Robert Packard Center for ALS Research at Johns Hopkins

The Packard Center mourns the loss of John Feinstein, the acclaimed sports commentator and author whose influence extended far beyond his celebrated 47-year career at The Washington Post and his 48 bestselling books. Feinstein formed a special bond with the Packard Center through his advocacy for ALS research. His powerful book, “Caddy for Life,” which chronicled Bruce Edwards’ journey with ALS while serving as caddy for golf legend Tom Watson, resonated with readers nationwide, spending several weeks on the New York Times Bestsellers list and selling over 800,000 copies. Reflecting on this partnership in a 2010 Golf Digest feature, Feinstein wrote, “Because Bruce was also my friend and because his battle with ALS and the book I wrote about him and his friendship with Watson (Caddy For Life) brought me into the ALS world, too, I went to Watson six years ago with an idea: an annual golf tournament in Bruce’s name to raise money for research. Watson not only embraced the idea instantly, he knew exactly where he wanted the money to go: The Robert Packard Center for ALS Research at Johns Hopkins University.” https://lnkd.in/eSqaipBG

We were pleased to welcome David Hopkins, Vice President of Community Investments, at Hop On A Cure to our offices today. Dave received a lab tour from Dr. Alyssa Coyne and Dr. Jeff Rothstein and met with the Packard Center team to outline upcoming projects and future collaborations. #thehopeisinthescience

Happy New Year from the Robert Packard Center!

Today is the last day to make a tax-deductible gift in 2024 to support our ALS research efforts. The Packard Center Board of Governors is extending a matching gift this holiday season. All gifts made through December 31, 2024, will be matched dollar-for-dollar up to a total of $125,000. Please make your online gift by 11:59pm (EST) or mail a checked dated and postmarked today to count for 2024. Thank you for your support. Happy New Year! To donate: https://lnkd.in/dZWJdF2N

We are grateful to our dedicated advocates and generous donors for their unwavering support throughout 2024. As the Packard Center's 25th Anniversary approaches, we look forward to celebrating our progress and unveiling plans for our next chapter. Wishing you and your family a healthy, safe holiday season. We are excited about the opportunities that lie ahead in the new year! The hope is in the science. To support us with a year end gift: https://lnkd.in/dZWJdF2N

We enjoyed hearing from our Hopkins colleague, Dr. Ambereen Mehta, who spoke today at the Allied Professionals Forum in Montreal Canada. Dr. Mehta is a palliative care specialist at the Johns Hopkins Center for ALS Specialty Care and she presented on palliative care strategies for ALS clinicians. She pointed out that listening is the one of the most important strategies a clinican can utilize when working with people living with ALS.

Thank you for making our Giving Tuesday campaign a success! We are profoundly grateful for your generosity. Your support is crucial and makes a significant difference in advancing our research and fostering collaboration. Wishing you a holiday season filled with hope and joy. Your support means the world to us!

Please consider the Packard Center when making your Giving Tuesday decisions. Gifts made today through December 31 will be matched dollar-for-dollar up to a total of $125,000. Give the gift of hope on this national day of giving. #thehopeisinthescience To donate: www.packardcenter.org/give

We are excited to be a part of the The International Alliance of ALS/MND Associations 2024 Alliance Meeting in Montreal this week. This week is all about bringing the global ALS community together. #thehopeisinthescience

During this special time of year, it is important to pause and reflect on those things that are most meaningful to us. At the Robert Packard Center for ALS Research, we are grateful for our dedicated community of supporters and partners. Your contributions enable our global network of researchers to continue their innovative projects in an effort to end ALS, and?you make our progress possible.