Patient Empowerment Network

This Thanksgiving, We’re Grateful for You! ???? At Patient Empowerment Network, we’re reminded every day of the incredible strength, resilience, and compassion within our community. This Thanksgiving, we want to express our heartfelt gratitude to: ??Patients: Your courage and determination inspire us to keep advocating for better care and resources. ??Care Partners: Your selfless love and support make an immeasurable difference in the lives of those you care for. ??Healthcare Teams: Your dedication and compassion bring hope and healing to so many. ??Supporters and Advocates: Your voices and actions help create a brighter future for all patients. Thank you for being part of this journey with us. Together, we’re empowering lives, spreading hope, and building a stronger community. Wishing you and your loved ones a warm, joyful, and peaceful Thanksgiving! ???? Tracy Rode, CNE Aicha Diallo, MPH, CHES Andrea Winchell Joelys Gonzalez Bisono Kara Rayburn Nicole Normandin Nykema Mpama Reagan Weist, MHA Susan Liberatore #Thanksgiving #Gratitude #PatientEmpowermentNetwork #ThankfulForYou #CommunityOfHope

What is the role of #myeloma care partners during CAR T-Cell Therapy and recovery? Tune in tomorrow as Dr. Adriana Rossi of Mount Sinai Health System discusses steps care partners can take to assist their loved one. Register here: https://ow.ly/yoG550TWml1 #mmsm #bloodcancer

November is National Family Caregiver Month. Did you know there are over 53 million caregivers in the U.S.? This month, let's honor their dedication and advocate for better support systems. Engage with Patient Empowerment Network to learn more. Register for our upcoming webinar on 11/20 at 1pm ET | 10am PT with Dr. Adriana Rossi of Mount Sinai Health System to learn more about what steps care partners can take to assist their loved one as they go undergo CAR T-cell therapy: https://ow.ly/Fwn550TWlRU #immunotherapy #MMSMFamilyCaregivers #PatientEmpowermentNetwork

Don’t miss tomorrow’s webinar with with Dr. Rahul Banerjee of Fred Hutch as he discusses what you need to know about advances in CAR T-Cell Therapy for #myeloma. Register here: https://ow.ly/4qOi50TWkFS #bloodcancer #MMsm

?? Patient Empowerment Network had a fantastic time at the 2024 Nonprofit Storytelling Conference ! ?? At Patient Empowerment Network, we understand the power of storytelling to inspire and drive change. This conference gave us invaluable insights on how to tell more impactful stories that resonate with patients, care partners, and advocates. We’re excited to apply what we’ve learned to amplify the voices of those we serve. We believe that every patient’s story deserves to be heard, and this conference gave us new tools and strategies to make that happen. A big thank you to all the speakers and fellow attendees for sharing their expertise and passion! #NonprofitStorytelling #PatientEmpowerment #HealthcareAdvocacy #StorytellingMatters #NPSC2024 Tracy Rode, CNE Aicha Diallo, MPH, CHES Andrea Winchell Joelys Gonzalez Bisono Kara Rayburn Nicole Normandin Nykema Mpama Reagan Weist, MHA Susan Liberatore

?? Exciting News from the National Health Council's Washington Representatives Retreat! ?? Our CEO Tracy Rode, CNE, had the privilege of attending the National Health Council’s Washington Representatives Retreat, where we connected with NHC staff and fellow members to explore new opportunities for collaboration. This retreat has been a fantastic platform for networking, sharing ideas, and building partnerships that will help us continue advancing patient empowerment and advocacy. One of the highlights was conversations with partners—either potential, new, or long-time existing partners. Moments like these remind us why collaboration is key to driving meaningful change in healthcare. At Patient Empowerment Network, we believe in the power of partnerships to drive change and improve outcomes for patients everywhere. We’re looking forward to what’s next! ?? Photo: Lindsay Marjoram of Barth Syndrome Foundation, Tracy Rode, CNE, of Patient Empowerment Network and Amy Niles of PAN Foundation Aicha Diallo, MPH, CHES Andrea Winchell Joelys Gonzalez Bisono Kara Rayburn Nicole Normandin Nykema Mpama Reagan Weist, MHA Susan Liberatore #PatientEmpowermentNetwork #HealthcareAdvocacy #NHC2024 #PartnershipsThatMatter #WashingtonRetreat

I’m so honored to represent Patient Empowerment Network at this powerful event. Thanks National Health Council for #WRR2024!

As a final push for the passage of the #FY25 Labor-HHS spending bill, our CEO, Tracy Rode, CNE, is proudly representing Patient Empowerment Network alongside fellow cancer survivors as part of One Voice Against Cancer and other policy advocates today on Capitol Hill for their Mini Lobby Day! Tracy (pictured with Brandon Leonard of LUNGevity Foundation and Jaren Love with AACI (Association of American Cancer Institutes)) has had the opportunity to meet with Congressional offices. Specifically, urging Congress to work together to quickly finalize and pass the #FY25 Labor-HHS bill with the highest possible increases for life-saving cancer research and prevention programs: ?$51.3B for The National Institutes of Health ?$7.934B for National Cancer Institute (NCI) ?$1.5B for Advanced Research Projects Agency for Health (ARPA-H) ?$472.4M for Centers for Disease Control and Prevention At Patient Empowerment Network we are proud to be a member of One Voice Against Cancer (OVAC) to stand united behind our mission to ensure long-term, sustained federal funding increases for cancer research and prevention to save lives. Aicha Diallo, MPH, CHES Andrea Winchell Joelys Gonzalez Bisono Kara Rayburn Nicole Normandin Nykema Mpama Reagan Weist, MHA Susan Liberatore

Join us for a #myeloma webinar "Evolve | What You Should Know About Advances in CAR T-Cell Therapy for Myeloma" on Tuesday 11/19 at 10amPT | 1pmET with Dr. Rahul Banerjee of Fred Hutch Register now: https://ow.ly/Tfjx50TWkiE #bloodcancer #MMsm

Join/Share: “Myeloma Care Partners | How Can You Support Your Loved One During CAR T-Cell Therapy?" Webinar Wednesday, 11/20 with Dr. Adriana Rossi of Mount Sinai Health System. https://ow.ly/ISBW50TWm3x #immunotherapy #MMSM