The Oley Foundation

Last week was a busy week for Oley at the American Society for Parenteral & Enteral Nutrition (ASPEN)?annual scientific meeting. ??We proudly hosted our first Oley Regional since 2019, welcoming 100+ attendees with the support of B. Braun Medical Inc. (US), Cardinal Health, and Kate Farms?. ??We connected with corporate partners at our booth ??We spoke at the Corporate Symposium, sponsored by Takeda?—packed in person & hundreds attending virtually! ??We share inspiring patient perspectives from our members ??We unveiled our brand-new logo! A huge thank you to everyone who made this event unforgettable! ?? #OleyRegional #PatientVoices #Community #ASPEN2025

?? From Firefighting to Fighting for Her Life ?? Jessika Buehne’s dream career as a firefighter was cut short by a sudden, life-altering illness. Now dependent on parenteral nutrition, she’s had to navigate both physical challenges and the grief of losing her old life. Her journey is one of resilience, acceptance, and finding new purpose. Read her powerful story in the latest Lifeline Letter: https://lnkd.in/ez6a9e_v #OleyFoundation #ChronicIllness #Resilience #GriefJourney

?? Empowering Those Living with or Caring for Feeding Tubes: A New Educational Program to Inspire and Support Join us for a 1-hour educational session to learn about MIC-KEY? Cares, Avanos Medical’s new support program for the tube feeding community, and discover an exciting surprise you won’t want to miss! ?? Our speakers Janel Ganz, Catherine Ridgeway, and Kelly Baker will discuss Avanos’ support services, troubleshooting tips, and why Tubies should be excited about MIC-KEY? Cares! ?? April 22 | 11 AM EDT? ?? Register now: https://lnkd.in/e8DkJVqe #MICKEYCares #FeedingTubeSupport #Avanos #OleyFoundation

?? Survey on Medication Administration & Product Accessibility for Feeding Tube Users ?? A research study is underway to better understand the challenges feeding tube users face in accessing essential medication products, like syringes and bottle adaptors. Your input will help drive change by informing key stakeholders and improving accessibility and quality of care. ? Survey Details: Voluntary & anonymous Takes 5–10 minutes No identifying info collected ?? Take the survey: https://lnkd.in/eekYpcak For questions, contact: [email protected] #FeedingTube #PatientAdvocacy #HealthcareAccess #OleyFoundation

?? Heading home with tube feeding? Here’s what you need to know! ?? In our latest article, 'Discharge Planning for Home Tube Feeding' experts from the ASPEN Enteral Nutrition Education Subcommittee share essential tips for smooth discharge planning. From understanding your prescription to managing supplies at home, this guide covers everything you need for a successful transition. Check it out now for expert advice on home tube feeding: https://lnkd.in/e5QSQVxm #TubeFeeding #PatientSupport #OleyFoundation #ASPEN

We're excited to welcome new team members to the Oley Foundation! ??Kalee Eichelberger joins as Education Manager ??Melissa Hansen as Operations Coordinator ??Fiorella Perlloni as Digital Marketing Coordinator ??Vincent Rosche as Community Engagement Coordinator ??Shakira Valentin as Community Care Coordinator We’re thrilled to have such talented individuals on board and can't wait for the impact they'll make! Read more about our new team members in our latest Lifeline Letter:?https://lnkd.in/efiUxeyb #OleyFoundation #WelcomeTeam #Community

?? Emergencies happen. Are you ready? Fueling Resilience: Preparing for the Unexpected Throughout Your Nutrition Support Journey will explore how supply chain issues, natural disasters, and unexpected disruptions can impact nutrition support and patient care. Learn how to stay prepared with expert insights from Kathryn Troyer, RD, LD, CNSC & Kimberly Smith, MS, RD, CNSC in this free webinar. ?? April 10, 2025 | ? 1:00 PM – 2:00 PM ?? Register now: https://lnkd.in/eKKrep9K Sponsored by Coram / CVS Specialty Infusion Services Now approved for 1 CEU credit by CDR. Free to register and attend. #HealthcarePreparedness #NutritionMatters #FuelingResilience #OleyFoundation

Fighting for Home PN Access: Advocating for Change in Colorado and Beyond On February 26, 2025, Oley’s CEO, Beth Gore, PhD, joined The Gutknecht Family of Colorado, State Senator Cleave Simpson, Dr. Lindsey Gumer (Denver Children’s Hospital), Connie Sullivan (NHIA), Allie Hoepker (Amerita), Shane O’Connor (Option Care Health), and other advocates to push for better access to home parenteral nutrition (PN). ?? Learn how this effort in Colorado could drive nationwide change in our Lifeline Letter Spring 2025:? https://lnkd.in/eGB2TGEr #HomePN #Advocacy #HealthcareAccess #OleyFoundation

Life is full of duality—struggles and victories, hardship and hope. Join us at #Oley2025 for a keynote that explores these contrasts in profound ways. ?? Tripp Hays dives into Charleston’s complex history, where beauty and pain coexist. ?? Trinity Lowthian shares how she thrives as a Paralympian while navigating life on nutrition support. ?? June 18 | 9 AM ET – Be there for this unforgettable session! Register NOW at https://lnkd.in/eVRbhpGs #OleyFoundation #HistoryMeetsResilience #ParenteralNutrition

?? Read Now: "Oley Meet and Greet – Between Past and Future" ?? In this special feature, Dr. Lyn Howard, Joan Bishop, Dr. Jill Genua, MD, Cathy Harrington, and Andrea T. discuss the evolution of home parenteral and enteral nutrition—and what’s ahead for patient care. ?? Learn how these dedicated leaders are shaping the future of metabolic nutrition and strengthening patient connections. ?? Read the full article: "Oley Meet and Greet – Between Past and Future" in the Lifeline Letter 2025! ??https://lnkd.in/e95qwJrf #LifelineLetter2025 #OleyFoundation #NutritionSupport #ParenteralNutrition #EnteralNutrition #PatientCare