancing secure and interoperable #healthdata sharing across Europe. Here’s a glimpse into the key topics we explored: ? The #xShareIndustryLabel – Defining its role in ensuring compliance with European health data standards. ? Use Cases for #PopulationHealth – Identifying real-world applications for improving #healthcare through secure data exchange. ? The 2nd xShare campaign – Planning outreach efforts to promote health data portability for individuals. ? Interoperability and Secondary Data Use – Addressing challenges in aligning health data formats for clinical and research purposes. ? Open Calls and Adoption Sites – Encouraging new stakeholders to participate in the xShare ecosystem. These discussions are shaping the future of citizen-controlled health data sharing in alignment with the European Health Data Space (#EHDS). Want to stay updated on xShare’s progress? Subscribe to our newsletter for the latest insights, upcoming events, and opportunities to engage! ?? https://lnkd.in/gv76AT5S ?? ? Want to be part of this? You can always express your interest to join the #EEHRxFCoE and engage with experts representing industry, government, academia and society, dedicated to enabling policies and advancing #EEHRxF implementation. ?? ?? ?? https://lnkd.in/d7Bq3r5p #HorizonEurope European Health and Digital Executive Agency (HaDEA)
-
-
?? Exciting developments in #digitalhealth! ?? The newly adopted European Health Data Space (#EHDS) Regulation (EU) 2025/327 marks a major step toward secure, interoperable, and patient-centric health data sharing across Europe. This regulation strengthens individuals' control over their #electronichealthrecords while enabling research, innovation, and better #healthcare delivery. ?? So, how do we turn this vision into action? The #xShareYellowButton simplifies #healthdata portability , allowing individuals to securely share their #healthrecords in a standardised format, the #EEHRxF. xShare is fully aligned with the EHDS, helping to: ? Empower individuals with easy access to their health data ? Ensure interoperability across electronic health record systems ? Support research & innovation through responsible data sharing ?? Read more: https://lnkd.in/dFmf4Qzk What are your thoughts on the EHDS and the role of digital health in shaping the future of healthcare? Let’s discuss in the comments! ??
-
-
[??EHTEL joint statement] Today 39 representatives of the EU health community welcome the publication of the #EHDS?Regulation?in the Official Journal of the EU and launch?a set of recommendations. ?? Together, we call on policymakers to guarantee an actionable process for involvement of a variety of voices in this new #healthdata ecosystem. A collaborative approach?will foster trust and contribute to the acceptance, effectiveness, and rapid adoption of EHDS initiatives. ??? Key to include are citizens, civil society, healthcare professionals, scientists, academia, #healthcare providers, payers, industry stakeholders, and patient representatives. ?? As a multi-stakeholder collaboration platform EHTEL has this principle in its DNA and is supporting #EHDS adoption through a variety of actions: ?? EHTEL's own EHDS Task Force for its members: https://lnkd.in/eSAfdpcM ?? EHTEL's close contact with a variety of voices through its involvement in #EU coalitions: https://lnkd.in/eBt4r4P7 ?? Join our community ?? https://lnkd.in/eGv887Bg
-
-
xShare project partners have gathered in Funchal, Madeira, Portugal, for a 3-day Partnership Council meeting, aiming to review our progress and plan our next steps! ?? The first day included insightful discussions on: ?? The #xShareYellowButton ?? Public / Population Health Use Cases by Luc Nicolas, Eugenia Rinaldi ?? IPS+R specification work and EUCROF Open Call by Dipak Kalra, Yoanni Th. Matsakis, Ana Dilo Bala ?? The #xShareIndustryLabel by Nathan da Silva Carvalho, Alexia Papadimitriou The second day was about: ?? Demonstrations from our Adoption Sites Alexander Berler, Maria Marques, #xShareYellowButton Reference Architecture Argiris Gkogkidis ?? A new #HID for Care Plans Morten Bruun-Rasmussen ?? The #xShare Implementation Guide Giorgio Cangioli and much more! Stay tuned for more details and updates! ?? Subscribe to our newsletter and never miss a thing! ?? https://lnkd.in/gv76AT5S ?? Want to be part of this? You can always express your interest to join the #EEHRxFCoE and engage with experts representing industry, government, academia and society, dedicated to enabling policies and advancing #EEHRxF implementation ?? ?? ?? https://lnkd.in/d7Bq3r5p
-
-
-
-
-
+1
-