Sj?gren’s Foundation

From interactive Q&As with top Sj?gren’s specialists to real conversations with fellow patients, the National Patient Conference is designed to inform and empower. Join us online, April 11th & 12th. Register today: https://lnkd.in/dx-rtdhQ Check out our speaker lineup! ??

Don’t miss this incredible opportunity to learn from leading experts! Join us for an engaging and informative session exploring the interplay of neuro/immune connections in Sj?gren’s and how it can impact clinical care and research. Preview the speakers and topics.?? Register for this virtual event (1/31) for healthcare professionals: https://hubs.ly/Q031Zvd50 ? Featured Speakers and Topics ? The Science: Immune or Nervous System? Nancy Carteron MD FACR – University of California, San Francisco & Berkeley ? Perspectives on Clinical Management Brent Goodman, MD – Metrodora Institute, Utah ? Rheum-Neuro Communication & Collaboration Ghaith Noaiseh, MD – University of Kansas ? Ocular-Neuro Connections Anat Galor, MD, MSPH – Bascom Palmer Eye Institute, University of Miami ? Oral-Neuro Connections ? CNS Clinical Practice Guidelines Arun Varadhachary, MD, PhD – Washington University *This event is not intended for patients.

We recently convened an interdisciplinary panel of neurologists and rheumatologists to develop evidence-based Clinical Practice Guidelines (CPGs) for peripheral nervous system (PNS) manifestations in Sj?gren's disease. During this process, an unexpected challenge emerged: inconsistent terminology in the medical literature revealed critical communication gaps between specialties that can impact patient care.? ? To address terminology discrepancies, the Sj?gren's Foundation and PNS guideline panel undertook an effort to create shared definitions of the types of neuropathies that occur in Sj?gren's disease. Learn more about our recommendations to enhance clarity and collaboration between rheumatology and neurology specialties in Arthritis & Rheumatology, the official journal of the American College of Rheumatology. ?? https://lnkd.in/et-2tBat?

You're invited to State of Sj?gren’s—a free virtual event for healthcare professionals. Earn 2.0 CME or Nursing Contact Hours at no cost. Discover the latest research from renowned experts on the interplay between the immune and nervous systems in Sj?gren’s disease. ?? Date: January 31, 2025 ?? Time: 12:00 – 2:00 p.m. ET Register: https://hubs.ly/Q031Zvd50 Don’t miss this chance to advance your practice and improve patient care. This event is not intended for patients.

Sharing a great opportunity hosted by the University of Florida College of Dentistry. Their 2024 Sj?gren’s Disease Virtual Symposium is tomorrow from 9am to 1pm ET. This year’s symposium features four one-hour presentations from nationally and internationally renowned experts in Sj?gren’s disease. CE credits are available for each session. Review the program and learn more: https://lnkd.in/ezkk6B49 Presentation topics include: -Nervous System Complications in Sj?gren’s Disease -Exploring the Ocular Health Implications of Dysautonomia in Sj?gren’s Disease -Fatigue in Sj?gren’s Disease -Salivary Gland Ultrasound: A Useful Imaging Tool in Sj?gren’s Disease

The name change from Sj?gren’s syndrome to Sj?gren's disease is a significant step forward in advancing understanding and care for those living with this complex disease! The updated terminology reflects a more accurate recognition of the seriousness of Sj?gren’s and paves the way for improved research, awareness, and patient advocacy. Thank you Healio for shedding light on this important milestone! https://lnkd.in/eZwGJNG4

Thank you Federico Zazzetti, MD, MSc for sharing the story and diagnosis journey of our President & CEO, Janet E. Church. Your post shines a light on the challenges many Sj?gren’s patients face and highlights the importance of awareness and advocacy for those living with this complex condition. #Sj?grensDisease

New Blog Alert: Highlighting Men with Sj?gren’s Disease: A Rheumatologist's Perspective In honor of Men’s Health Awareness month, the Sj?gren’s Foundation is highlighting our male patient experience living with Sj?gren’s disease. To read more click the link below: https://buff.ly/3C5UVBU #Sj?grens #Sjogrens #Sj?grensDisease #SjogrensDisease #Sj?grensSyndrome #SjogrensSyndrome #MaleSj?grens #MaleSjogrens

New Blog Alert! The Sj?gren's Foundation's 40th Anniversary Celebration Ends. The Impact Continues! The Sj?gren’s Foundation's 40th anniversary year has come to a close and we want to thank YOU for making it a celebration! We have come a long way since 1983; from the exciting new therapies in clinical trials (3 of which are in phase 3!) to the historic renaming of our disease from Sj?gren’s syndrome to Sj?gren’s DISEASE. We are so proud of where we are and excited for where we are going. We are grateful for all patients, providers, and researchers who have helped us achieve this milestone with such accomplishment! Click the link below to read more: https://buff.ly/40i9bSh #Sj?grens #Sjogrens #Sj?grensDisease #SjogrensDisease #Sj?grensSyndrome #SjogrensSyndrome

Don't miss out! Registration for the 2024 Virtual Fall Focus Conference will end on November 9th so register today! Looking Deeper into Ocular Manifestations of Sj?gren’s Disease November 9, 2024 12-5pm (ET) Topics to be covered include: - Foundational Overview of Sj?gren’s Effect on the Eye - What to Expect in a Comprehensive Eye Examination - An Explanation of Medications Available for Dry Eyes in Sj?gren’s - Understanding how Sj?gren’s patients may experience eye pain differently - Ocular Interventions available for Sj?gren’s Patients - Surgical Considerations for Sj?gren’s Eyes - Exciting Research Currently Happening for Sj?gren’s Dry Eye! Click the link below to register: https://buff.ly/4eYX1lr {hashtag|#|Sj?grens} #Sjogrens {hashtag|#|Sj?grensDisease} #SjogrensDisease {hashtag|#|Sj?grensSyndrome} #SjogrensSyndrome #DryEye