PRISMS Professional Advisory Board Member, Dr. Santhosh Girirajan, was appointed Head of the Department of Biochemistry and Molecular Biology for Penn State Eberly College of Science. We are proud of his work and wish him all the best in his new role.
PRISMS - Parents and Researchers Interested in Smith-Magenis Syndrome
非盈利组织
Sterling，VA 239 位关注者
Providing information and support to families and professionals interested in Smith-Magenis Syndrome.
关于我们
PRISMS, an acronym for Parents and Researchers Interested In Smith-Magenis Syndrome, is dedicated to providing information and support to families of persons with Smith-Magenis Syndrome (SMS), sponsoring research and fostering partnerships with professionals to increase awareness and understanding of SMS. Organized and incorporated in the state of Virginia on February 4, 1993, PRISMS, Inc. is governed by a volunteer Board of Directors. Most board members have children with Smith-Magenis Syndrome. PRISMS works closely with a multidisciplinary Professional Advisory Board that provides medical guidance and reviews research proposals. On May 4, 2000, the IRS declared PRISMS a 501c(3) non-profit organization. Our Federal Tax Identification Number is 54-1652029. We file an IRS form 990 every year. This form is available for public inspection at GuideStar.org or upon request.
- 网站
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https://www.prisms.org
PRISMS - Parents and Researchers Interested in Smith-Magenis Syndrome的外部链接
- 所属行业
- 非盈利组织
- 规模
- 2-10 人
- 总部
- Sterling，VA
- 类型
- 非营利机构
- 创立
- 1993
- 领域
- Rare Disease、Patient Advocacy、Research、Smith-Magenis Syndrome和Non-Profit
地点
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主要
获取路线
21800 Town Center Plaza
Suite 266A-633
US，VA，Sterling，20164
PRISMS - Parents and Researchers Interested in Smith-Magenis Syndrome员工
动态
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PRISMS hosted its Research Symposium in Dallas, TX bringing together researchers dedicated to the study and understanding of Smith-Magenis syndrome. Our primary objective for the symposium was to facilitate a collaborative environment where researchers can share their ongoing work, discoveries, and ideas related to SMS. It was our privilege to provide a platform for these researchers to converge, share their findings, and collectively work towards enhancing the quality of life for individuals with SMS and their families.?A big thank you to Vanda Pharmaceuticals who sponsored the event and all the researchers who attended in person and online. #SmithMageisSyndrome #PRISMS #raredisease #research
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PRISMS 12th International Conference starts today! We look forward to seeing you there! #Leadingthewaytogether #PRISMSConference2024 #InternationalSmithMagenisSyndromeConference
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Scotti Taylor, an advocate and SMS parent shares her personal journey and insights about her adult daughter who was recently diagnosed with Smith-Magenis Syndrome on the most recent DNA Today Podcast. We invite you to listen and share this link with others to help raise awareness about Smith-Magenis Syndrome. #DNAToday #PRISMS #SmithMagenisSyndrome
?DNA Today: A Genetics Podcast: #293 Smith-Magenis Syndrome with Parent Scotti Taylor on Apple Podcasts
podcasts.apple.com
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We have exciting news to share with the SMS community!?Study results, for which Dr. Stephanie Sisley collected data through focus groups at the 2022 SMS International Conference has been published "Blind to the perils of pursuing food: Behaviors of individuals with Smith-Magenis Syndrome". We are pleased to share this article with our SMS community.?
ScienceDirect.com | Science, health and medical journals, full text articles and books.
sciencedirect.com
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PRISMS has been working hard on behalf of the SMS Community for the past 30 years. This is highlighted in the newly released 2023 annual report available now. We invite you to take a look at what we have accomplished together. A big thank you to our generous donors who help make our work possible. Read it here: https://lnkd.in/e97RafiS #PRISMS30 #PRISMSThenNowAlways #SmithMagenisSyndrome
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PRISMS announces a new online publication "Strategies to Address Emotional and Behavioral Challenges in Smith-Magenis Syndrome" Click on the link to download your free digital copy https://bit.ly/3JClv6r
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PRISMS is in the process of identifying companies to approach for funding and sponsorship for our 2024 conference. If you know of anyone who might be interested in sponsoring the PRISMS conference, email [email protected]. #LeadingtheWayTogether #SmithMagenisSyndrome #PRISMSInternationalConference
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PRISMS is excited?to?announce the appointment of new roles for our Executive?Committee: Percy Huston as?President, Jackie Fallenstein as Vice President, Maggie Miller as a Founding Member, Phil Ruedi as Treasurer,?Brandon Daniel as?Immediate Past President, and?Diane Erth continues her role as Secretary.? Each of these individuals brings a unique set of skills?and?expertise,?as well as?a strong commitment to our organization's mission.?They are joined by 7 additional?board members, all working in different capacities to support PRISMS' mission.?#PRISMS #SmithMagenisSyndrome
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