Did you know that proper oral hygiene is especially important for those with spondyloarthritis? A research study indicated that patients with ankylosing spondylitis have a significantly higher risk of periodontal (gum) disease. People with gum disease have an increased risk of developing cardiovascular diseases, such as heart attack and stroke. There is also a link between gum disease and respiratory illness. A regimen of good home oral hygiene, professional cleanings of dental plaque and regular dental exams are important to potentially prevent the medical comorbidity of spondylitis. Learn more: https://lnkd.in/e4NDJDwm #WorldOralHealthDay #spondylitis #gumdisease #dentalhygiene #inflammation #axSpA
关于我们
When SAA was founded in 1983, there was no support network, no educational materials geared to spondylitis patients, not even a single pamphlet for people affected by spondylitis, a group of related rheumatic diseases that primarily affect the spine and other joints. Nearly 2.7 million Americans are living with the disease. SAA was the first and remains the largest resource in the U.S. for people seeking information on spondylitis. Our focus is on research, patient advocacy, education and support, as well as raising awareness about this group of diseases. Our mission at the Spondylitis Association of America is to be a leader in the quest to cure Ankylosing Spondylitis and related diseases, and to empower those affected to live life to the fullest. There are more than 100 types of arthritis. For more than 35 years, SAA has focused on just one - yours. So that no one has to face spondylitis alone.
- 网站
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https://www.spondylitis.org/
Spondylitis Association of America的外部链接
- 所属行业
- 非盈利组织
- 规模
- 11-50 人
- 总部
- Encino,California
- 类型
- 非营利机构
- 创立
- 1983
- 领域
- Education、Research、Advocacy和Support Groups
地点
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主要
16430 Ventura Blvd
STE 300
US,California,Encino,91436
Spondylitis Association of America员工
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Sean Ewert
Director of Member Engagement
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Carrie Kellenberger
CEO Reach To Teach l Patient Advocate l Disability Rights
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John Highberger
Check out my YouTube channel, "Sean Can't Cook...but John Can!". Watch as I teach Sean how to feel more comfortable in the kitchen! My channel is…
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Lisa Krebs Magno
Manager of Advocacy Programs at the Spondylitis Association of America
动态
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Struggling to balance work with chronic illness? In this week’s new #Spondycast episode, Patricia Ewa Grabarek, PhD & Katina Brynn Sawyer, PhD share practical tips on setting boundaries, requesting accommodations, and prioritizing self-care while managing #Spondyloarthritis at work. Jill Miller You shouldn’t have to choose between your health and your career. Tune in now for some helpful tips and insights: https://lnkd.in/duYwBtg8 #Advocacy #workplacewellness #worklifebalance #employeeengagement #boundaries #spondylitis #chronicillness
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March 18 is World Young Rheumatic Disease Day! Early recognition and referral to specialized pediatric rheumatologists can significantly improve a child’s health and quality of life. By increasing knowledge among parents, doctors, teachers, and the public, we can help ensure that no child’s symptoms go unnoticed or untreated. Help us spread the word, advocate for better care and resources for young patients, and make a difference in the lives of children with rheumatic diseases. Learn more: https://lnkd.in/gNrQKRkD #wordday2025 #rheumaticdiseases #childarthritis #jspa #juvenilespondyloarthritis #arthritis
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Be sure to wear your walk swag! Remember to include your pets in your walking regimen, we also have great swag for them too! Make sure your March steps are in the step counter by Monday, March 31st for incentives and prizes. Keep walking everyone! You can do this!!! Questions? Email Sean - [email protected] https://lnkd.in/ekjrTqdb #WalkYourASOff #spondylitis #community #virtualwalk #awareness
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Did you know that high disease activity predicts high level of fatigue? Poor sleep quality and interrupted sleep is also associated with more fatigue. And sleep deprivation can reduce the analgesic effect of pharmacological treatment. Sleep Tip: Use sound sleep practices by eliminating ambient light, sticking to a regular bedtime routine, and avoiding screen time in bed. March 14 is World Sleep Day! #worldsleepday #spondyloarthritis #fatigue #wellness #chronicillness #sleep
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Registration is now open for SAA's 7th Annual Global Spondyloarthritis Summit! Mark your calendar and join us on May 2-3, 2025, for 2-days of expert presentations and live Q&A sessions to explore Comorbidities: A Whole-Body Approach to Spondyloarthritis Care. Featuring 12 experts from the international community, we cover topics including Cardiovascular Disease and SpA; Inflammatory Bowel Disease and SpA; Pain, Fatigue and SpA; Psoriasis and SpA, and Uveitis and SpA, and more. Whether you are newly diagnosed or have been living with SpA for years, the Summit is your opportunity to learn about the latest trends, research, and treatment options in a completely virtual environment. Plus, you'll have ample opportunities to connect with others members of the community and participate in interactive activities! Register now: https://lnkd.in/eE5N5sjK #spondysummit2025 #comorbidities #uveitis #ibd #psoriasis #fatigue #cardiovascular
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New Spondycast Episode! How does menopause impact women managing spondyloarthritis and other chronic inflammatory conditions? In our latest episode, Camille Moreno an expert in midlife women’s health, breaks down the connection between hormonal changes, inflammation, and overall well-being. She also shares practical strategies for managing symptoms and staying active. Tune in now to her discussion with host Jill Miller: https://lnkd.in/eSuaJfSV #Menopause #Spondyloarthritis #WomensHealth #Podcast #Perimenopause #postmenopause #inflammation #hormones
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Be sure to have your steps in the SAA step counter on or before Monday, March 31st for March incentive prizes. Incentives will be given to top steppers and SAA fundraisers. https://lnkd.in/etCdvQSU Also, wear orange shoelaces to support World AS Day and Walk Your AS Off! SAA has newly branded orange shoelaces in our store. Perfect for visibility when walking and as a conversation starter about spondyloarthritis awareness. Questions? Email Sean at [email protected] Swag here! https://lnkd.in/ebHUR6Xg #WalkYourASOff #spondylitis #community #virtualwalk #awareness
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Have you registered yet? Only 24 hours until SAA Storytellers: Your Stories on Stage. Join us tomorrow, March 7, 2025, at 5:00 PM PST on YouTube for a virtual show. We're sharing the inspiring spondyloarthritis journeys of SAA support group leaders Sara Shaw and Eric Bonanno, and fellow spondy patients Geoff Lindsay and Joshua Lee. There's no charge to attend, but registration is required. Get your tickets now! https://lnkd.in/dYmi3G-B #storytelling #spondylitis #community #support #empowerment #spondyloarthritis #axspa #advocacy
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New Spondycast Episode: The Power of Emotional Freedom Techniques (EFT) in Stress Management Managing stress is a crucial part of living with spondyloarthritis, and one emerging approach is Emotional Freedom Techniques (EFT), also known as tapping. In this episode of Spondycast, we speak with Brad and Pamela Thompson, certified EFT practitioners, who share how this simple yet effective technique can help reduce stress, improve resilience, and support well-being. Listen here: https://lnkd.in/eiHVicnk Do you use EFT in your stress management routine? Let us know in the comments! #Spondyloarthritis #Spondycast #EFT #Tapping #ChronicPain #EmotionalFreedomTechnique #StressManagement #MindBodyConnection
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