If 23andMe goes bankrupt, what happens to their millions of customers’ personal and genetic data? Sara Gerke, Melissa B. Jacoby, and I. Glenn Cohen explore this issue in a new article published today in the?New England Journal of Medicine (NEJM Group): https://lnkd.in/eWaugyjg ? The data are not protected by HIPAA, the authors note. The U.S. has no comprehensive federal privacy laws (and handful of overlapping, conflicting state laws.) Sure, Congress could pass consumer protection laws, but “it has been difficult to get large-scale privacy reform through Congress.”? ? Indeed, as the authors note, 23andMe’s privacy statement “reserves the company’s right to transfer customers’ personal information in the event of a company sale or bankruptcy.” Basically, Gerke, Jacoby, and Cohen argue, little is stopping this data (potentially 14 million consumers’ worth) from being sold to the highest bidder.? ? Conclusion: “We believe it’s time to reconsider how [genetic information] data are?regulated.” ?
The Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School
研究服务
Cambridge，Massachusetts 2,185 位关注者
A leading interdisciplinary research program.
关于我们
Our Mission The Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School was founded in 2005 through a generous gift from Joseph H. Flom and the Carroll and Milton Petrie Foundation, with the goal of promoting interdisciplinary analysis and legal scholarship in these fields. The Center is not an advocacy organization, but rather is dedicated to the unbiased analysis of pressing questions facing health policymakers. The future promises to raise new and fascinating issues that will make these interdisciplinary analyses all the more important. Scientific advances are pushing the boundaries of existing thinking on everything from what defines a human life to what constitutes an ethically tenable area of research, as well as raising complex issues about the appropriate role of intellectual property. At the same time, transformations in health care financing and business practices, changes in the role of health law, and the growing realization that the environment has a direct link to human health have upset traditional professional and market paradigms. The founding vision of the Petrie-Flom Center is to promote scholarly inquiry that breaks away from existing disciplinary lines and brings the totality of these disciplinary methodologies under its compass to inform policy. To achieve this goal, the Center fosters a community of leading intellectuals, practitioners, and policymakers from a variety of backgrounds and at all stages in their careers. For more information about the Center, including affiliate news and scholarship, events, and more, please visit our website at https://petrieflom.law.harvard.edu/.
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https://petrieflom.law.harvard.edu/
The Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School的外部链接
- 所属行业
- 研究服务
- 规模
- 11-50 人
- 总部
- Cambridge，Massachusetts
- 类型
- 教育机构
- 创立
- 2005
- 领域
- Health Law、Health Policy、Biotechnology和Bioethics
地点
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主要
获取路线
23 Everett St.
US，Massachusetts，Cambridge，02138
The Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School员工
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The Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School转发了
STAT has published "Are We Adopting AI Scribes Based on…Vibes?", examining AI-driven scribe technologies and their marketing claims. The article cites "Ambient Listening—Legal and Ethical Issues," a recent article published in JAMA Network Open, in which I. Glenn Cohen, JD; Julie Ritzman, MBA, CPHRM; and Rich Cahill, JD, provide a comprehensive analysis of the legal and ethical considerations associated with the use of ambient listening technologies in healthcare settings. ? To access both articles, visit our AI in Healthcare Resource Center:?https://lnkd.in/gQnN7f4V #AIinHealthcare #ArtificialIntelligence #AI #AmbientScribe #AmbientTechnology #Healthcare #ProfessionalLiability #AIEthics
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If it feels difficult to revisit the events of 2020, you’re not alone. NYU sociology professor and author Eric Klinenberg was at Harvard Law School on Feb. 13 to discuss his new book 2020: One City, Seven People, and the Year Everything Changed. He noted in his opening remarks that “our collective response to what happened has been marked by a will not to know what happened. It’s almost too painful to go back there.” But, he said, “We have to process what we’ve lived through together… repressing all of this experience is a formula for disaster.” Joining Klinenberg for the discussion were Dr. Rochelle Walensky, Professor I. Glenn Cohen ’03, and Professor Jeannie Suk Gersen ’02. Please enjoy the full video of this one-hour book talk, available here: https://lnkd.in/ek5tDVfA
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Physician use of artificial intelligence is on the rise. One area of rapid adoption is AI ambient listening – using AI to record and analyze conversations between clinicians and patients. In this article, published today on JAMA Network Open, I. Glenn Cohen, Julie Ritzman, and Richard F. Cahill note that while this is a “very promising” technology, potential adopters need to consider legal and ethical factors such as “due diligence, informed consent, documentation, and its relation to malpractice liability.” Read the article here: https://lnkd.in/eS3ezQtq
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The Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School转发了
#EventReminder: Webinar on Climate Change, Health, and International Law How does international law respond to the health risks intensified by climate change? On 20 February, this webinar will explore global challenges and the role of human rights law in promoting equity and resilience. Organized by the Max Planck Law Initiatives ‘Law, Climate Change, and the Environment’ and ‘Law, Health, and Life Sciences’, along with Alicia Ely Yamin and Thalia Viveros Uehara. Register by 18 February: https://lnkd.in/ecVtnmG5 #ClimateChange #InternationalLaw #Environment #Health
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Join us on March 7 for a lunchtime Zoom discussing how artificial intelligence can be used for good—and for bad—in a healthcare setting. The panelists, Mason Marks, MD, JD, I. Glenn Cohen, and Claudia Haupt, will explore possible legal and regulatory approaches. The event is co-organized by the Harvard Medical School Center for Bioethics and The Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School. ? Learn more & RSVP here: https://lnkd.in/eFtyS2Xq ?
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Don't miss this upcoming event (Thursday 2.20.2025) on Climate Change, Health, and International Law.
#EventReminder: Webinar on Climate Change, Health, and International Law How does international law respond to the health risks intensified by climate change? On 20 February, this webinar will explore global challenges and the role of human rights law in promoting equity and resilience. Organized by the Max Planck Law Initiatives ‘Law, Climate Change, and the Environment’ and ‘Law, Health, and Life Sciences’, along with Alicia Ely Yamin and Thalia Viveros Uehara. Register by 18 February: https://lnkd.in/ecVtnmG5 #ClimateChange #InternationalLaw #Environment #Health
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The medical profession has historically regulated itself. Now, politicians and courts are intruding with bans, restrictions, and funding freezes including but not limited to abortion and gender affirming care. Subpar medical practice and danger to patients loom large.?? ?? Such is the premise for “Intrusion in the Practice of Medicine,” published today in JAMA. Congratulations to the authors: PFC’s Executive Director Susannah Baruch; Harvard Medical School Assistant Professor Louise King; and Carmel Shachar, Director of the Health Law and Policy Clinic at Harvard Law School Center for Health Law and Policy Innovation. ? ? Read the article here: https://lnkd.in/eYs_sXXa ?
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DID YOU KNOW…? ?? -That we send out a newsletter every other Friday full of PFC’s latest research, published scholarship, news, events, and selected opportunities from our affiliates?? -That we include links to our recent blog posts from Bill of Health?? -That it takes about 10 seconds to sign up here: https://lnkd.in/eCR6Tybj
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A powerful lineup of panelists will join author and NYU Social Science Professor Eric Klinenberg to discuss his latest release, “2020: One City, Seven People, and the Year Everything Changed.” Jeannie Suk Gersen will moderate with I. Glenn Cohen and former CDC Director Rochelle Walensky as discussants to look back on a tumultuous year. Swipe to learn more about our panelists, and join us Feb. 13 for this in-person lunchtime event: https://lnkd.in/ek5tDVfA
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