U.S. Pain Foundation

It’s Porphyria Awareness Week! Porphyria is a rare and often misunderstood group of disorders that can cause severe pain, skin sensitivity, and neurological symptoms. This week, we’re shining a light on the challenges faced by those living with porphyria and advocating for greater awareness, research, and support. 💜 If you or someone you know is living with porphyria, know that you are not alone. 💜 Together, we can educate, support, and make a difference. Help spread awareness by sharing this post! #PorphyriaAwarenessWeek #RareDisease #ChronicPain #SupportAndAwareness #YouAreNotAlone #Porphyria

April is Occupational Therapy Month! 🌟⁠ A huge thank you to occupational therapists for the life-changing work you do! 💙 Your expertise helps individuals living with chronic pain regain independence, adapt daily activities, and find strategies to improve their quality of life. Your dedication makes a real difference—empowering people to not only manage their pain, but also to engage in the activities that matter most to them. If you're an OT, we appreciate you! #OccupationalTherapyMonth #ThankYouOTs #ChronicPainSupport #OTLife #PainManagement #AdaptiveLiving #HealthCareHeroes

💙 A reminder: Grace, not guilt. 💙⁠ ⁠ Living with chronic pain means that showing up looks different every single day—and that’s OK. Some days, showing up means tackling your to-do list. Other days, it means simply getting out of bed, resting, or listening to what your body needs.⁠ ⁠ You are not defined by your most difficult days. You are worthy of patience, compassion, and grace—especially from yourself. 💙⁠ ⁠ How are you showing up for yourself today?⁠ ⁠ #SelfCompassion #ChronicPain #YouAreEnough #GraceNotGuilt #OneDayAtATime

🌍✨ Today is World Health Day—a reminder that health is a human right! Whether it’s physical, mental, or emotional well-being, everyone deserves access to care, support, and resources. Let’s continue advocating for better health for all, especially those living with chronic pain. 💙 We know how common it is to feel misunderstood or misrepresented when dealing with a chronic condition. How are you prioritizing your health today? #WorldHealthDay #HealthForAll #ChronicPainAwareness #MentalHealthMatters #YouAreNotAlone

💙 Loneliness can be a tough reality for those living with chronic pain. In a must-read article, Sara Gehrig, U.S. Pain’s Assistant Director of Mental Health and Support, opens up to For Grace about her own struggles with pain-induced loneliness and offers coping strategies she’s found helpful. Read her insights and find support here: https://lnkd.in/eb3MvCU9 #ChronicPain #MentalHealth #YouAreNotAlone #PainSupport #CopingStrategies

💙 The mission of U.S. Pain Foundation is to empower, educate, connect, and advocate for people living with chronic conditions or serious injuries that cause pain. As a 501(c)(3) organization dedicated to serving those who live with pain, their loved ones, and their health providers, U.S. Pain helps individuals find resources and inspiration. ✨ Please visit uspainfoundation.org for more information. #ChronicPain #Advocacy #SupportCommunity #Health #ChronicIllness #PatientAdvocacy #InvisibleIllness

💜 We’re at Headache on the Hill 2025! 💜 U.S. Pain Foundation is excited to join migraine advocates, caregivers and care partners, medical providers, and researchers in Washington, D.C., for a powerful day of headache advocacy. Hosted by the Alliance for Headache Disorders Advocacy (AHDA), this event is all about amplifying patient voices and pushing for policy changes that improve care for those living with headache and migraine diseases. Today, we’re meeting with lawmakers to share real stories, real struggles, and real solutions—because advocacy makes a difference. 💪 Together, we can drive change for those living with headache and migraine diseases. Follow along as we take action! #HeadacheOnTheHill #USPainFoundation #MigraineAdvocacy #ChronicPain #AdvocacyInAction #HeadacheDisorders

Our 2024 Annual Report is Here! 📢 As we reflect on the past year, we’re proud to share our 2024 Annual Report—a look back at the strides we’ve made in supporting, advocating for, and empowering those the chronic pain community. 💙 With your support, we’ve been able to make a real impact, from expanding resources and programs to amplifying the voices of those living with chronic pain. This work wouldn’t be possible without you! 📖 To download the report, click the link in our bio or download here: https://lnkd.in/eH6BGkJP 📢 Help us spread the word! Share this report to celebrate how far we’ve come and inspire others to join our mission. Thank you for being part of this journey! 💙 #USPainFoundation #AnnualReport #ChronicPain #MakingAnImpact #ThankYou

March National Peer Support Group Theme: Managing Flares 🌿⁠ ⁠ This month U.S. Pain is focusing on “Managing Flares” in our national peer support groups—something many in our community know all too well. Join us as we share tips, tools, and strategies to navigate pain flares. Whether through new technology, mindset shifts, humor, or simple reminders to rest, we’ll explore ways to make those tough days a little more manageable—in an environment offering compassion and support.⁠ ⁠ 💬 Join the conversation and connect with others who truly understand.⁠ ⁠ Plus, don’t forget—we also offer daily, state-specific, and specialized support groups throughout the month. There’s always a space for you. 💙⁠ ⁠ Visit https://lnkd.in/e8aUZ2-v to find a group and register!⁠ ⁠ #PainConnection #SupportGroups #ChronicPain #PainFlares #HealingTogether #YouAreNotAlone #FindYourSupport

The U.S. Pain Foundation was honored to attend the 40th Annual Health Policy Ball, supporting the next generation of health policy fellows. Ensuring the patient voice remains central to policy discussions is key to driving change in access to care, treatment innovation, and research. Thank you to Kathleen Arntsen and the Lupus and Allied Diseases Association (LADA) for the invitation and for championing advocacy that puts lived experiences at the heart of policy. We look forward to continuing these important conversations and collaborations. #PatientAdvocacy #HealthPolicy #Collaboration #AccessToCare #Research #ChronicPain #MakingAnImpact