Today is #NationalDoctorsDay! Thank you to all the doctors and health care workers who work around the clock to provide the best care possible for people with PH. #PHoreverThankful
Pulmonary Hypertension Association
非盈利组织
Our mission is to extend and improve the lives of those affected by pulmonary hypertension.
关于我们
Headquartered in Silver Spring, MD, the Pulmonary Hypertension Association (PHA) is the country’s oldest and largest nonprofit patient association dedicated to the pulmonary hypertension (PH) community. Pulmonary hypertension is a rare, chronic and life-threatening disease of the lungs for which no cure currently exists. PHA’s mission is to extend and improve the lives of those affected by PH. To achieve this mission, PHA engages people with PH and their families, caregivers, health care providers, and researchers worldwide who work together to advocate for the PH community, provide support offer up-to-date education and information on PH, improve quality patient care, and fund and promote research. PHA seeks mission-driven, talented professionals to join our team of dedicated employees working to advance our mission and improve the quality of life of those who live with this deadly lung disease.
- 网站
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https://www.PHAssociation.org
Pulmonary Hypertension Association的外部链接
- 所属行业
- 非盈利组织
- 规模
- 11-50 人
- 总部
- Washington D.C.
- 类型
- 非营利机构
- 创立
- 1991
- 领域
- nonprofit、rare disease、medical education、pulmonary hypertension、patients、outreach、accreditation、pulmonary arterial hypertension、pulmonary hypertension due to lung disease、chronic thromboembolic pulmonary hypertension、CTEPH、pulmonary hypertension due to unknown causes、PH、PAH和pulmonary hypertension due to left heart disease
地点
Pulmonary Hypertension Association员工
动态
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In the latest episode of PH Insights, Naomi Habib, co-director of the Arizona Pulmonary Specialists PH Center of Excellence and a recent co-chair of the PH Community Workshop in Phoenix, shares why PH community workshops are key to advancing PH knowledge and building community. Listen now to learn how workshops can empower, engage and educate members of the PH community. https://ow.ly/QEk450VmgIU
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Looking to make your next career move? The PHA Career Center is where top health care professionals connect with leading employers. Whether you're a physician, nurse, researcher or allied health professional, you can explore job opportunities and decide which employers can view your information. Upload your CV or create a career profile today and take control of your job search. Set up your PHA Career Center account now at https://lnkd.in/eTgVBcTF?
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The second annual AnMed O2breathe Walk is one month away! Join the Anderson, South Carolina PH community on Saturday, April 26, at the AnMed North Campus to:? ??Celebrate the PH community.? ??Run or walk to spread PH awareness.? ??Raise funds towards a cure.? ?The walk is free to attend and is open to all those affected by PH. Learn more about the event and register.? https://lnkd.in/eeDsXM3P
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Tell Congress: Americans can’t afford cuts to Medicaid. The House is currently discussing significant cuts to Medicaid and the Children’s Health Insurance Program (CHIP). These programs provide health coverage to many of the most vulnerable members of the PH community. We must protect health care access for those who need it most–cuts to Medicaid would harm to children, older adults and people with disabilities. Contact your members of Congress today and tell them: No cuts to Medicaid!? https://ow.ly/xOHR50Vmg4S
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PHA, in partnership with the National Scleroderma Foundation, will host the “Navigating and Understanding the Post Lung Transplant Journey,” webinar on Tuesday, Apr. 15, at 4 p.m. EDT. Experts Maria M. Crespo, medical director at the University of Pennsylvania and Derek Zaleski, a physical therapist at the university’s lung transplant program, will discuss expectations and guidelines post-transplant. Evan Rood, a lung and heart transplant recipient and patient advocate, will also share his experience. Register now for valuable insights and to have your transplantation questions answered. https://lnkd.in/dYCSXwM
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PHA’s Health Disparities in PH Research Award supports research focused on early diagnosis, education and improving clinical outcomes and treatments for people with PH affected by health inequities. The grant funds up to $50,000 a year for two years.?Deadline: April 30, 11:59 p.m. EDT. Apply now.?https://ow.ly/cN4250Vmfcb?
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Being a PHA support group leader brings Sophia Esteves joy, but her journey wasn’t always easy.?? ?After her diagnosis, she struggled with negative self-talk and accepting her new reality. Focusing on what she could control helped her find hope.? ?Honored with the Outstanding PHA Support Group Leader Award at PHA 2024, Sophia is grateful to empower others and amplify patient voices.?? No one should face PH alone. Support PHA’s programs and resources to help patients thrive. Make a gift today. https://ow.ly/1sBT50Vmfw5
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Join the Alliance for Pulmonary Hypertension's “What’s New in PH,” webinar tomorrow, March 26, 19:30 CET/12:30 p.m. EDT. Get the latest updates on new research, treatments and insights from the PVRI Congress 2025. The webinar includes extended discussions, flexible drop-in participation and real-time interpretation in 60 languages. No registration is required—simply join via Zoom at the scheduled time: https://lnkd.in/gxaG3j27.
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Time is running out to register for virtual advocacy for World PH Day. On May 7, advocates from across the country will meet with members of Congress over Zoom to ensure PH remains a priority in policy discussions. Registration closes in three days on Friday, March 28. If you would like to participate in advocacy from home, now is the time to sign up. No prior experience is needed. PHA will provide training and resources to make you feel confident in your meetings. Register today and help bring PH awareness to Congress. https://ow.ly/xoM450Vme0f
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