President's Cancer Panel

The technological landscape has changed significantly since the establishment of the HIPAA Privacy Rule. Technology tools like mHealth apps, which generate, store, and use individuals’ health data, are not often covered under HIPAA. Despite efforts to protect health data outside the purview of HIPAA, significant compliance and interpretation challenges remain barriers to data sharing. Greater efforts are needed to evaluate existing privacy and security regulations and laws to improve policies to better protect patient data while facilitating data sharing to support #Tech4CancerNavigation.?https://lnkd.in/emz5eSRM

Stay connected with the #NationalCancerPlan and learn about efforts happening across the cancer community to achieve the eight goals of the Plan. We also encourage your submissions on activities or programs advancing progress against cancer at a local, state, or national level so that we can share your great work with the community. Subscribe to the newsletter or share?the link with someone you think could benefit from receiving updates on the Plan’s progress. https://lnkd.in/eyJ6yaXP?

New draft recommendations from the U.S. Preventive Services Task Force adds self-collected HPV tests in its recommendation—an action the Panel called for in its 2022 report to facilitate equitable access to cervical cancer screening. Self-sampling can extend the?benefits of cancer screening, particularly to those who cannot or do not want to participate in traditional screening. However, it is essential that individuals performing self-sampling for HPV tests are connected with a healthcare provider or system that will answer questions, provide results, and be accountable for facilitating the next steps in case of an abnormal result. The Task Force’s draft recommendation statement and evidence review are available for public comment: https://lnkd.in/euuePDiX

Effective cancer care delivery depends on the timely exchange of patient health data and the interoperability of health information technology. The Assistant Secretary for Technology Policy/Office of the National Coordinator for Health Information Technology (ASTP/ONC) leads and coordinates national interoperability efforts to enable the exchange of patient data across health IT platforms. Current ASTP/ONC programs advancing interoperability include: ? HHS Health IT Alignment Policy guides health IT activities and investments across HHS to advance interoperability and ensure department-funded health IT efforts facilitate data sharing and collaboration. ? HTI-1 rule updates the ASTP/ONC certification program, which requires health information technology developers comply with?core data standards for interoperability to obtain certification. ? TEFCA establishes a universal governance, policy, and technical framework for nationwide interoperability. The Panel encourages continued progress toward interoperability at the federal, industry, and health systems level to create a seamless workflow for #Tech4CancerNavigation. Learn more: https://lnkd.in/ew42uyxu

A new year means new Panel activities! At the forefront of every Panel meeting and report is our commitment to improving the lives of cancer patients & their families. Our mission is to ensure that the benefits of cancer discovery and science reach everyone. In this new year, stay tuned for Panel activities focused on exploring challenges and potential solutions to accelerate progress against cancer. https://lnkd.in/ebRjjFAA #Every1HasARole

Academic collaborations present an opportunity to improve research workforce diversity & inclusion. Duke Clinical and Translational Science Institute partnerships with North Carolina Central University and Durham Technical Community College, both serving underrepresented student populations, play a critical role in providing career and training pathways in clinical research and translational science, equipping individuals for careers in healthcare, biotech, pharma, and beyond. Learn more: https://lnkd.in/e-QCjpUm #Every1HasARole #NationalCancerPlan

In September, the President's Cancer Panel hosted a 2-day virtual meeting to assess workforce challenges and identify approaches to improve training, recruitment, and retention of a robust and diverse clinical care and research workforce.?Check out this blog post for meeting highlights: https://lnkd.in/eaDd9qHS #Every1HasARole #NationalCancerPlan

Dedicated private spaces within public places in the community can help increase patient access to telehealth appointments. Public libraries are leading this charge by implementing telehealth programs within their facilities. The Panel encourages continued support in the form of funding and outreach to libraries and public training in digital skills to facilitate patient access to virtual services & advance #Tech4CancerNavigation: https://lnkd.in/ejSmjRVq

The Affordable Connectivity Program (ACP) provided crucial financial support to help U.S. households afford internet access. An estimated 23 million households across the country benefited from this program. Yet despite its known impact, funding for the ACP ended in May 2024, limiting internet access for many Americans. To support #Tech4CancerNavigation, the Panel calls on the continued and sustainable funding for federal programs, such as the ACP, facilitating internet access for U.S. households. Explore our two recommendations for ensuring equitable patient access to technology for #PatientNavigation: https://lnkd.in/ejSmjRVq

#NationalCancerPlan Spotlight: Established in 2021, The Mason Center for Health Workforce at George Mason University serves as a catalyst and facilitator for community action to optimize Virginia’s health workforce. Through the use of integrated data systems to inform workforce planning and development, the Center equips health workers to meet the challenges of cancer prevention, care, and research. Learn more: https://lnkd.in/eUpFqh8M