This #CaregiverAwarenessMonth, we continue to celebrate caregivers like Kristi, who is dedicated to helping her daughter Justice achieve independence. Kristi shares: “I really want Justice to be able to live independently... I don’t want her to move out because she’s like my second part of me, but for her own sake, she needs that.” Join us in celebrating #PWS caregivers and their commitment to helping their loved ones reach their full potential. Learn more: https://lnkd.in/e89yyaSr #NFCMonth #familycaregivers #Support4Caregivers C-US-PWS-00062 V1 11/24
Soleno Therapeutics, Inc.
制药业
Redwood City,California 7,141 位关注者
Inspired by patients and families around the world, we are advancing much needed therapies for rare genetic disorders.
关于我们
Inspired by patients and families around the world, we are researching and developing therapies for rare genetic disorders with a lead candidate in #PraderWilliSyndrome currently under FDA regulatory review. To sign up for updates, visit www.soleno.life.
- 网站
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https://soleno.life/
Soleno Therapeutics, Inc.的外部链接
- 所属行业
- 制药业
- 规模
- 51-200 人
- 总部
- Redwood City,California
- 类型
- 上市公司
- 领域
- Biopharmaceuticals、Therapeutics for the treatment of rare diseases和Pharmaceuticals
地点
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主要
100 Marine Pkwy
Suite 400
US,California,Redwood City,94065
Soleno Therapeutics, Inc.员工
动态
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Finding independence with PWS is achievable, and Jim and Elaine’s inspiring story breaks stereotypes, showing what’s possible. They’ll be the first to admit it’s not always easy, and in this video, they share insights on living a fulfilling life enriched by community. Learn more: https://lnkd.in/eYZBdVEj #PWSAwareness #Support4PWS C-US-PWS-00059 V1 11/24
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In early November, we had the opportunity to attend the Prader-Willi Syndrome Association | USA New England regional conference, where we engaged with local members of the PWS advocacy community, health care providers, individuals with PWS, and their families. We are so inspired by the collective effort and commitment of this community to improve the lives of those living with Prader-Willi syndrome. Thank you to everyone who shared their experiences, challenges, and hopes with us — your experiences drive our mission forward. #PraderWilliSyndrome #Support4PWS C-US-PWS-00069 V1 11/24
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This #CaregiverAwarenessMonth, we recognize the dedicated PWS caregivers. Charles and Gennelle continue to give their daughter, Angelica, who was diagnosed with #PraderWilliSyndrome (PWS) before birth, every opportunity possible. Charles shares: “This is our chance to show our child the things that she can do…” Together, they focus on helping her build independence and confidence. Learn more about their journey here: https://bit.ly/3ClDsFO #NFCMonth #familycaregivers #Support4PWS C-US-PWS-00062 V1 11/24
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Every journey with #PraderWilliSyndrome is unique, whether you’re living with PWS, a caregiver, or someone affected—your story matters. Share your PWS story at https://lnkd.in/ehUZvuXg. #PWSAwareness #RareDisease #Support4PWS #MyPWSstory
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#PraderWilliSyndrome (PWS) is a #RareDisease that may require daily support from a caregiver team. Research shows that PWS caregivers often experience significant impact on their psychological and physical health and overall quality of life. During #NationalFamilyCaregiversMonth and always, we hope to facilitate connections for those caregivers in the #PWS community. Meet some amazing #PWS Caregivers here: https://bit.ly/48BI7j4 C-US-PWS-00062 V1 11/24
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Kristi and Justice believe independent living is possible for those with #PraderWilliSyndrome. Over the years, they’ve worked together to build the skills needed for Justice to manage PWS challenges on her own and recognize when additional support is needed. Through it all, Kristi’s goal has been to help Justice thrive while remaining a steady source of strength. As this new chapter approaches, this mother and daughter team is sharing their journey to inspire and support others looking toward a future of independence. Learn more about Justice and other amazing individuals in the PWS community at https://bit.ly/3Y2HmMF. #Support4PWS #PWSAwareness C-US-PWS-00056 V1 10/24
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This #CaregiverAwarenessMonth, we celebrate caregivers like Kelly, who gives her daughter Clementine endless love, patience, and support. Kelly shares: "Clementine's smart, she's funny, she's kind. She's honest. She's the sort of person that everybody should be at heart, and she deserves the same chance to live her life as anyone else would." Join us in recognizing the dedication and strength of caregivers everywhere who give their loved ones every opportunity to thrive. Learn more: https://bit.ly/3ZJhjLr #NFCMonth #familycaregivers #Support4PWS
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November is #NationalFamilyCaregiversMonth, and we want to recognize the compassion, perseverance, and resilience of caregivers who take on the job of caring for a loved one and those particularly in the #PraderWilliSyndrome community. We see you, and we honor your hard work and dedication. Meet some amazing #PWS Caregivers here: https://lnkd.in/eDtu8Y4G #NFCMonth #familycaregivers #Support4PWS
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Transitioning to adulthood with #PraderWilliSyndrome (PWS) presents unique challenges, particularly when it comes to living independently with hyperphagia. Justice and her mom Kristi share her struggle managing the range of symptoms associated with PWS, while sharing how independence is possible with the right support. #PWSAwareness Learn more about Justice and other amazing individuals in the PWS community at https://bit.ly/4hALn1Y. #Support4PWS #PWSAwareness