#ICYMI: Check out our latest Spondycast episode, Your Stories: Author Lisa See’s Journey with AS Lisa See, New York Times bestselling author, discusses her journey with spondylitis. https://lnkd.in/dk3EQUpF #Diagnosis #symptoms #flares #treatment #exercise #research #ankylsoingspondylitis
关于我们
When SAA was founded in 1983, there was no support network, no educational materials geared to spondylitis patients, not even a single pamphlet for people affected by spondylitis, a group of related rheumatic diseases that primarily affect the spine and other joints. Nearly 2.7 million Americans are living with the disease. SAA was the first and remains the largest resource in the U.S. for people seeking information on spondylitis. Our focus is on research, patient advocacy, education and support, as well as raising awareness about this group of diseases. Our mission at the Spondylitis Association of America is to be a leader in the quest to cure Ankylosing Spondylitis and related diseases, and to empower those affected to live life to the fullest. There are more than 100 types of arthritis. For more than 35 years, SAA has focused on just one - yours. So that no one has to face spondylitis alone.
- 网站
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https://www.spondylitis.org/
Spondylitis Association of America的外部链接
- 所属行业
- 非盈利组织
- 规模
- 11-50 人
- 总部
- Encino,California
- 类型
- 非营利机构
- 创立
- 1983
- 领域
- Education、Research、Advocacy和Support Groups
地点
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主要
16430 Ventura Blvd
STE 300
US,California,Encino,91436
Spondylitis Association of America员工
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Sean Ewert
Director of Member Engagement
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Carrie Kellenberger
CEO Reach To Teach l Patient Advocate l Disability Rights
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John Highberger
Check out my YouTube channel, "Sean Can't Cook...but John Can!". Watch as I teach Sean how to feel more comfortable in the kitchen! My channel is…
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Lisa Krebs Magno
Manager of Advocacy Programs at the Spondylitis Association of America
动态
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The SAA Advocacy Team and staff are at the American College of Rheumatology Conference this week! Booth #2013. We’ll be learning about the very latest research findings and disease management strategies for spondylitis, chatting with rheumatologists at our booth, and much more! What would you like us to explore at ACR on your behalf? Email [email protected]! #spondylitis #ankylosingspondylitis
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Save the Date: December 3, 2024 If you don't already know, that's GivingTuesday, a global movement of generosity to unleash the power of people and organizations to transform their communities and the world. Support SAA With a Gift of $50.00 or More This Giving Tuesday and Receive Your Own Exclusive SAA branded apron and electronic copy of Anti-inflammatory Eating: Recipes from your Dietitian’s Kitchen! Learn More: https://lnkd.in/ebwrxH8F #givingtuesday #diet #generosity #ankylosingspondylitis
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Are you familiar with zero balance and how it can help manage your AS symptoms? Listen to today's Spondycast episode, An Introduction to Zero Balancing and Benefits for Chronic Conditions Dr. Michelle Doucette, Board Chair of the Zero Balancing Health Association, explains zero balancing and how it can benefit people with spondylitis. https://lnkd.in/ewtf3mHJ #zerobalancing #touchtherapy #bones #joints #movement #spine #pain
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Don't forget. We need your questions about psoriatic arthritis (PsA). We’re working on a special feature for Spondylitis Plus and want YOUR questions! Drop them in the comments or send us a message at [email protected]. You just might see them answered in our Spring issue!" Looking forward to seeing your questions! #psoriaticarthritis #communitywisdom #community #wellness #questions #education #learning
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Curious about psoriatic arthritis (PsA)? We’re working on a special feature for Spondylitis Plus and want YOUR questions! Drop them in the comments or send us a message at [email protected]. You just might see them answered in our Spring issue!" Looking forward to seeing your questions! #psoriaticarthritis #communitywisdom #community #wellness #questions #education #learning
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As a yogic practice, Pranayama involves controlling the breaths in different ways and lengths. Benefits of the practice include, improved lung function, increased blood oxygenation, better cardiac function, improved brain activity, reduced risk of hypertension, as well as clearing physical and emotional blocks in the body. Listen to our latest Spondycast episode, Incorporating Pranayama (Yogic Breathing) to Promote Well-Being and Management of Spondyloarthritis. Dr. Balasubramanian, integrative health researcher, discusses how breathing practices, such as yogic breathing, can promote well-being in health and chronic illness. https://lnkd.in/eWpWX6su #Yoga #pranayama #yogicbreathing #breathingexercises #humming #exhalation
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Helping youth transition from pediatric to adult care can be complex. But there are helpful tips to make the process easier. Check out this week's new Spondycast episode, Part 2 - Transitioning to Adult Rheumatology Care: For Young Adults with Spondyloarthritis. In Part 2 of this 2-part episode, Drs. Sadun and Cintron continue their discussion about how young people can successfully transition to adult rheumatology care, including how family can assist with this transition. https://lnkd.in/e96VWJDj #pediatricrheumatology #adultrheumatology #healthinsurance #selfmanagement #selfadvocacy #spondylitis
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If a patient with mechanical back pain has symptoms at night, this pain typically occurs when the patient first goes to bed, whereas a patient with inflammatory back pain typically wakes up due to pain in the middle of the night. Learn more: https://lnkd.in/d_FFjycs #inflammatorybackpain #ankylosingspondylitis #pain #spinehealthawareness #spinehealth
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What are your stories? Well. To put it simply, they are stories about you, members of the spondyloarthritis community. Your Stories provide a personal look into your journey with spondyloarthritis. Read our latest, Your Stories: Navigating Flares by Helen Jones. She sheds a light on what a flare-up really feels like—especially the mental toll—and what helps her get through these challenging periods. https://lnkd.in/e4gcarib #ankylosingspondylitis #flares #mentalhealth