Thank you to our friends at Muscular Dystrophy Association for your endless work for those living with neuromuscular diseases. Today was #LouGehrigDay - a day where baseball stadiums and parks across the country, celebrated the life of legendary baseball legend Lou Gehrig, and his battle with ALS. It’s a day to remember not just Gehrig’s baseball achievements but to spotlight ALS, the challenge he bravely faced. #ENDALS #MDA #musculardystrophy #musculardystrophyawareness #genetics #lgmd #limbgirdlemusculardystrophy #lgmd2c #raredisease #ultrararedisease #genetherapy #icebucketchallenge Michael J. Kennedy, MBA Nora Capocci, MPH
The Dion Foundation
非盈利组织
Boston ，Massachusetts 153 位关注者
Help support research to expedite the development of treatments for rare and ultra-rare childhood diseases.
关于我们
Support research. Find a cure. Help children and families fight rare diseases. Our mission at the Dion Children Foundation for Rare Disease is to increase awareness of rare and ultra-rare genetic diseases such as Limb-Girdle Muscular Dystrophy, that affect children with the intention of allocating funds for research and development of potential treatments and cures of these devastating diseases. Our belief at Dion Children Fund is that no child should be left behind. Our children matter, and so do the lives of so many other children affected by rare genetic diseases. No child left behind.
- 网站
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www.thedionfund.org
The Dion Foundation的外部链接
- 所属行业
- 非盈利组织
- 规模
- 1 人
- 总部
- Boston ，Massachusetts
- 类型
- 非营利机构
- 创立
- 2023
地点
-
主要
获取路线
US，Massachusetts ，Boston