?? Be part of the leading healthcare innovators at HLTH Europe, where the health industry's future is on full display. Engage with a senior pan-European audience and explore groundbreaking opportunities to network—this is an event you won't want to overlook. Note that prices will rise after this Friday, March 21, 2025—register now to secure your spot at a lower rate! ?? Apply the discount code HE25_SAVVY250 to save €250! https://lnkd.in/eAMA7B-t #HLTHEurope #AskPatients
Savvy Cooperative
消费者服务
Queens，NY 3,409 位关注者
Companies have questions. Patients have answers. #AskPatients.
关于我们
?? Health innovators have questions ?? Patients + caregivers have answers ??Creators of the #AskPatients Lounge??, coming to a conference near you! Savvy is a marketplace for patient insights. We empower patients and their loved ones to share their experiences, provide input, and be fairly compensated for doing so. Our innovative platform helps people connect with healthcare industry professionals, so they can collaborate to create and implement patient-first solutions. At Savvy we practice what we preach by allowing patients to become co-op members, meaning they are partial owners of our organization! This ensures their voices are equally heard and their contributions are equitably rewarded. Our founders Jen and Ronnie understand what it’s like to be patients because they are patients! Diagnosed with chronic illnesses as children, together they have nearly 70 years of experience as patients. We are patients first, putting patients first!
- 网站
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https://savvy.coop
Savvy Cooperative的外部链接
- 所属行业
- 消费者服务
- 规模
- 11-50 人
- 总部
- Queens，NY
- 类型
- 合营企业
- 创立
- 2016
地点
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主要
获取路线
We are a distributed team
HQ
US，NY，Queens，11104
Savvy Cooperative员工
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Kathy Reagan Young
Multiple Sclerosis Advocate, Community Manager, Content Creator, Podcaster, Writer, Consultant
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Andrea Barbiero
Digital Health & Social Innovation Senior Researcher & Consultant ? Speaker ? Professor ? Topics: Digital Health - HealthTech - Valued Based Care ?…
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Lisa Davis Budzinski
Patient Perspective 37+ yrs Lived Experience as Caregiver, Paralegal Specialist in Criminology, legal & health research, BMJ reviewer, rare disease &…
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Ronnie Sharpe
Founder | Rare Disease | Patient Experience | Advisor | Speaker | You Need to #Askpatients | Create Better Products and Services Through…
动态
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Director of Outreach at Savvy Cooperative | Autoimmune Disease Patient | Working to ensure that no patient feels alone in their healthcare journey.
Today was an incredible day of learning and networking at #PatientsAsPartners2025! I had the pleasure of meeting so many passionate people dedicated to enhancing patient involvement in drug development. If you’re attending the conference, I’d love to connect! Stop by Savvy Cooperative's booth tomorrow to chat about: ? Patient-centric approaches in clinical research ? Strategies for meaningful patient engagement throughout? the clinical trial process ? Building long-term partnerships with patient communities Let’s work together to amplify the patient voice and drive better clinical outcomes for all. See you tomorrow! ?? #AskPatients #ClinicalTrials #PatientCentricity #Healthcare
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?? Join the most influential healthcare innovators at HLTH Europe, where the future of health takes centre stage. With a senior pan-European audience and groundbreaking opportunities to connect, you won’t want to miss it. Prices increase Friday, March 21, 2025 - register now and save! ??Use discount code HE25_SAVVY250 to save €250!?https://lnkd.in/eAMA7B-t
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Director of Outreach at Savvy Cooperative | Autoimmune Disease Patient | Working to ensure that no patient feels alone in their healthcare journey.
