??Thrilled to celebrate Danielle Mapstone's well-deserved promotion to Director of Operations at To Cure A Rose Foundation! ?? Danielle's passion and dedication are truly inspiring, from launching incredible events like the Rose Gala and Precision Medicine Summit to brilliantly balancing a thriving career and motherhood, including welcoming a newborn! Her expertise will be invaluable as she leads event operations, donor management, and marketing communications. Join us in congratulating Danielle and cheering her on in this new chapter! #ToCureARose #RareDisease #NewDirector #SuperMom #Congratulations
To Cure A Rose Foundation
生物技术研究
Austin,Texas 355 位关注者
We fund genetic treatments for children with rare diseases.
关于我们
To Cure A Rose Foundation was founded by Casey McPherson, when he discovered his daughter Rose had a rare disease with no cure. 200 million children suffer from rare genetic diseases, and only 5% of those disease's have a therapeutic option. 30% of those children will die before their 5th birthday. Yesterday, most of these diseases would have cost 100's of millions of dollars and over a decade to solve. Today, we have the technology to cure many of these diseases, but we don't have the funding, business models, pipelines, and efficiencies needed to do this at scale. To Cure A Rose Foundation is laser focused on creating a pathway for these children by revolutionizing the drug development process. We rely on the support of generous donors - large and small, to fund the life changing work we do. Please reach out if you'd like to become apart of To Cure A Rose Foundation.
- 网站
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www.tocurearose.org
To Cure A Rose Foundation的外部链接
- 所属行业
- 生物技术研究
- 规模
- 2-10 人
- 总部
- Austin,Texas
- 类型
- 非营利机构
- 创立
- 2021
- 领域
- biotechnology、rare disease、drug development、antisense oligonucleotide、small molecule repurposing、gene therapy、disease modeling、genetics、ipsc、neurosience、neurodevelopmental和neurodegenerative
地点
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主要
1401 Lavaca St
890
US,Texas,Austin,78701
To Cure A Rose Foundation员工
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Casey McPherson
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Colleen Anderson-Hawthorn
President | To Cure A Rose Foundation |Funding genetic treatments for children with debilitating rare diseases | 200M children worldwide | 95% do NOT…
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Genevieve Swilley
Communications Director at To Cure a Rose Foundation
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Maxwell Dordevic
Chief Business Officer @ Precigenetics; Co-Founder @ NeuroX1, Investor/Advisor/Operator
动态
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?? Give Hope. Change Lives. Sponsor the 2025 Rose Gala. ?? To Cure A Rose Foundation is racing against time to develop genetic treatments for rare diseases so more children like Rose can live a long, healthy life. The 2nd Annual Rose Gala in Austin is more than an event—it's a night of hope, purpose, and life-changing impact. ?? Your sponsorship means: ? A Legacy of Compassion – Your brand stands for more than business; it stands for life, hope, and a cure. ? Unforgettable Connection – Inspire your team, strengthen company culture, and engage with influential changemakers. ? Powerful Visibility – Your logo shines across event materials, social media, and our digital program. ? A Future for Children Like Rose – Join us on this extraordinary mission. Together, we can give more children a future. ?? Sponsorships are limited—be part of the impact today! ?? ?? email Colleen Anderson-Hawthorn, President, To Cure A Rose Foundation at [email protected] tocurearose.org #RoseGala #GiveHope #CorporateSponsorship #CommunityImpact #Austin #GeneticTreatments #RareDisease #ToCureARose
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Mark your calendars!???The Rose Gala is returning on?August 9th at Omni Barton Creek Resort! Get ready for a night of elegance, celebration, and giving back. Save the date and stay tuned for ticket information. You won't want to miss this!? #RoseGala #SaveTheDate?#ToCureARose #HNRNPH2 #RareDisease
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??Today is Rare Disease Day?? At To Cure A Rose Foundation, we are driven by a powerful mission: to develop genetic treatments for rare diseases so that more children, like Rosie, can live a long and healthy life. None of this would be possible without our dedicated team, scientists, board of directors, corporate partners, donors, and volunteers. Your passion and commitment fuel our work every day. ?? A genetic treatment doesn’t just change lives today—it creates a lasting impact for the future. Thank you for being part of this journey. Together, we can make a difference. ?? Learn more or take action today at ToCureARose.org #RareDiseaseDay #ToCureARose #GeneticCures #RareDiseases #MakeAnImpact #RareButStrong
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Big News! ?? We are thrilled to announce Colleen Anderson-Hawthorn as the new President of @To Cure A Rose Foundation! With 20+ years of expertise in communications, marketing, and fundraising, Colleen is deeply committed to advancing treatments for children with rare genetic diseases. A devoted mother and passionate advocate for children facing health and neurodivergent challenges, she is excited to collaborate with our board, team, corporate partners, and donors to propel our mission forward. Join us in welcoming Colleen as she leads us into this exciting new chapter! ???? #ToCureARose #NonprofitLeadership #RareDiseases
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A father's wish What is your wish for Rose? Make wishes come true here: https://lnkd.in/g5YAkPyR #grantawish #hnrnph2 #tocurearose
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As we approach the end of this year, we are making our final ask for donations to support Rosiphersen's development, biomarker development, and clinical endpoints. Your contribution will help us reach crucial goals: https://lnkd.in/g5YAkPyR Our wish for you this coming year is that your life be filled with purpose, fulfillment, and joy. We hope you know how much impact you have been making with your support of giving new life to Rose and children like her. Thank you for your unwavering generosity! #grantawish #hnrnph2 #tocurearose
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A scientist's wish ? What is your wish for Rose? Make wishes come true here: https://lnkd.in/g5YAkPyR #grantawish #hnrnph2 #tocurearose
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An aunt's wish ? What is your wish for Rose? Make wishes come true here: https://lnkd.in/g5YAkPyR #grantawish #hnrnph2 #tocurearose
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An aunt's wish ? What is your wish for Rose? Make wishes come true here: https://lnkd.in/g5YAkPyR #grantawish #hnrnph2 #tocurearose