Thank you Stoneham Public Schools for inviting SGF to the Safety & Health night at Stoneham High School to raise awareness about rare diseases and community resources for patients and families. Amongst the highlights of the panel discussion: ? Patient Navigation for wellness resources. ?SGF Storytime & Workshop sessions for all ages focusing on what a rare disease is, health empowerment, inclusion, empathy, and knowing and feeling comfortable within your body. ? Newly added 2025 workshop sessions focusing on health, wellness, and understanding genetics and the importance that it can play in our health journey. ?To inquire and sign-up your school or program contact: [email protected] #patientnavigation #wellnessresources #raredisease
Serenely Guided Foundation, Inc.
非盈利组织
The Serenely Guided Foundation is a 501(c)(3) organization that supports those affected by rare diseases.
关于我们
The Serenely Guided Foundation is a 501(c)(3) organization that supports charitable, educational, and scientific efforts to improve the lives of patients, families, caregivers, and those affected by rare diseases. Our passion and commitment is to raise funds that support resources for patients and families, providing grants to medical students, and contributing to scientific advancements in genetic research for treatments and cures for the rare disease community.
- 网站
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www.serenelyguidedfoundation.org
Serenely Guided Foundation, Inc.的外部链接
- 所属行业
- 非盈利组织
- 规模
- 2-10 人
- 类型
- 非营利机构
- 创立
- 2023
Serenely Guided Foundation, Inc.员工
动态
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Sharing more amazing memories courtesy of Harry Ehrlich during our Cornhole & Networking Night at WHOOP in Boston last month to raise awareness and funds for patient and caregiver wellness resources. As we make progress towards our gifting goal, it's always the generosity of others who come together to support our cause that continues to be so inspirational. More about Harry Ehrlich: Award winning commercial Producer, Director and Photographer based in Boston, MA.?Having worked in storytelling for companies like Google, Bank of America, Staples, and TD Bank, his melding of producing and creativity behind the camera has led to many successful projects.?His passion for photography, and niche in candid capture, has led him towards 'capturing the moment' in event based photography for Fidelity, Nixon Peabody, and Y Combinator to name a few.?See a sampling of his work at?hehrlich.myportfolio.com or reach out to [email protected]??
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+7
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So excited to share the news that we’re part of Loco Taqueria & Oyster Bar Charity Margarita for August! All of August, stop by their South Boston location and order the Beach Bum Margarita, a delicious blend of espolon, aperol, cointreau, lime, agave, pineapple puree. $1 from every Beach Bum sold will benefit our foundation. To celebrate, join us on Saturday, August 31st, starting at 12pm, for a Margarita Meetup. Registration is optional, but encouraged. https://lnkd.in/es2TEN5D Thank you for your support!
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Last month, we had an amazing night of Cornhole & Networking to raise funds for patient and caregiver resources at WHOOP headquarters in Boston overlooking Fenway Park. We also celebrated our affiliate partnership with WHOOP in our efforts to provide wearable devices to caregivers of rare diseases who often times overlook their own wellness as they tirelessly care for others. A special thank you to all who came out to celebrate and support our cause as well as our sponsors: WHOOP MISSION ZenWTR TOST Beverages Shake Shack BRēZ Heal Squad x Maria Menounos Culture Pop Soda Downeast Cider House GORGIE OLLY PBC Barry's Costco Wholesale A special thank you to the entire team at WHOOP for hosting us and for the kindness you showed our foundation. More photos to come from this event! Stay tuned! #rarediseases #patientresources #caregiverwellness #boston
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Thank you to our latest sponsors Wave Collective Shake Shack and Heal Squad x Maria Menounos. We are thrilled to be hosting a night of fun at WHOOP HQ to raise funds for caregiver wellness. For tickets to play cornhole or a networking pass: sgfxwhoop.eventbrite.com
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Closing out June by bringing awareness to HHT and HHT Awareness Month. You can read more about this rare genetic blood vessel disorder from Medical News Today and Healthline Media. https://lnkd.in/eDzSn2wK #hht #hhtawareness #patientvoice
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Looking for a gift for that special someone? Give the gift of wellness that gives back to a caregiver. As part of our Wearables for Caregivers initiative, we've teamed up with WHOOP for a special offer. Purchase a WHOOP wearable device at a special promotional offer, and 10% goes back to our foundation and caregiver wellness resources. To access this offer: https://lnkd.in/eM2Anmir #wearablesforcaregivers #caregiverwellness #caregiverresources #rarediseasecaregivers #caregivers #whoop
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Join us for a Night of Giving at WHOOP Headquarters in Boston on July 25th from 6-8pm and Meet Grace Vinton, PR Pro, Patient Advocate, and Podcast Host of HITea with Grace. So thrilled she'll be joining us as a leader in digital health. For Tickets: https://lnkd.in/ej6KHjHq #digitalhealth #innovation #boston #fundraiser #caregivers #patientvoice #raredisease
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In conjunction with our Wearables for Caregivers initiative aimed at raising funds to provide fitness wearables for rare disease caregivers, we're excited to announce a Night of Giving hosted at WHOOP Headquarters, One Kenmore Square, Boston on July 25th from 6-8PM. Join us as a team of 2 for a Cornhole Tournament, or come to network with leaders in health, wellness, fitness and more. Our key sponsor, MISSION, will be providing cooling towels for all cornhole teams. Food and beverages will be served, as well as activities like a custom resistance band Tone & Tighten session offered by Barry's. Giveaways will be happening throughout the night from Five Iron Golf and more. Looking forward to seeing you there! For tickets: https://lnkd.in/eDhNT66T For more information about our Wearables for Caregivers initiative: https://lnkd.in/eQU2GeK3 Thank you to our sponsors: ZenWTR, BRēZ, Culture Pop Soda #wearablesforcaregivers #raredisease #caregivers #wearabletechnology #boston #bostonevent #serenelyguidedfoundation
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SGFxWHOOP is here! We are teaming up with WHOOP to raise funds for caregiver wellness. With each donation, we’ll be providing wearable devices to caregivers who need a boost in their wellness routine. With the help of the most advanced wearable device technology, WHOOP 4.0 is your personalized health coach. Click the link to donate to Wearables for Caregivers or to purchase a WHOOP for yourself ?? 10% of the proceeds will go towards caregiver wearables. https://lnkd.in/eQU2GeK3 #caregiverwellness #sgfxwhoop #wearabletechnology