The Atypical HUS Alliance Action

aHUS Alliance Global Action: The aHUS Alliance, through international collaboration, will promote global awareness of aHUS, will work with international aHUS researchers and, by supporting newly emerging national aHUS patient groups, will bring relief and support to those affected by aHUS to save, and improve the quality of, more lives. As a group of patient organizations interested in the rare disease atypical hemolytic uremic syndrome (aHUS), its main focus is connecting information, people and organizations whose interests lie in research and medicine related to aHUS. "Connecting Informing Collaborating" For more information about the aHUS Alliance, visit https://www.ahusallianceaction.org/about/ Email: [email protected] aHUS alliance Global Action is registered as a charitable incorporated organisation in England and Wales, Registration No. 1167904.

网站

https://www.ahusallianceaction.org

The Atypical HUS Alliance Action的外部链接

所属行业

保健和健身

规模

2-10 人

类型

非营利机构

创立

2015

领域

Atypical HUS、aHUS、Atypical Hemolytic Uremic Syndrome、Rare disease、cTMA、Eculizumab、Ravulizumab、Complement、aHUS Alliance Global Action、aHUS Alliance和aHUS CAB