TREAT-NMD

???? Today is Rare Disease Day! ???? At TREAT-NMD?, we stand with the rare disease community to raise awareness, inspire change, and support those affected by rare neuromuscular conditions. We’re wearing our stripes for #ShowYourStripes, and we encourage you to do the same! ?? Find out more about Rare Disease Day here: https://lnkd.in/gk6hbAF Together, we can make a difference. ?????? #RareDiseaseDay2025 #StrongerTogether #MuscularDystrophy #DisabilityAwareness #RareWarrior #EquityForRare

We are thrilled that the TREAT-NMD Advisory Committee for Therapeutics model is proving to be beneficial in other rare disease! #therapydevelopment #raredisease

?? We're Hiring! Join the TREAT-NMD? Team ?? TREAT-NMD? is looking for an experienced Financial Controller to help shape and support the financial operations of our global organisation. This is a fantastic opportunity to be part of a charity that accelerates neuromuscular treatments worldwide. If you’re a qualified accountant (ACA, ACCA, CIMA) with 5+ years PQE, we’d love to hear from you! ?? Apply now or share with your network! ?? https://lnkd.in/exZjscDA #Hiring #FinanceJobs #CharityJobs #TREATNMD #FinancialController #NewcastleJobs

Here’s another of our frequently asked questions about the TREAT-NMD? Advisory Committee for Therapeutics (TACT): Q: Can I come back to TACT or is it a one-time thing? A: If you’ve worked with TACT before, you can apply again as long as you bring new data, a different stage of development, or a separate programme. Many companies return as their projects progress to get expert input at pivotal decision-making points. TACT isn’t a one-off consultation—it’s an ongoing resource to support your programme’s success. Upcoming Meetings: Athens, Greece – May 2025? Atlanta, USA – November 2025 (slots available) Virtual meetings upon request? Apply for a review: https://lnkd.in/eww88JPA Read more FAQs: https://lnkd.in/ePcgQDs7 committee-for-therapeutics-faqs/ #TACT #ClinicalTrials #DrugDevelopment #NeuromuscularResearch #TREATNMD

Looking forward to an interesting and highly productive conference in Dallas and to catching up with the NMD community #TREAT-NMD

?? TREAT-NMD at Muscular Dystrophy Association Conference 2025! We’re excited to announce that TREAT-NMD will be attending the MDA Clinical & Scientific Conference 2025! This event brings together global leaders dedicated to advancing neuromuscular disease research and care. If you’re attending and would like to connect or learn more about our work, feel free to reach out! We’d love to meet up and explore opportunities for collaboration. See you in March! #MDA2025 #NeuromuscularResearch #TREATNMD #Collaboration #Innovation

???? Meet Your Expert Speaker: Annemieke Aartsma-Rus, PhD We are delighted to have Annemieke Aartsma-Rus, PhD, a leading voice in Duchenne Muscular Dystrophy research, speaking at our DMD Industry Day Symposium. She’ll be covering Duchenne pathology, genetics, and an overview of therapies in development.?Gain insights from her years of expertise and ask your pressing questions in an interactive Q&A. ?? Join us in Prague on 11th July 2025 ?? Register now: https://lnkd.in/e87JCh9J #TREATNMD #Duchenne #DMD #ClinicalTrials #Biotech #Pharma

Many industry partners approach us with the same key questions about our Advisory Committee for Therapeutics (TACT) such as; how and when to apply, what to expect, and how TACT can support their drug development journey. Over the coming weeks , we’ll be covering some of the most frequently asked questions about TACT and how it can help you navigate drug development challenges. First up: When should you apply to TACT? If you’re working on a neuromuscular disease therapy, TACT can help at any stage. Most applicants seek guidance after selecting a lead compound, and the committee supports earlier-stage programmes and those planning clinical trials. If you need expert input on your trial design, regulatory strategy, or clinical endpoints, TACT can provide unbiased, actionable feedback. Upcoming Meetings: Athens, Greece – May 2025 (1 slot remaining) Atlanta, USA – November 2025 (slots available) Apply to be considered for a review: https://lnkd.in/eww88JPA Read more FAQs: https://lnkd.in/eFC8QwZx therapeutics-faqs/ #TACT #DrugDevelopment #NeuromuscularResearch #ClinicalTrials #TREATNMD

Join Our Mission to Advance Neuromuscular Care! TREAT-NMD Alliance Ltd. is now accepting applications for two key roles on our Board of Trustees: Chair and Trustee! These positions are crucial in guiding the strategic direction of TREAT-NMD, a charity dedicated to improving the diagnosis, care, and treatment of individuals with neuromuscular diseases worldwide. ?? Role of the Chair: Lead the Board in shaping our strategic aims, provide guidance to the executive team, and represent TREAT-NMD at key events. ?? Role of the Trustee: Collaborate with fellow Trustees to oversee strategic decisions, ensure legal compliance, and contribute your expertise to help us make a positive impact. ?? Application Deadline: 24th March – Don’t miss out! Early applications are encouraged, as the closing date may be brought forward depending on interest. ?? Ready to make a difference? Apply now: https://lnkd.in/d7jPZmiy

New Resources Available on Becker Muscular Dystrophy! TREAT-NMD is excited to announce that new resources and information on Becker Muscular Dystrophy (BMD) are now live on the POD-NMD website! ?? POD-NMD (Physiotherapy Online Delivery Neuromuscular Disease) is an innovative online resource designed for therapists working with neuromuscular diseases in community settings and specialist centres. Our goal is to enhance knowledge around assessment and management of NMD and to promote best practices within the neuromuscular community. ? The new pages include: ?? Key Management Guide for BMD ?? Key Assessment Guide for BMD ?? Explore these valuable resources and enhance your understanding of BMD today: https://lnkd.in/eDsXtygb #TREATNMD #BeckerMuscularDystrophy #BMD #NeuromuscularDisease #Physiotherapy #NMDCommunity #PODNMD