It’s a privilege to contribute to this HIT Like a Girl Pod series alongside these remarkable women. ?? #AskPatients #WomenInHealthTech
??? Meet Demi R., the newest guest host of HIT Like a Girl Pod! ?? With a new administration, the #healthcare industry is poised for significant shifts. How do we #adapt, #innovate, and #lead through #change? That’s the focus of this special series on HIT Like a Girl, hosted by Demi Radeva, the newest guest host and a powerhouse in health system financing and innovation. ?? In this series, Demi shares her journey and sits down with 6 incredible women experts, each with their own industry perspective, to explore how they’re navigating change, driving innovation, and shaping the future of healthcare. Out Now: ??? Episode 1: Demi R. | Akros Advisory “#Change is inevitable, but it’s how we respond that defines our impact.” Here’s what you can expect over the coming weeks: ??? Episode 2: Shirel Daniel | Extrico Health “In a shifting landscape, #clarity and #storytelling are more important than ever.” ??? Episode 3: Molly Schreiber | Savvy Cooperative “#Patients are the heart of healthcare—their voices must guide change.” ??? Episode 4: Shriya Palekar | CLEAR “#Startups are #agile enough to lead the charge in adapting to new #policies.” ??? Episode 5: Patty Hayward | Talkdesk “#AI isn’t just a tool—it’s a bridge to better #patient #engagement in uncertain times.” ??? Episode 6: Kim Perry |emtelligent “#Data is the foundation of change—how we use it will determine our success.” ??? Episode 7: Kristen Valdes | b.well Connected Health “#Interoperability is the key to #resilience in a changing regulatory environment.” This series isn’t just about change—it’s about?#listening to the voices of #women who are redefining what it means to lead, adapt, and innovate in healthcare. Their stories are a testament to the power of boldness, collaboration, and resilience in driving #meaningful #impact. ?? ?? Tune in to hear Demi and these women share their strategies for navigating in a new era. Links below! ?? Apple: https://lnkd.in/diTWVZtf Spotify: https://lnkd.in/gCWXYQ5G #HITLikeAGirl #HealthcareInnovation #NavigatingChange #WomenInHealthTech #BIPOCFounders #PatientData #DemiRadeva #PodcastAlert #BoldMoves | Joy Rios | Like a Girl Media | Health Podcast Network All episodes in this series were recorded at #ViVE2025
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Founder & CEO | Making Patient Insights Actionable for Pharma, AI & Healthcare Innovation | #AskPatients
About last week. On stage at #SXSW, I was talking about the future of healthcare. Off stage, I was fighting to access my own care. What you wouldn’t have seen? Me, frantically calling pharmacies, navigating hospital bureaucracy, and racing across Austin to get one urgent dose of medication. Here’s what happened: ?? Tuesday: Routine doctor’s appointment in New York. ?? Wednesday: Flew to Austin. That afternoon, my doctor’s nurse called. Based on my labs, I needed medication immediately. ?? Problem: I was now in Texas. 1?? Step 1: Finding the Medication Naturally, it was a specialty Rx. I called CVS. Walgreens. Hospital pharmacies. Nothing. One hospital told me they probably had it—but only if I was admitted as inpatient or went to the ER. 2?? Step 2: Accessing My Own Medical Records I thought: If I have to go to the ER, fine.? But my provider’s practice at a major NY hospital doesn’t use a patient portal. I couldn’t even pull up my own health records if I wanted to. ?? Called medical records. They told me to: ?? Download a form from their website. ?? Print, sign, and send it back. ?? Wait in a queue. It would be processed next week. I said: I need medication within 24 hours. They said: Ma’am, there’s a line (but they did say they would try to help). 3?? Step 3: The Specialty Pharmacy Maze My nurse worked some magic and found a specialty pharmacy distributor. ?? She called it in. ?? They said delivery wasn’t available until the next afternoon—too late. ?? They said I could pick it up myself at 10 AM. Perfect. 4?? Step 4: The Pickup That Wasn’t There ?? Thursday, 10 AM: At the pharmacy. No medication. It’s a distribution center, they can’t help. Called the 800 number. They told me it might not be available until next week. I begged them to help. After a long hold, they said a delivery would be in a few hours. They called as soon as it arrived. I left my meetings, raced across Austin, grabbed it, and in the car ride, took it out of the ice pack to warm up so I could inject as soon as I got back. 4?? Step 5: Time for a Stab ??♀? With five minutes before my next meeting: ?? I ran to my hotel room. ?? Ripped open an alcohol swab with my teeth. ?? Aspirated the syringe. ?? Stabbed myself. ?? Raced back just as my meeting started. ?? This is the #PatientExperience. None of this shows up in my health record or claims data. But this is the reality of managing a condition—behind the scenes, between the appointments, between the systems that were supposedly built to help us. And this is exactly why we need Foundational Patient Experience (FPE)? data. If you’re relying solely on medical records and claims data to understand the patient journey, you’re missing the real story. The delays, barriers, workarounds, and sacrifices patients make every single day don’t show up in your datasets—but they define the experience. If your data isn’t capturing what patients actually go through, how are you really designing for them? #AskPatients
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??? Patient Leaders: Applications are now open for the #HealtheVoices25 conference for online health advocates, November 7-9 in Princeton, NJ! This year’s conference will feature exciting opportunities to learn, share, create and connect with passionate advocates representing dozens of health communities. All attendees will have their travel and accommodations covered by the conference, and speakers will be compensated for their time. ??? APPLY NOW to attend or speak: https://lnkd.in/eEgG6YyD by March 10. We are excited to be partnering with Johnson & Johnson on this amazing event, and we hope to see you there! ?? #AskPatients #HealtheVoices25 #Caregivers #Patients #Advocacy
