Wake Up Narcolepsy supports #RareDiseaseDay, taking place today, February 28th, 2025!? ? ??Narcolepsy is considered a rare disorder as it affects approximately 1 in every 2,000 people.? ? ??By raising awareness about rare conditions, you can help decrease the stigma and increase education about their complexities!? Learn more: https://lnkd.in/gk6hbAF Thank you to our 2025 WUN Awareness Campaign Sponsors: Avadel Pharmaceuticals PLC, Harmony Biosciences, Jazz Pharmaceuticals & Takeda!
关于我们
Wake Up Narcolepsy, Inc. is a 501(c)(3) nonprofit public charity whose mission is focused on:
- Funding Narcolepsy research;
- Increasing public and health professional awareness of Narcolepsy;
- Decreasing time-lapse from symptom onset to proper diagnosis;
- Providing supportive resources for people with Narcolepsy and their families.
Please visit www.wakeupnarcolepsy.org for more information!
- 网站
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https://www.wakeupnarcolepsy.org/
Wake Up Narcolepsy的外部链接
- 所属行业
- 民间和社会团体
- 规模
- 2-10 人
- 总部
- Worcester，Massachusetts
- 类型
- 非营利机构
- 创立
- 2008
- 领域
- Narcolepsy、Sleep Disorders和Cataplexy
地点
Wake Up Narcolepsy员工
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Kevin Guckian
Senior Business Executive | Board Member | Expertise in Financial Reporting, Internal Controls, Global Operations, Risk Management and Governance
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Julea Steiner
Assistant Professor, Associate Director, MPH Practicum Program at UNC Gillings School of Global Public Health
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Madison Behrends
I am a professional looking for a part-time or remote peer support position.
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Cara Weaver
Manager, PR & Communications at Wake Up Narcolepsy
动态
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Narcolepsy Perspectives: a blog about anything & everything #Narcolepsy is back for 2025?? "The Impact of Extreme Emotional Stress on Narcolepsy Symptoms" by Tasha H., RN, is available now! Learn how symptoms are exacerbated by high stress levels and discover strategies for managing this. Check it out now: https://lnkd.in/eyrVWg45
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Check out this exciting #RareDiseaseDay virtual event!
We are proud to sponsor an important conversation with The Washington Post Live in honor of #RareDiseaseDay, marking the second year of our program dedicated to advancing the national conversation around #rarediseases. We believe in the power of caregiving and the essential role of social support systems for those affected. Our commitment to placing patients at the heart of everything we do drives us to foster dialogue that accelerates progress in rare disease with empathy and innovation. Let’s come together to make rare diseases a national public health imperative. Register for the virtual event here: https://wapo.st/4k36mfk #RareDiseases #RareDiseaseMonth
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We're delighted to present our People with Narcolepsy Perspectives Panel as a part of our 2025 #WUNSummit?? Moderated by Nicole Jeray, this insightful discussion features Monique Myers, Rorey Smith and Phebe Ciemny, sharing their unique journeys with #Narcolepsy. Join us in Raleigh-Durham, NC, or virtually, on April 26th for an inspiring day of #education and #community. ?? Register now: https://lnkd.in/egCtHpCB Thank you to our 2025 sponsors: Avadel Pharmaceuticals PLC, Harmony Biosciences, Jazz Pharmaceuticals, Takeda & Alkermes!?
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Check out this touching #NationalCaregiversDay video from Alkermes featuring our co-founder, Monica Gow!
In celebration of #NationalCaregiversDay, we spoke with Monica Gow, co-founder of Wake Up Narcolepsy. In this video, Monica reflects on her and her husband’s journey as caregivers to their son after his narcolepsy diagnosis, as well as the story behind the founding of Wake Up Narcolepsy.
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??Have you submitted your #WUNSleepSlogans entry yet? ??Check out these amazing examples from David, Lisa & Valerie for some inspiration! ?? Remember, our contest is open to everyone! Submit your creative sleep slogan (10 words or less) along with your name and a vertical photo by March 3rd to [email protected] for a chance to WIN! ?? ?More details: https://lnkd.in/exuRcbKi Thank you to our awareness sponsors: Avadel Pharmaceuticals PLC, Harmony Biosciences & Takeda! #WakeUpNarcolepsy #Narcolepsy #NarcolepsyAwareness #SleepDisorders
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In honor of #BlackHistoryMonth, Wake Up Narcolepsy (WUN) is proud to highlight the contributions of remarkable leaders in pediatric healthcare. Their dedication and achievements have significantly improved health outcomes for children. Much of the information about these leaders is sourced from the “Changing the Face of Medicine” series by the National Library of Medicine. Learn more: https://lnkd.in/eHaf2WuE Let’s unite in educating ourselves and others about influential figures in Black history, both this month and beyond. #HealthcareHeroes #PediatricHealthcare
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??LAST CALL to register for the 2025 Wake Up Narcolepsy Family Weekend at The Center for Courageous Kids (CCK) in Scottsville, Kentucky!? The no-cost camp is usually only for families of children and teens with sleep disorders, but this session is open to more families than ever?? If you're a parent with #Narcolepsy and your child or teen (ages 5-18) is affected by one of the conditions served by CCK, join us for this unforgettable experience!? ? Our featured guests, Dr. Luis Ortiz, Dr. Kiran Maski and Josh Andrews, look forward to welcoming you on March 21st!? ? ??REGISTER NOW to secure your spot: https://lnkd.in/gg6ebBxh ? Thank you to our 2025 Family Weekend Sponsors: Harmony Biosciences!? #FamilyWeekend #NarcolepsySupport #NarcolepsyAwareness
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?? Announcing three new locations for upcoming #WUNTownHalls!? ? Join WUN & Dr. Bruce Corser for this series of special events dedicated to sleep education and awareness! Discover the latest insights on clinical trials, research and medications from a leading expert. ? ? Each event will be tailored to the attendees as different stories are shared and questions are answered! Check out the options below:? ? #Dayton WUN Town Hall:? ?? Date: March 29th ? Time: 11am-1:30pm ET??? Location: Carol Graff Beavercreek Public Library ? ? #Indianapolis WUN Town Hall:? ?? Date: April 5th ? Time: 11am-1:30pm ET??? Location: Indianapolis Public Library – Franklin Road Branch? ? #Louisville WUN Town Hall:? ?? Date: May 10h ? Time: 11am-1:30pm ET??? Location: St. Matthews-Eline Branch Library? ? Whether you have a sleep disorder diagnosis or are simply curious, this is a fantastic opportunity to expand your knowledge and connect with a supportive community.? RSVP now: https://lnkd.in/eU-cp7se ? We appreciate our volunteers & sponsors who make these events possible!? ? 2025 sponsors: Avadel Pharmaceuticals PLC, Alkermes & Takeda
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?? Mark your calendars for our next 2025 Brown Bag Webinar on March 13th at 2pm ET! Join Dr. Maski for an informative webinar exploring the latest treatments, lifestyle adjustments and strategies for children living with #Narcolepsy. Register today: https://lnkd.in/dnrBsmcG Thank you to our sponsors: Avadel Pharmaceuticals PLC, Harmony Biosciences, Alkermes & Takeda! #SleepHealth #BrownBagWebinars #PediatricNarcolepsy
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