Serenely Guided Foundation, Inc.

So thrilled to be able to spend this Rare Disease Day presenting to students, enrolled in an enrichment class, about what the Serenely Guided Foundation does as a nonprofit, what a rare disease is, the basics of genetic testing, clinical trials, as well as a look inside our recent blood drive and the importance of volunteering within the community. The questions and time spent by these students who wanted to learn more about rare disease were thoughtful and intentional. Everyone received an informational bag about rare diseases, as well as a Certificate of Completion for time spent learning. So very honored to spend the afternoon kicking-off our workshop series with these amazing students. Rare Disease Day #rarediseaseday #raredisease #rarediseaseawareness #studentworkshop444

Meet Sullivan! He’s our latest Community Service Award recipient and the heart of the Serenely Guided Foundation. Sully is a rare disease warrior diagnosed with HHT in 2024. HHT (Hereditary hemorrhagic telangiectasia), is a rare blood vessel disorder. Sully is a Boston Children's Hospital patient at the Vascular Anomalies Center, and was genetically tested using GeneDx - Symptoms of HHT present themselves in childhood and increase in adulthood. Sully is in 6th grade and has been volunteering since the age of 4. He plays many sports, his favorite being football. ?? Sully is a wonderful example of someone who not only gives back to his community, but is kind, dedicated, determined, and goes above and beyond whatever goals are in front of him. Thank you to Sully for being a great example to others in middle school and for passing out flyers to promote our Rare Disease Awareness & Blood Drive Event on February 1st. #raredisease #rarekids #rarediseaseawareness #rarediseaseday #hht #rarewarrior #volunteer #communityservice

Meet Kinley! Kinley is a rare disease warrior. She’s a Boston Children's Hospital patient who receives IVIG (intravenous immunoglobulin) every 3-4 weeks at BCH for a rare immunodeficiency. IVIG treatments involve infusing antibodies into a vein to strengthen the immune system. It's used to treat autoimmune disorders, infections, and immunodeficiency conditions. She’s currently in 8th grade and has been undergoing these treatments for nearly six years. Kinley shined as our Rare Disease Awareness & BCH Blood Drive Volunteer and received a Serenely Guided Foundation Community Service Award for her time and dedication to our cause. #raredisease #rarediseaseawareness #rarediseaseday

It's because of the wonderful people who took the time on Saturday to come out in the cold and snow to give back. Thank you to the amazing Bloodmobile team at the BCH Blood Donor Center and all the blood donors who made this event happen for the patients at Boston Children’s Hospital. #blooddonor #givepintsforhalfpints #rarediseaseawareness

What an amazing day meeting so many people within the Stoneham community who came out to donate blood for pediatric patients in need at Boston Children's Hospital. We worked with the dedicated team at the BCH Blood Donor Center to bring the Bloodmobile to Stoneham High School. Gratefully, we booked every time slot! Inside at registration, blood donors received a bag full of information on rare diseases and what local resources are available within their community. A very special thank you to WellSense Health Plan for sponsoring our event. *February 28th is Rare Disease Day! #rarediseaseday #rarediseaseawareness #blooddonor #blooddonation #givepintsforhalfpints

Just in time for Valentine’s Day, we’re amplifying our partnership with Crayola Flowers.??Click the link or scan the QR code to create your dream bouquet via our specially curated Web Shop, and 10% of the sale will go towards SGF and rare disease awareness. https://lnkd.in/eQZ8cChD #crayola #crayolaflowers #raredisease #rarediseaseawareness #flowersforgood

We are thrilled to announce that Circuit will be serving the Stoneham community with free rides to and from our Rare Disease Awareness & Blood Drive Event on Saturday, February 1st from 9am-3pm at Stoneham High School. Since November 2024, Circuit has been offering affordable eco-friendly rides in Stoneham, Massachusetts. Circuit's all-electric shared vehicles reduce emissions and traffic congestion in your community. Ditch the car and catch a ride to and from Stoneham's favorite spots like the Redstone Shopping Center, Stone Zoo, Stoneham Arena, and more. Head to our link in bio to download the Circuit App. We look forward to seeing you cruising to Stoneham High School on February 1st! To download the Circuit app https://lnkd.in/ee9DNR2F To register to donate blood on 2/1 https://lnkd.in/eNZYGW-K

A big thank you to WellSense Health Plan for helping sponsor our Rare Disease Awareness and Blood Drive Event on February 1st at Stoneham High School! Your support helps us provide vital resources in wellness, nutrition, and education to patients, families and caregivers affected by rare diseases. WellSense Health Plan, a nonprofit health insurance company, proudly serves more than 700,000 members in MA and NH with Medicare, Medicaid and Individual & Family plans. Together, we're making a difference! To sign-up to be a blood donor at this event, click the link to reserve your time slot. https://lnkd.in/e4KNPGaH #raredisease #rarediseaseawareness #blooddonor #giveblood

Rare Disease Day is Friday, February 28th! This is an important day and month for raising awareness for the 300 million people worldwide living with a rare disease. #raredisease #rarediseaseday

January is Blood Donor Month! An important time to recognize that blood donation is critical for pediatric patients in need of blood due to rare diseases and disorders, serious injuries, as well as surgeries. Reserve your spot today on the Boston Children's Hospital Bloodmobile coming to Stoneham High School on Saturday, February 1st from 9am-3pm. Every blood donor will receive a t-shirt, gift bag, and drinks and snacks will be provided. https://lnkd.in/e4KNPGaH #blooddonor #blooddonation #blooddonormonth #pediatrics #raredisease #rarediseaseawareness