The Oley Foundation

For seven years, Katie Marschilok has been fighting chronic intestinal failure, proving that persistence, self-advocacy, and hope can overcome even the toughest health challenges. ?? Her inspiring story is a must-read for anyone facing similar battles. ?? Read Katie’s full journey in our Winter 2024 LifelineLetter: https://lnkd.in/gpc7S4x9 #LifelineLetter #ChronicIllness #Resilience #Hope #PatientAdvocacy #Inspiration

Don’t miss this empowering session with Carol Ireton-Jones, PhD, RDN, CNSC, and Beth Lyman, MSN, RN, FASPEN, FAAN, on December 17, 2024, from 11:00 AM - 12:30 PM ET. ??Topic: Empowering the Consumer to Recognize Routine, Urgent, and Emergent Challenges in Home Enteral Nutrition (HEN) This discussion will equip HEN consumers and caregivers with the confidence to distinguish between routine and critical situations, understand what to expect from care providers and DMEs, and learn how to effectively advocate for a personalized nutrition care plan. ??? Register Now: https://lnkd.in/gBDsTvsz Mark your calendars and don’t miss this valuable opportunity! ?? #SaveTheDate #HomeEnteralNutrition #OleyFoundation #NutritionSupport #PatientEmpowerment

The Oley Foundation provides essential resources and hope to families right from the start of their journey. Join us this #GivingTuesday to help Oley continue supporting families navigating TPN and enteral nutrition. Support families in finding their community today: https://lnkd.in/gpkXU2V2 #GivingTuesday #SupportOley #NutritionSupport #CommunityCare #MakeADifference #YourSupportMatters

??Seeking Enteral Pump Users for Product Research! ?? Are you or someone you know using an enteral pump? A company is inviting enteral nutrition consumers and caregivers to participate in a study for a new product. They’re looking for both adults and minors (with caregivers) who rely on tube feeding and pump use. Locations & Dates: ??Orlando, FL: December 2-6 ??Boston, MA: December 2-6 ??Philadelphia, PA: December 2-6, 2024 ?? Compensation: Starts at $450 for a three-hour in-person session! If interested, please complete our pre-screener to check eligibility: https://lnkd.in/gqz_8727 #EnteralNutrition #MarketResearch #FeedingPump #OleyFoundation #Philly #Boston #HealthCareCommunity

?? Empowered Conversations: Central Line Placement Questions Central line placement decisions can feel overwhelming—but they don’t have to. Beth Gore, PhD, Oley CEO, shares a must-read resource in our Winter 2024 LifelineLetter to help guide conversations with your healthcare provider. ??? Feel informed, involved, and confident in your care! ?? Learn how shared decision-making can combine clinical expertise with your personal needs for the best outcomes. ?? Read more in the Winter 2024 LifelineLetter: https://lnkd.in/gz7rBzFB #OleyFoundation #CentralLineCare #PatientEmpowerment #SharedDecisionMaking #NutritionSupport #iamoley

Let’s Talk SBS!? If you’re living with Short Bowel Syndrome (SBS), you don’t have to face it alone. ?? The ‘Let’s Talk SBS’ guide was created to help you understand your condition, set personal health goals, and get the most out of your conversations with your healthcare provider. ?? What’s Inside? -Answers to common SBS questions -Tips to set your own health goals -Support and resources for your journey This guide was created by Ironwood Pharmaceuticals in collaboration with SBS patients, community leaders, medical professionals, The Oley Foundation, and other organizations.? You can download the guide here: https://lnkd.in/g-g8wVdr Want a fresh copy of the SBS Appointment Checklist? You can get that here:? https://lnkd.in/gdEjBeza

Check out this heartfelt message from Lisa Metzger! After 18 incredible years as editor of LifelineLetter and Director of Advocacy, Lisa shares her reflections on the Oley community, her journey, and the lasting impact of her work. ?? ? Don’t miss her inspiring farewell in the Winter 2024 LifelineLetter! ?? Read the full article here: https://lnkd.in/gKD5JAir #OleyFoundation #LifelineLetter #Advocacy #NutritionSupport #CommunityImpact

??? Reminder: Community Connections is Tomorrow! ??? Don’t forget to join us tomorrow, Friday, November 22nd at 6:00 pm ET, for our virtual Community Connections! ?? Connect, share, and discuss topics that matter most to our caregivers and consumers in the nutrition support community. It’s all about supporting each other! ??? Haven't registered yet? There's still time! Sign up now: https://lnkd.in/g8mpfgYq We look forward to seeing you there! ?? #CommunityConnections #OleyFoundation #NutritionSupport #VirtualMeetup

At Oley, we’re creating spaces for kids to connect and celebrate who they are through programs like Kidz Camp and Virtual Kidz Klub. Our recent Virtual Kidz Klub brought joy and a sense of belonging to children living far apart but sharing similar journeys. ?? Download our first Oley-themed coloring page, featured during HPN Awareness Week, and let your child explore their creativity! Share their finished masterpiece with us using #iamoley. We can’t wait to see it! ????? ?? Download the Coloring Page Here: https://lnkd.in/gUa3khQC #PN #EN #HPN #FeedingTubeAwareness #IamOley

This #GivingTuesday, join us in making a real impact. Every donation to the Oley Foundation goes directly towards empowering families navigating the journey of TPN and enteral nutrition. With your support, we can continue to offer vital resources, community connections, and hope to those who need it most. ?? Together, let’s ensure no one feels alone in their journey. Donate today to strengthen this incredible community and make a lasting difference. Donate: https://bit.ly/48bz72P #GivingTuesday #SupportOley #YourSupportMatters #CommunityOfCare #NutritionSupport #MakeADifference