Profound Autism Alliance

It's Washington Wednesday, which means we are on the ground in our nation's capital, talking with members of Congress about the realities of profound autism. It's very important that they hear YOUR STORIES as their constituents. Please take a moment to let your legislators know that cuts to services and research will hurt our population, which is already falling behind. You can do so here: https://ow.ly/95nE50VguaH.

??The very first Profound Autism Day is March 17, 2025. We are so proud and excited that (so far) Texas, New Jersey, New York, Oklahoma, Massachusetts, and Kentucky are all recognizing the autistic population that requires lifetime, 24/7 care. Recognition is the the first step in meaningful advocacy for services and supports that people with profound autism need. Don't see your state? It's not too late! Reach out to our state officials right here: ?? https://lnkd.in/eFKmam8B

Oklahoma Profound Autism Advocates! REMINDER: Don't miss our next state advocacy meeting TONIGHT, March 11, 2025, at 7:00 PM Central. We have much to do! Sign up here: ??https://lnkd.in/eQfbfZaC

Our Profound Autism Day Pop-Up Shop is open through TODAY. You can visit right here: ??https://ow.ly/nR7y50Vetew.

Back by popular demand! Our Profound Autism Day Pop-Up Shop is open through Tuesday. You can visit right here: ??https://ow.ly/jXsV50Vet9B. Thank you for supporting the very first Profound Autism Day! You can learn more at ??https://ow.ly/nqXU50Vet9x.

From the article: “It is unacceptable that 2,500 adults are still waiting for services. The Turning 22 cliff is worse than ever,” said Sullivan, referring to the juncture when individuals lose access to care. “Caregivers, especially single parents, are struggling. People with profound autism and complex medical conditions are often left behind.” https://ow.ly/N6nz50Vec3k

A Special Opportunity To Give Back: Caregivers of people with profound autism frequently struggle to get away because of the cost of arranging care for their loved ones. Add related travel and registration costs, and many find attending impossible. Please help us raise funds to provide scholarships to the 2025 Profound Autism Summit for caregivers who need financial assistance. Any donation, big or small, is deeply appreciated. ??https://ow.ly/Qmzy50V3rB3

We are thrilled with the reaction to the first Profound Autism Day. Proclamations are rolling in from all around the country, and our pop-up merchandise shop was an overwhelming success. Because many of you have asked for another opportunity to purchase Profound Autism Day swag, we are reopening our pop-up store for a limited time. Get your orders in by next Tuesday! You can do so here: ??https://lnkd.in/eWgN3Uex

Profound autism siblings--join us for our annual Sibling Hill Day on July 14th! We will be meeting with our legislators in person and virtually to share our stories and to discuss legislation that impacts our siblings' lives. This is an incredible opportunity to spend time with other siblings while making the world a better place for our loved ones with profound autism. RSVP here: https://lnkd.in/e3hZNeST

Oklahoma Profound Autism Advocates! REMINDER: Don't miss our next state advocacy meeting on March 11, 2025, at 7:00 PM Central. We have much to do! Sign up here: ??https://lnkd.in/eQfbfZaC