The Rare Village Foundation

Welcome to the RARE Village! We are a non-profit organization founded by rare disease moms, to support rare disease families in their journey to build treatments for rare and ultra-rare genetic diseases. We know from experience how overwhelming a childhood rare disease diagnosis can be, but you are never along in the journey to your best rare disease life. Our goal is to serve rare disease families as they work to fund rare disease research and treatments, and to share resources and insights into living our best lives as a rare disease family. It takes a village to raise a rare child - let us be a part of yours.

网站

https://www.rarevillage.org

The Rare Village Foundation的外部链接

所属行业

非营利组织管理

规模

1 人

总部

Dallas，Texas

类型

非营利机构

创立

2019

领域

Rare disease、research、clinical trial、gene therapy、family foundation、fiscal sponsorship、oneshottolive、podcast、nonprofit、documentary、Fundraising、charity、philanthropy、Community和Events