Robert Packard Center for ALS Research at Johns Hopkins

During this special time of year, it is important to pause and reflect on those things that are most meaningful to us. At the Robert Packard Center for ALS Research, we are grateful for our dedicated community of supporters and partners. Your contributions enable our global network of researchers to continue their innovative projects in an effort to end ALS, and?you make our progress possible.

Give the gift of hope on Tuesday, December 3, 2024. Make a gift to the Packard Center on Giving Tuesday. www.packardcenter.org/give All gifts made will be matched dollar-for-dollar up to a total of $125,000.

Zac Brown Band's John Driskell Hopkins on fighting ALS through music Diagnosed with ALS in 2021, John Driskell Hopkins and his wife started the Hop On A Cure foundation to raise awareness and funds. This year, they will have donated $3 million for grants and research, including the Packard Center. We are proud to continue our partnership with this dedicated and talented group of advocates. https://lnkd.in/eSS-GEvq

Zac Brown Band's John Driskell Hopkins on fighting ALS through music Diagnosed with ALS in 2021, John Driskell Hopkins and his wife started the Hop On A Cure foundation to raise awareness and funds. This year, they will have donated $3 million for grants and research, including the Packard Center. We are proud to continue our partnership with this dedicated and talented group of advocates. https://lnkd.in/eSS-GEvq

November is National Family Caregivers Month. The Packard Center recognizes and honors the caregivers who provide love and support to their loved ones with suffering with ALS.

We had a great time yesterday with our friends from Greater Baltimore Community Partners(GBCP) at their 3rd Annual Charity Golf Tournament in support of the Packard Center. Their support makes a huge impact on our mission, and we’re so grateful to have such dedicated community partners.

The Packard Center is hiring a part-time Communications Coordinator. This contract position plays a critical role in advancing the Packard Center’s communication, marketing, and fundraising initiatives by developing both print and electronic resources. Responsibilities will include managing content creation for the Center’s website and social media channels, as well as the quarterly e-newsletter, ALS Alert. Please submit cover letter and resume to [email protected] Read more: https://lnkd.in/edrc4y86

Congratulations to Packard Center founder and Executive Director, Jeffrey Rothstein on his appointment to the National Academy of Medicine. Election to NAM is considered one of the highest honors in health and medicine. Current members elect new members based on their major contributions to advancements in medical science, health care and public health. https://lnkd.in/e4ayrWM6

"But people need to know that ALS is not incurable; it is underfunded." - John Driskell Hopkins Zac Brown Band's John Driskell Hopkins opens up about his ALS diagnosis in a moving Rolling Stone interview. He's not just sharing his story – he's shining a light on the critical need for ALS research funding. Read more about Hopkins' journey, how he's continuing to tour with ZBB, and his mission to raise awareness: https://lnkd.in/eZJDHQpv #ALSAwareness #ZacBrownBand #JohnDriskellHopkins #packardcenter #thehopeisinthescience

We are excited to welcome a committed group of pALS, caregivers and family members to our first ALS Clinical Research Learning Institute this week at Johns Hopkins, sponsored by the Packard Center. This two-day program pioneered by the Northeast ALS Consortium (NEALS) is designed to provide education and training to individuals impacted by ALS who are interested in clinical research and the therapy development process.