??? Zero Discrimination Day ??? At PREVENTABLE, we stand for equal access to healthcare for everyone, especially those living with rare diseases. No one should face discrimination when seeking diagnosis, treatment, or support. Everyone deserves an inclusive and fair healthcare system! ?? Let’s raise awareness and work towards a future where no one is left behind! Join us in advocating for equal rights, better policies, and improved healthcare for all. #ZeroDiscriminationDay #PREVENTABLE #KnowAboutRTRS?#RareTumourRiskSyndromes #RTRS #RareDiseases #EqualHealthcare #HealthcareForAll #TogetherForRare
关于我们
PREVENTABLE was created to assess the clinical, social and financial impact of applying multidisciplinary and specialized care to prevent advanced disease in families suffering from rare tumour risk syndromes (RTRS). RTRS are a group of rare diseases genetically determined from birth and that affect approximately 5 in 10 000 people or less worldwide. Patients suffering from RTRS have high risk for developing cancer and for transmitting the disease to their descendants. Particularly if undiagnosed or non-surveilled, RTRS patients can develop particularly aggressive cancers. This project has received funding from the European Health and Digital Executive Agency (HaDEA) under the European Union's Horizon Europe Programme.
- 网站
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https://preventable.eu/
Preventable_EU的外部链接
- 所属行业
- 医院和医疗保健
- 规模
- 11-50 人
- 类型
- 合营企业
- 创立
- 2023
Preventable_EU员工
动态
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?? Today is Rare Disease Day! ?? At PREVENTABLE, we stand with the rare disease community, raising awareness and advancing research to improve lives. Together, we can drive innovation, support patients, and make a difference in tackling Rare Tumour Risk Syndromes (RTRS). ?? Know about RTRS. Support research. Advocate for change. ?? Read our Newsletter #4 - Special Edition: https://lnkd.in/dqpEm6kf ?? Join us in spreading awareness! #RareDiseaseDay #PREVENTABLE #KnowAboutRTRS?#RareTumourRiskSyndromes #RTRS #RareDiseases #Research #Healthcare #TogetherForRare
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?? Today is Rare Disease Day! ?? ?? Join our webinar now! Last chance to register—registration closes at 12:00 Portugal time! The webinar starts at 14:00 Portugal time, so don’t miss out on this important discussion on Rare Tumour Risk Syndromes (RTRS) and groundbreaking research. ?? Scan the QR code to register and be part of the conversation! #RareDiseaseDay #PREVENTABLE #KnowAboutRTRS?#RareTumourRiskSyndromes #RTRS #RareDiseases #Research #Healthcare #TogetherForRare #Webinar
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?? Today is Rare Disease Day! ?? At PREVENTABLE, we stand with the rare disease community, raising awareness and advancing research to improve lives. Together, we can drive innovation, support patients, and make a difference in tackling Rare Tumour Risk Syndromes (RTRS). ?? Know about RTRS. Support research. Advocate for change. ?? Join us for our upcoming webinar today at 14:00 Portugal time! Scan the QR code to register and be part of the conversation. #RareDiseaseDay #PREVENTABLE #KnowAboutRTRS?#RareTumourRiskSyndromes #RTRS #RareDiseases #Research #Healthcare #TogetherForRare
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?? Today is Rare Disease Day! ?? At PREVENTABLE, we stand with the rare disease community, raising awareness and advancing research to improve lives. Together, we can drive innovation, support patients, and make a difference in tackling Rare Tumour Risk Syndromes (RTRS). ?? Know about RTRS. Support research. Advocate for change. ?? Join us in spreading awareness! #RareDiseaseDay #PREVENTABLE #KnowAboutRTRS?#RareTumourRiskSyndromes #RTRS #RareDiseases #Research #Healthcare #TogetherForRare
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?? Today is Rare Disease Day! ?? At PREVENTABLE, we stand with the rare disease community, raising awareness and advancing research to improve lives. Together, we can drive innovation, support patients, and make a difference in tackling Rare Tumour Risk Syndromes (RTRS). ?? Know about RTRS. Support research. Advocate for change. ?? Read our Newsletter #4 - Special Edition: https://lnkd.in/dqpEm6kf ?? Join us in spreading awareness! #RareDiseaseDay #PREVENTABLE #KnowAboutRTRS?#RareTumourRiskSyndromes #RTRS #RareDiseases #Research #Healthcare #TogetherForRare
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?? Our 4th Newsletter is here – a special Rare Disease Day edition! ?? Read it now: https://lnkd.in/dqpEm6kf ?? Not on our mailing list yet? Subscribe today for exclusive updates and be part of our RTRS-conscious community. Stay informed, stay connected! ?? Subscribe here: https://lnkd.in/gM93aEiS #PREVENTABLE #HorizonEurope #Healthcare #Research #RareDiseases #RareTumourRiskSyndromes #RTRS #KnowAboutRTRS #Newsletter #No4
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?? Stay Updated with the Latest in RTRS Research & Awareness! ?? Don't miss out on key updates, research breakthroughs, upcoming events, and inspiring stories from the PREVENTABLE community! Subscribe to our newsletter and be part of the journey to advance knowledge and awareness of Rare Tumour Risk Syndromes (RTRS). ?? Sign up now and stay informed! https://lnkd.in/gM93aEiS Join us in making a difference! ?? #SubscribeNow #PREVENTABLE #RTRS #RareTumorRiskSyndromes #RareDiseases #RTRSResearch #StayInformed #Newsletter
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?? Are You Excited for Preventalk 3? ?? ?? The wait is almost over! Preventalk 3 is coming this May 2025, bringing groundbreaking discussions on the Preventable project. ?? Who will be speaking? What new insights will be shared? Stay tuned for exciting updates! ?? Mark your calendars and get ready! #PREVENTABLE #RTRS #RareTumorRiskSyndromes #RareDiseases #Preventalk3 #ComingSoon #CancerPrevention #RTRS #ScienceAndAwareness #StayTuned
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?????? PREVENTABLE Impact #5 ?? Healthcare should start where people are - not just in hospitals! We are shifting the focus to community-based, people-centered care that prioritizes prevention, accessibility, and innovation. ? Empowering communities with preventive healthcare ? Integrating technology to meet real public health needs ? Enhancing patient safety & quality of care By embracing smart, accessible, and proactive healthcare solutions, we are building a future where prevention comes first and everyone gets the care they deserve. ?? #OurImpact #PREVENTABLE #RTRS?#RareTumorRiskSyndromes #RareDiseases #CommunityHealth #PreventionFirst #HealthcareInnovation #TechForHealth #PeopleCentredCare #PublicHealth #ImpactInAction #KeyImpacts #Impact5
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