PKD Foundation

Navigating a PKD diagnosis can feel overwhelming, but you don’t have to do it alone. In honor of World Kidney Day and this year’s theme, “Detect Early, Protect Kidney Health,” we invite you to watch this 2023 PKDCON session, “How to Navigate the PKD Diagnosis Process,” presented by Ronak Lakhia, M.D. In this session, you’ll learn how to get a second opinion, the best methods to prioritize information, and tips for customizing your personal medical care. https://lnkd.in/gt34uNDN ?????? PKD families count on resources like this—a gift from you today can help us expand our educational resources. From webinars to handbooks, your donation will make it easier for everyone to find the tools they need to manage life with PKD. Give today. https://lnkd.in/g7SBT45Y

“My name is Casey Medert and I found out I had PKD when I was 21 years old. At the time, I was in college and trying to figure out what I wanted to do with my life. No one in my family had PKD. I had no idea how this could affect my life, and it became a very scary time for me at such a young age. Fast forward to today: I’m now 36 years old and married with two amazing kids. While it’s still scary to be living with PKD, I find so much comfort in knowing that I have a supportive family and an amazing nephrologist who has my best interests in mind. Last year, she advised that I may potentially need a transplant in the next 10 years. She recommended that I start taking tolvaptan to decrease the growth of the cysts on my kidneys. While I’ve only been taking this medicine for a year, it’s given me hope that more advances will be made in the medical field in regard to PKD. It gives me hope that I will be present and healthy for my kids in the years to come.” New treatments and advances in PKD research don’t happen without your support. World Kidney Day only comes once a year. Join the PKD Foundation in positively impacting everyone affected by PKD. Give today. https://lnkd.in/g7SBT45Y

It's World Kidney Day and we’re raising awareness about the importance of early diagnosis for PKD patients. If left undetected and untreated, PKD can progress to kidney failure, leading to severe complications and even premature death. ?? Learn how ADPKD is diagnosed: https://lnkd.in/guiunwhC ?? Learn how ARPKD is diagnosed: https://lnkd.in/gy4wvC52 Providing patient education and care service programs is critical to our vision of ending PKD. By donating to the PKD Foundation today, you can ensure that everyone living with PKD gets the resources and support they deserve. https://lnkd.in/g7SBT45Y

It’s World Kidney Day! Today, we will be sharing resources matching this year’s theme, “Are your kidneys, OK? Detect early, protect kidney health.” Early detection and interventions like lifestyle changes can be useful tools in managing a person’s PKD journey. That's why we need your support. By expanding our education and care service programs, we can help everyone living with PKD. Unite with us on World Kidney Day. Give today. https://lnkd.in/g7SBT45Y

Registration is open for Kidney Fight (Virtual) Trivia Night! Hosted by the PKD Foundation St. Louis Community, and emceed by Trivia Riot, this fun-filled event supports critical PKD research. Registration is open to everyone, so your team (up to eight players) can join from anywhere. Learn more at https://lnkd.in/gan3tPhG

PKD makes life unpredictable for Justine and her husband, Jared. It affects everything from diet and travel to family planning. Through the ups and downs,?Justine turns to the PKD Foundation for trusted information and a supportive community to help her be a compassionate care?partner. ? “I have worked in healthcare for 19 years. I'd heard of PKD, and conceptually understood what the disease was, but it wasn’t until I met my husband and his family in 2021 that I really understood. It’s shocking how uniformed people in healthcare are about PKD... This is what motivates me to support the PKD Foundation. I want to be an advocate for those living with this disease and their loved ones. I know there are many different choices my husband would have made over his lifetime if he knew how it would impact the progression of his disease.” During National Kidney Month, you can ensure every person affected by PKD has access to the resources they need. Give Today. https://lnkd.in/gupd84_d

This International Women's Day, we're proud to celebrate the women driving PKD research forward! All of our 2024 research fellowships are led by women. These brilliant scientists are dedicated to uncovering new insights, advancing treatments, and moving us closer to ending PKD. Learn more about PKD Foundation-funded research at https://lnkd.in/gUDdu3i.

Developed with a Community Engagement Grant from the PKD Foundation Centers of Excellence Program, we’re excited to share this 12-part yoga series designed to help kidney patients incorporate gentle movement into their routine. Each session is under 20 minutes, making it easy to fit into your day. https://lnkd.in/gDtcsKNF Meet your guide: Nercy Sullivan, a certified yoga teacher and founder of Renavida, an organization dedicated to empowering the Hispanic community through kidney donation. *Please note, any changes to your lifestyle or exercise routine should be made in consultation with your healthcare provider. ?????? Desarrollada por medio de una subvención de participación comunitaria del Programa de Centros de Excelencia de la Fundación PKD, nos complace compartir esta serie de yoga de 12 partes dise?ada para ayudar a los pacientes renales a incorporar movimientos suaves a su rutina. Cada sesión dura menos de 20 minutos, lo que hace que sea fácil de incorporar a su día. Conozca a su guía: Nercy Sullivan, profesora de yoga certificada y fundadora de Renavida, una organización dedicada a empoderar a la comunidad hispana a través de la donación de ri?ones. * Tenga en cuenta que cualquier cambio en su estilo de vida o rutina de ejercicios debe realizarse en consulta con su proveedor de atención médica.

PKD affects us all in different ways, but together, we are stronger. Show the world your connection to polycystic kidney disease by sharing one of these graphics. Whether you're living with PKD or caring for a loved one, we’re all fighting for a future without it. Help us raise funds for PKD research and resources during National Kidney Month. Give today. https://lnkd.in/gupd84_d

This National Kidney Month take the next step toward ending PKD. Our PKD Foundation supporters can?ensure?everyone?impacted by PKD has the resources and care they need to navigate this disease. With your gift today, you’ll help increase research funding, expand care services and education, and broaden local support for PKD community members. Make a difference, give today.?https://lnkd.in/gqZDygkZ