The France Foundation

Today is Rare Disease Day, and we’re taking the time to reflect on our commitment to advancing rare disease education! At The France Foundation, we make a point to develop programs that equip health care providers with the knowledge and tools necessary to effectively identify, diagnose, and manage rare diseases. When you hear the word “rare” in describing a disease, you might underestimate how many patients are impacted by these conditions. An estimated 300 million people worldwide live with a rare disease, and these diseases come in many forms across all types of specialties. We understand that patients often see multiple specialists, which is why we strive to educate as many health care professionals as we can reach. We’ve created programs addressing an array of rare diseases, including Duchenne muscular dystrophy, Immune Thrombocytopenic Purpura, Spinal Muscular Atrophy, Idiopathic pulmonary fibrosis, Rett syndrome, sickle cell disease, and Myotonic dystrophy type 1. Rare diseases can be disabling, life-threatening, and have a lasting impact on patients and their caregivers. Understanding the role of the community in supporting patients is a core tenement for our education, so we also partner with patient advocacy groups to stay updated on medical advancements and align our materials with patient and caregiver needs. Patient perspectives are central to our educational programs, emphasizing real-life experiences and the impact of these diseases. Ultimately, our goal is to empower health care professionals to provide high-quality care to all patients, even in the absence of a cure. Read the full article below to learn more about our continued efforts to enhance rare disease education and make a difference in the lives of patients and their communities! ?? https://ow.ly/ysyh50V2gT9 #RareDisease #MedicalEducation #Healthcare #PatientCare #TheFranceFoundation #DuchenneMuscularDystrophy #ITP #SMA #IPF #RettSyndrome #SickleCellDisease #MyotonicDystrophy

?? Happy Healthcare Continuing Education Professionals Day?! ?? Today, we celebrate the dedicated individuals who ensure healthcare providers stay at the cutting edge of medical innovation and patient care. These professionals are essential in our ever-evolving medical field, tirelessly designing, delivering, and refining educational programs. We want to highlight the incredible work of our colleagues Jasleen Chahal (PhD), Accreditation and Outcomes Manager, and Ailene Cantelmi (MFA), Director of Educational Development. Each was recognized at the Alliance 2025 Annual Conference with awards for their commitment to lifelong learning and excellence in continuing medical education. Learn more about our colleagues’ impact on healthcare education by reading the full article on our website here: https://lnkd.in/eVgj--E3 Take a moment to appreciate the healthcare continuing education professionals in your life. Their work carries a lasting impact, empowering healthcare teams to deliver outstanding care and inspiring us all to improve patient outcomes. #HealthcareEducation #ContinuingEducation #MedicalInnovation #PatientCare #HealthcareProfessionals #CME #CE

Calling all oncology and urology professionals! ?? Join our FREE live event series on Advancing Care in Non-Clear Cell RCC! Earn 4.0 CME/CE credits while learning from expert faculty about the latest in diagnosing and treating nccRCC. Register today! ?? https://bit.ly/nccRCC Session 1 Dates: January 21, 2025, 6:00 PM ET/3:00 PM PT led by Dr. Sumanta Pal January 29, 2025, 6:00 PM ET/3:00 PM PT led by Dr. Pedro Barata #nccRCC #kidneycancer #oncology #urology #CME #CE

Despite the availability of clinical lab tests and genetic testing, there is an average 2.5-year delay between onset of symptoms and time to diagnosis for patients with #Duchenne. PPMD has partnered with The France Foundation on a comprehensive digital resource library designed for #pediatric and #primarycare practices, featuring micro-learning modules designed to improve awareness and knowledge of the consequences of delayed diagnosis and care initiation in Duchenne patients. Learn more: https://lnkd.in/ei9DDwaX

As Rett Syndrome Awareness Month comes to an end, remember to include patient and caregiver perspectives as part of your clinical decision-making — it makes a world of difference! Learn how to best incorporate their perspectives in this educational module: https://bit.ly/9280 #RettSyndrome #raredisease #RettSyndromeAwareness #RettSyndromeAwarenessMonth

Rett syndrome can have a wide variety of presenting symptoms. Risk evolves over the life of the patient and overlaps with other pathological conditions, contributing to delays in diagnosis. Rett Syndrome Awareness Month is the perfect time to learn more about this rare disease! https://bit.ly/9280 #RettSyndrome #raredisease #RettSyndromeAwareness #RettSyndromeAwarenessMonth

Take time during Rett Syndrome Awareness Month to improve your skills in diagnosing this rare disease! Timely identification can make a world of difference for patients, and a multidisciplinary approach to treatment is key. Learn more and earn free CME with our interactive module here: https://bit.ly/9280 #RettSyndrome #raredisease #RettSyndromeAwareness #RettSyndromeAwarenessMonth

October is Rett Syndrome Awareness Month! When it comes to this rare disease, you should learn to expect the unexpected. Do you know the early signs and symptoms of Rett syndrome? Check your knowledge with our interactive module and earn free CME while you’re at it! https://bit.ly/9280 #RettSyndrome #raredisease #RettSyndromeAwareness #RettSyndromeAwarenessMonth

Today’s the day! If you find yourself at the NBDF Bleeding Disorders Conference in Atlanta, stop by Level 2, Room B207-B208 at 12:00 pm to learn about making the most effective treatment decisions for patients with hemophilia – we’ve got lunch ready too. We hope to see you soon!

Don’t forget, we’re hosting a live event all about the different perspectives of clinicians managing patients with hemophilia. Register today to save yourself a seat tomorrow, September 12th at the NBDF Bleeding Disorders Conference: https://bit.ly/9362