Rare Disease Day The SDHB Coalition joins with many other people / organizations around the world in recognizing Rare Disease Day on February 28, 2025. The SDHB Coalition is working hard to find better treatment options for those that have Pheochromocytoma and Paraganglioma respectively. We thank you for your support...
SDHB PheoPara Coalition
研究服务
Doylestown，Pennsylvania 80 位关注者
A volunteer, not for profit organization, focused on education and research on Pheochromocytoma and Paraganglioma...
关于我们
The SDHB PheoPara Coalition is a volunteer, not for profit, organization focused on increasing awareness and sponsoring research on two devastating diseases, namely Pheochromocytoma and Paraganglioma respectively. Our goal is to find better treatment options and/or a cure...
- 网站
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https://www.sdhbcoalition.org
SDHB PheoPara Coalition的外部链接
- 所属行业
- 研究服务
- 规模
- 2-10 人
- 总部
- Doylestown，Pennsylvania
- 类型
- 非营利机构
- 创立
- 2016
地点
-
主要
获取路线
3943 Greystone Drive
US，Pennsylvania，Doylestown，18902
动态
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Earlier this year, the leadership of the SDHB Coalition and the Pheo Para Alliance met to explore ways of collaborating together with the goal of enhancing our ability to achieve the mission of both organizations respectively. The resources and expertise of both organizations will allow us to better serve our patients, researchers and health care professionals. The Pheo Para Alliance is hosting its 5th Annual Pheo Para Awareness Week from August 26th to August 30th. Please check out the activities planned and resources available on www.pheopara.org Thank you for your continued interest and support.