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In honor of #RareDiseaseDay, we invite you to read our CEO Jen's inspiring story ?? It highlights the importance of understanding patient experiences and the impact we can make together. If you're ready to #AskPatients and explore how we can collaborate to drive meaningful change, don't hesitate to reach out! ??? Let's connect and make a difference together. #RareDisease #Collaboration #HealthcareInnovation
Founder & CEO | Making Patient Insights Actionable for Pharma, AI & Healthcare Innovation | #AskPatients
Twelve years ago, I had brain surgery to remove a rare tumor. So rare, I never got an official diagnosis. Tomorrow is #RareDiseaseDay, so in honor of that, let me tell you some things about living with #RareDisease. When people hear I had brain surgery, they assume it was the hardest thing I’ve been through as a patient. But in reality, it was something we could take out. The tumor was removed, my body went haywire for about 18 months, and then…it never came back. Autoimmune diseases don’t work like that, of which I have many. It’s a daily guessing game of how you’re going to feel. Now spread that out over 40 years, and you may start to imagine how hard it is to live with a rogue condition—or in my case, multiple conditions. ?? It takes an average of FIVE YEARS to get a rare disease diagnosis. Some people wait much longer—if they get one at all. I’ve been diagnosed with five rare diseases—one that never got an official name, and others that I was fortunate to get diagnosed quickly. I had: ? Access to top-tier health systems in Boston, NYC and LA ? Specialists who knew what to look for ? A constellation of symptoms that made my case recognizable Not everyone is that lucky. And even when you do get a diagnosis, it doesn’t mean the challenges stop. ?? I’ve been in a wheelchair. ?? I’ve had injections into my eyeballs. ?? I’ve had grafts made from my own belly fat. ?? I’ve had more than 100 injections in my jaw to keep it opening. ?? I’ve cycled through countless treatments trying to find something that worked. ?? I've developed major allergies to 7 classes of drugs. ?? I've withdrawn from college when I was too sick. ?? I've designed my life for flexibility around the unknown. But there are parts of the patient experience that rarely get talked about. Like the small things that bring comfort when everything else feels out of control. For me? It’s canned peaches (see picture to see what joy looks like). During every hospital stay, I look forward to them. My family knows it’s my guilty pleasure, and at some point, I introduced them to the song Peaches by The Presidents of the United States. It's a throwback, and became a thing. It’s silly, but it's meaningful. Because when you spend so much of your life in and out of hospitals, the little things that bring you joy become a big deal. And that’s why patient insights matter. ?? A diagnosis doesn’t tell you: ? What small moments bring comfort in a hospital stay. ? What trade-offs patients make just to function every day. ? Why they stop treatment, why they skip appointments, or why they feel unseen in the healthcare system. This is why at Savvy Cooperative, we focus on Foundational Patient Experience? data—because a rare disease journey isn’t just about getting diagnosed—it’s about everything that comes before and after too. ?? If you work in rare disease, how do you make sure you’re learning from patients beyond just their diagnosis? #AskPatients #PatientExperience #Pharma
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Director of Outreach at Savvy Cooperative | Autoimmune Disease Patient | Working to ensure that no patient feels alone in their healthcare journey.
?? What an incredible experience at this year's #SCOPESummit! Our Ask Patients Lounge?? was buzzing with energy! We had appointments booked up, but it was so exciting to see attendees eagerly asking, "Is this where I can talk to a real patient?!" ?? A huge shoutout to KPS Life for supporting our lounge! ?? And a special thank you to everyone at SCOPE, especially Micah Lieberman, for continually valuing the work we do at Savvy Cooperative and finding ways to amplify it throughout the conference. ?? Conferences fly by, so if we didn’t get a chance to connect, please shoot me a message! I’d love to schedule some time to chat about how we can work together to improve the lives of more patients. ???? #AskPatients
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Director of Outreach at Savvy Cooperative | Autoimmune Disease Patient | Working to ensure that no patient feels alone in their healthcare journey.
Companies often talk about patients, but when was the last time you truly connected with one? ?The clock is ticking at #SCOPE! Right now, Savvy Cooperative's exclusive Ask Patients Lounge? is live at the #SCOPESummit! This is not your typical panel or focus group—it's a unique opportunity to engage with real patients who are eager to share their experiences. No scripts, no agendas—just genuine conversations happening right now. If you’ve ever wanted unfiltered insights directly from patients, you need to come to booth 303 before it’s too late! ??Whether you’re just curious or ready for an in-depth discussion, you will gain invaluable knowledge that could shape your work. Feeling hesitant? Just show up and immerse yourself in the discussion. The best insights happen when we open ourselves to listening. This is your moment—don’t miss out! See you at Booth 303! ?? Or reserve your time with a Savvy patient here: www.savvy.coop/scope #AskPatients #PatientInsights
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Don’t miss this opportunity to hear from our CEO, Jen Horonjeff, and be part of a community that’s driving the future of health tech.? #AskPatients
Mark Your Calendars for Health2Tech NYC on February 13! We often focus on involving healthcare professionals in creating tech solutions, but let’s not forget the most important voice—the patient’s. That’s why I’m excited to announce our amazing speaker, Jen Horonjeff, who will share insights on “Ask Patients: The Key to Building Healthtech That Drives Impact.” Every digital health startup founder should hear this talk, so register now to secure your spot. We can’t wait to see you there! #digitalhealth #patientsfirst #healthtech https://lu.ma/58a09m99
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