Two weeks from today Rare And Black will host a screening of Immune Deficiency Foundation’s documentary Compromised: life without immunity which features our Executive Director’s story about living with primary immune deficiency. We hope you can join in person if you’re in St. Louis or register for online access if you’re not. It is impactful, informative and purposeful. I hope you’ll join us!
关于我们
"At Rare And Black, our mission is to empower and uplift Black patients living with rare disorders by raising awareness, promoting advocacy, driving legislative change, and improving access to crucial resources. Through unwavering dedication and collaborative efforts, we strive to eliminate the disparities and inequities faced by these individuals, ensuring they receive the support and care they deserve. By amplifying their voices and driving systemic change, we envision a future where every Black patient with a rare disorder can live a life of dignity, understanding, and equal opportunity."
- 所属行业
- 非盈利组织
- 规模
- 2-10 人
- 总部
- St Louis，Missouri
- 类型
- 非营利机构
- 创立
- 2020
地点
-
主要
获取路线
3139 Olive St
US，Missouri，St Louis，63103