The SADS Foundation

Word on the street is that the Cold and Flu Season is in full swing again... Here are some tips to manage the Cold and Flu season with your SADS Condition. You can find the list of Drugs to Avoid for Long QT at sads.org/DTA. And if you have any other questions about dealing with Cold & Flu with a SADS condition, please feel free to DM or email us! We're here to help. ??? #SADS #ColdandFluSeason #LivingwithaSADSCondition

The SADS Foundation is here is to save the lives and support the families of children and adults who are genetically predisposed to sudden death due to heart rhythm abnormalities. Our main goal is support you. Swipe and read below to see just a couple of the ways we are here to support you. Monthly Writing Workshop: Join SADS staff and volunteers for a monthly writing, journaling, and storytelling workshop. SADS Connection: Have you just been diagnosed – or are you looking to meet others with your heart condition? SADS Connection gives you an opportunity to meet and connect with others on a similar journey. ICD Support Group: This virtual support group is a safe, open space to talk about your experience living with an ICD or S-ICD, facilitated by peers who know just what you’re going through. Click the link below to find out more. https://lnkd.in/g8nYkf6w ??? #SADS #SCA #ICD #SADSSupport #SADSFamilies #SADSConditions #Brugada #CPVT #ARVC #ARVD #LongQT #ShortQT

Your SADS Journey can have difficult roads, but we are always here to help you get to your own beautiful destination. Don't hesitate to reach out to us, we are here to support you every step of the way that we can. ??? #SADS #SCA #SuddenCardiacArrestAwareness #childrenwithbrugada #parentsofSADS #SADScommunity #parentsofCPVT #parentsofLongQT #parentsofShortQT #parentsofARVC

RhythmScience is proud to announce our sponsorship of the Sudden Arrhythmia Death Syndrome (SADS) Foundation for their upcoming conference on March 22!? ?? We are honored to support an incredible organization that is working tirelessly to raise awareness about sudden cardiac arrhythmias and the importance of early detection and intervention. The SADS Foundation provides invaluable resources, research, and advocacy for families affected by these conditions. At RhythmScience, our mission aligns with the foundation’s dedication to improving heart health, and we’re excited to be part of this important event. ?? Join us in supporting the incredible work of the SADS Foundation as they continue to make strides in advancing research and saving lives. If you’re attending the conference, don’t forget to stop by our booth to learn more about how we’re working together to make a difference.? #SADS #SuddenCardiacArrest #HeartFailure #HeartHealth #HealthTech

Upcoming Webinar: Tenaya Therapeutics Clinical Trials Update on Wednesday, April 2nd at 4:30 PM PT | 7:30 PM ET! During this webinar, Dr. Whit Tingley, of Tenaya Therapeutics, will share updates on Tenaya’s MyPEAKTM-1 clinical trial for HCM due to a MYBPC3 mutation and their RIDGETM-1 trial for ARVC due to a PKP2 mutation. Dr. Tingley will explain how TN-201 and TN-401 are intended to work and will bring attendees up to date on recent announcements on the status of each trial. Q&A will follow his presentation. Register at https://lnkd.in/gPWc6xPJ.

SADS families - we want to see YOU at our free in-person seminars across the country this year! Our first in-person family seminar is this upcoming Saturday, March 22 at Vanderbilt University Medical Center in Nashville, TN. Our second in-person family seminar will be on Saturday, May 31 at NYU Langone Health in New York City, NY. We are also planning a third in-person seminar for Fall 2025 in the US - stay tuned for updates! Register for these seminars and learn more at https://lnkd.in/gYEYmmY8.

Thank you for participating in Heart Month with SADS. Your support ensures we continue providing family support, creating awareness, educating medical professionals, pushing for better treatments, and supporting new science. Simply put, your support saves lives. It’s not too late to get involved if you haven’t already. For as little as $5 per month you can save a life and become a SADS Super Sustainer. Click here to save a life: https://lnkd.in/ga8QGhzM.

See you in ONE WEEK, Nashville! Register here - https://lnkd.in/gnp94tjw. Join us for our free Family Seminar in Nashville, TN on Saturday March 22 in partnership with Vanderbilt University Medical Center to ask local medical experts questions and get to know other families with inherited heart conditions! We can't wait to see you. ??? #LQTS #CPVT #Brugada #ARVC #ARVD #SuddenCardiacArrest #HeartFailure #ICD Thanks to Tenaya Therapeutics, Lexeo Therapeutics, and RhythmScience Inc. for making these seminars possible.

New date! Clinical Trials: What to Know on Tuesday March 25 | 7:30 pm ET (4:30 pm PT) with Andrew Landstrom, MD, PhD, Duke University School of Medicine, speaker Have you ever wondered whether participating in a clinical trial is right for you? Join us to learn about the clinical trial process, general protocols, and what to expect when participating in a clinical trial. Register at https://lnkd.in/gPWc6xPJ. ??? #LQTS #CPVT #Brugada #ARVC #ARVD #SuddenCardiacArrest #HeartFailure #ICD

Being a parent is hard enough, but when you add your child being diagnosed with a rare health condition, it makes things a little more difficult. Camila is a mother whose child has been diagnosed with Brugada Syndrome. Camila talked in a recent episode of SADS Live about how she told her daughter about her heart condition, how they navigated the diagnosis process, remembering to take care of yourself as a parent, and much more. If you are a a parent of a child or children with a SADS condition, you will want to listen to this SADS Live episode. https://lnkd.in/gE3N2BJ5 ??? #SADS #SCA #SuddenCardiacArrestAwareness #childrenwithbrugada #parentsofSADS #SADScommunity #parentsof CPVT #parentsofLongQT #parentsofShortQT #parentsofARVC