?? It’s #GeneticCounselorAwarenessDay! ?? A huge thank you to genetic counselors for their vital role in patient care—helping individuals understand genetic conditions, interpret results, and make empowered health decisions. Your work changes lives! ???? #GCChat #HealthcareHeroes
关于我们
RUNX1 Research Program is the world's only foundation supporting patients with RUNX1 Familial Platelet Disorder (RUNX1-FPD), a rare hereditary disease that affects blood platelets and can lead to other health concerns. Most notably, individuals with RUNX1-FPD have a 30 times higher risk of developing blood cancer compared to the general population. We fund innovative research focused on blood cancer prevention, and provide educational initiatives as well as opportunities for patients and their families to share their voices with researchers and clinicians.
- 网站
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https://www.runx1-fpd.org
RUNX1 Research Program的外部链接
- 所属行业
- 慈善筹款服务
- 规模
- 2-10 人
- 总部
- Santa Barbara,Ca
- 类型
- 非营利机构
- 创立
- 2015
- 领域
- Cancer Research、Research、Non-Profit和Medical
地点
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主要
1482 East Valley Road
137
US,Ca,Santa Barbara,93109
RUNX1 Research Program员工
动态
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?????? ?????????????? ???????????????????? ???? ??????! Apply for the Early Career Investigator Grant by Dec 19th, read an inspiring story about a patient and her fiance raising $21K+ for RRP, and hear updates from The National Institutes of Health RUNX1 Natural History Study. Read more here: https://bit.ly/3YuHgMq
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?? ???????????????? ?????????? ?????????????????????? ?????? ??????????-?????? ????????????????! ?? The National Cancer Institute (NCI) is conducting a Phase 1b trial to treat RUNX1-FPD patients with imatinib. This study aims to find the safest dose that can be tolerated while potentially increasing RUNX1 protein levels, and if imatinib can improve blood health and reduce cancer risk in RUNX1-FPD patients. ?? Learn more: https://lnkd.in/gheftDxA #RUNX1FPD #ClinicalTrials #BloodCancerResearch #Imatinib
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Please join us ?????????? at 12pm ET for an update on The National Institutes of Health's #RUNX1 Natural History Study Update* with Dr. David Young. Register here: https://bit.ly/4fibaKm *???????????? ????????: ???????? ?????????????? ???? ???????????????? ?????? ?? ?????????????? ????????????????.
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Join us for the second presentation on this clinical trial, sponsored by RRP at MD Anderson Cancer Center, evaluating the safety and feasibility of collecting and banking blood stem cells from #RUNX1FPD patients. Following the presentation will be a Q&A session with Dr. Chitra Hosing, principal investigator on the study. If you’re interested in learning more about this important study, register today! https://lnkd.in/gW6tgmTQ #ClinicalTrials #Hematology
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???????? ????????! Join a Zoom meeting on Wednesday, October 23rd at 4 p.m. ET with Dr. Paul Liu of the National Human Genome Research Institute (NHGRI) to hear the latest research findings from The National Institutes of Health's RUNX1 Natural History Study. Register here: https://bit.ly/47u8jvr
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?? ???????????????? ?????????????????????? ?????? ??????????-?????? ????????????????! ?? The NIH RUNX1 Clinical Research study offers a unique chance to monitor cancer development from a pre-cancer stage in real-time. The goal? To identify factors that differentiate those who develop cancer from those who don’t, paving the way for better risk assessment and prevention strategies. ?? Learn more: https://lnkd.in/gprt3--Z #RUNX1FPD #BloodCancerResearch #NIHStudy
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RRP and @AlexsLemonade are accepting applications for the Early Career Investigator Grant now through Thurs, Dec 19th, before 8 pm ET. The grant supports research to prevent #preleukemia from progressing to #leukemia in #RUNX1FPD patients. Apply today: https://bit.ly/3NkdHbk
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Join us on Wednesday, October 23rd at 4 p.m. EDT for a special Zoom presentation by the National Institutes of Health’s Dr. Paul Liu, who will provide the latest updates on clinical and genomic data from the NIH RUNX1 Natural History Study. If you’re studying RUNX1-FPD or providing care for patients with this condition, this is a must-attend session. ?? Register here: https://bit.ly/47u8jvr
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The RUNX1 Research Program is proud to partner with the American Cancer Society to launch the LEAP grant program, which offers over $2.8 million in funding. This initiative is dedicated to supporting innovative research in the interception and prevention of blood cancers, particularly for individuals with #RUNX1FPD. If you’re conducting research in this critical area, we encourage you to apply by Oct 29. Find out more and apply here: https://bit.ly/liLEAPGrant #CancerResearch #LeukemiaPrevention #RUNX1FPD #GrantOpportunity